I don’t think I’m unusual in wanting to celebrate the good things in life. I don’t think I’m unusual in preferring to showcase the things I can do on social media rather than what I can’t. Tuesday 29th August 2017 was a perfect example. It was our silver wedding anniversary. We celebrated with a second honeymoon earlier in the summer, but we wanted to mark our actual day with the family and doing something significant.
I guess a bike ride in the Peak District wouldn’t be most people’s way of celebrating 25 years of marriage! However, my husband and I always enjoyed the outdoors, sport and physical exercise. Most of our recreational time together would always involve one of these by choice – until that choice was removed when I was diagnosed with Myalgic Encephalomyelitis (ME). It’s 4 years since I had my full relapse, and by listening carefully to my body, resting (A LOT!) and sticking to a strict diet my health has gradually improved (in an undulating kind of way!).
One of the hallmark features of ME is Post Exertional Malaise (PEM) Basically this is a worsening of symptoms following physical or cognitive exertion. The level of exertion is different for everyone. For people with severe ME it could be as little as brushing their teeth, talking on the phone, or reading. Fortunately, my threshold is now much higher, but I’m not immune so I still have to pace all activity carefully.
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