My Secret Life – M.E/CFS Kids And Motherhood



By Sarah Wells in My Stripey Life.


Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and subtlety, one in which the person is generally unassuming. However, in the second, “secret” life, the true essence of the person is displayed, and is generally only revealed to close family and friends.

I am leading a double life.

Each morning I get up, my make up goes on and I leave the house to do the school run.  I make small talk in the playground with friends.  Go to coffee once a week with a group of mums.  I smile, I am interested in their lives.

It’s important to me that I’m a good mum, friend, sister, daughter.  My house is usually clean and tidy, dinner cooked, (all fresh and gluten free), the bills are paid, we have a decent car.  From the outside it all looks good.

What people don’t always know is I have a secret.

My funny, bright, handsome teen is sick.  This year he was diagnosed with myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) in addition to hypermobile Ehlers-Danlos syndrome (hEDS) and most likely postural orthostatic tachycardia syndrome (POTS).


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