My Secret Life – M.E/CFS Kids And Motherhood





From the Mystripeylife Blog by Sarah Wells.


I am leading a double life.

Each morning I get up, my make up goes on and I leave the house to do the school run.  I make small talk in the playground with friends.  Go to coffee once a week with a group of mums.  I smile, I am interested in their lives.

It’s important to me that I’m a good mum, friend, sister, daughter.  My house is usually clean and tidy, dinner cooked, (all fresh and gluten free), the bills are paid, we have a decent car.  From the outside it all looks good.

What people don’t always know is I have a secret.

My funny, bright, handsome teen is sick.  This year he was diagnosed with myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) in addition to hypermobile Ehlers-Danlos syndrome (hEDS) and most likely postural orthostatic tachycardia syndrome (POTS).

It’s a year since this condition really stole his world, and flipped mine upside down.


To read the rest of this story, click on the link below:


Link to Secret Life story

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