Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)




By Cort Johnson in Health Rising.


Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on ME/CFS – was abruptly over.  No explanation given. See ya! Bye-bye!

The Chair of the Committee, Faith Newton, told Jennie Spotila that the notice came out of the blue: “I had no idea that this [charter expiration]was even a possibility or under consideration.”  Unbeknownst to the members and the ME/CFS community, the destruction of the panel had been in the works for months.

So much for supporting this still oh-so-neglected disease.  We’re here for you they said…until they weren’t and with a brush of a pen and nary a good-bye, our federal advisory committee was suddenly gone. It was almost as if it had never existed.


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