York City legend Andy McMillan Aims To Save NHS Thousands A Day

andy.jpg.gallery

    By Dave Flett in The Press. HE once tackled the likes of Ryan Giggs and Anders Limpar for the Minstermen, but Andy McMillan is now hoping to stop the city’s germs and bacteria in their tracks. The York City legend is taking a break from football to concentrate on an exciting new business […]

Trial By Error: Who Has The School Study Documents ?

David Tuller

      By David Tuller, DrPH. Update (later on March 4): Because Royal United Hospitals Bath suggested that I “redirect” my request for documents back to Bristol University, that’s what I did. Earlier today, I sent an e-mail to Bristol’s director of legal services. Here’s what I wrote: As you likely remember, I have […]

Some Claims That London 2012 Changed The World Are Nonsense, Says Disabled Peer

Disability Dice

  By John Pring in Disability News Service.   One of Britain’s greatest Paralympians has told a parliamentary meeting to beware of claims that London 2012 “changed the world” for disabled people. Baroness [Tanni] Grey-Thompson (pictured) was speaking at a parliamentary meeting held to discuss the need for more to be done to enable disabled […]

It’s Time To Pay Attention To “Chronic Fatigue Syndrome”

94bm3OnO_400x400

  By Diane O’Leary in BMJ Blogs. Professional and public debate about myalgic encephalomyelitis/chronic fatigue syndrome(ME/CFS) has reached a new pitch.  A London Times article in August described the “acrimonious scientific row” that’s erupted in the UK now that the US Institute of Medicine, National Institutes of Health, and Centers for Disease Control insist that ME/CFS is not a psychosomatic […]

How British Sign Language Developed Its Own Dialects

61DwomkK6PL._SL1280_

    By Adam Schembri and Kearsy Cormier in The Conversation.    There are many different ways of speaking English in the UK, with people using different regional dialects in different parts of the country. For example, some people would say “give it me” while others might say “give it to me”. There is also variation in the names […]

You Don’t Look Sick: ‘My Skin Condition Causes A Lot Of Pain But I Gave Up My Blue Badge Because Of Abuse’

Invisible Illness

  By Laura Abernethy in Metro.     Welcome to You Don’t Look Sick, our new weekly series about invisible illness and disabilities. There are 13.9 million disabled people in the UK, but for many of them, you would have no idea anything is wrong. Lots of people suffer from debilitating symptoms and daily struggles […]

Sleep Deprivation Can Mimic Chronic Fatigue

Fatigue

    From Blue Mountain Gazette.   The reason for fatigue can be difficult to pin down, be it due to an underlying illness, a mental health issue, or a new baby in the house. But fatigue is more than just tiredness. Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME) commonly affects the nervous, gut, […]

Northern’s Long Six-Carriage Trains Delayed By Two Years

RAIL Branson 1...Handout picture released Tuesday June 5, 2001 of a Voyager diesel train which Sir Richard Branson hopes will kick start a "rail renaissance".  He hopes that the new 125 mph trains will drastically cut journey times on Virgin Rail's two routes - West Coast main line and CrossCountry (correct).  Complete with airline-style audio entertainment at every seat, the Voyager trains are being introduced initially on the CrossCountry Birmingham-Reading-Brighton route to beat heavy road congestion in the area.  The trains, which have an on-board shop to replace the old-style buffet, will carry passengers on a local shuttle service between Birmingham and Reading and from July 22 they will become part of the Birmingham-Brighton timetable.  See PA story RAIL Branson.  PA photo: Handout/Virgin.

  By Tom Burridge, Transport correspondent, BBC News.   Train operator Northern’s six-carriage long services in and out of Leeds station have been delayed by two years, BBC News has learned. The longer trains were to be introduced at the end of this year but will now not enter service until late 2021. The delay is […]

No. 1 Pacing Tip: How To Unlearn The “Completion Compulsion”

Pacing

    By Julie Holliday in ProHealth. There is nothing in our once healthy previous lives that can prepare us for what’s involved in getting good at pacing––at least in the way that the very limited energy of illnesses like ME/CFS, Fibromyalgia and Lyme disease demands. Pacing to someone healthy, might mean something like keeping […]

Trial By Error: Stupid Studies

DavidTuler-265x300

    By David Tuller, DrPH. Boy, it’s hard to keep up with all the stupid studies coming out! But that’s no reason not to take a look at a couple of them. (In both cases, I’m just making a few comments. Much more could be said about each of these studies. You can read […]

Newton Forced To Apologise After Misleading MPs In WOW Debate

DWP Caxton House

    By John Pring in Disability News Service.   The minister for disabled people has been forced to apologise to MPs after Disability News Service (DNS) caught her misleading MPs about support for disabled people for the fourth time in less than a year. The misleading comments by Sarah Newton about disability poverty came in […]

Using A Cane With An Invisible Disability

_48212010_stickbbc[1]

  By Kit O’Connell in Approximately 8,000 Words Blog.   I thought I’d write for a moment about what it means to use a cane as a person with an invisible disability (fibromyalgia). Invisible disabilities are life-altering health conditions which are nonetheless not always visible to a normal observer. Even a trained medical professional might miss […]

Why I Gave Up Trying To Be The ‘Good Patient’

Chronic

    By Alexis Redenbach in The Mighty. We’ve all seen the movies: the patient stoically braves the struggles of treatment and only gets angry one time, in a huge but righteous burst of frustration. The person in a traumatic accident is told they will never walk again but by sheer force of will, they somehow […]

DVLA Driving Licence ALERT: Medical Conditions You Need To Inform The DVLA To Avoid A Fine

Driving Licence

By Luke John Smith in The Express.   MOTORISTS in the UK are required to inform the DVLA about a number of medical conditions as they could affect the way you drive and you could be fined £1,000 if you fail to do so.   Motorists could receive a fine of up to £1,000 for […]

Another Big Bill For The £24m Health Centre That Costs The NHS £2m A Year To Run And Has NEVER Been Used

Hospital

  By Lisa Meakin in the Manchester Evening News.   Not a single patient has used the Altrincham Health and Wellbeing Centre – now another £1.5m could be spent turning part of it into office space. Another £1.5m could be spent turning part of a brand new health centre into OFFICE space because the NHS services it […]

Part II: ME/CFS, Sepsis And Glycocalyx

Blood Cells

  From Syndrome A.   To recap from the previous blog post “Part I: Blood Flow in Sepsis & ME/CFS”, ME/CFS looks like a lot like sepsis and sepsis is an inflammatory illness of blood vessels. The blood vessel problems in sepsis interfere with oxygen delivery to cells. The particular kind of blood flow problem that you find in […]

Abuse Prevention: How To Turn Off The Gaslighters

Gaslighting

    By Anna Moore in The Guardian.   Gaslight was the play that made its writer Patrick Hamilton a very rich man. It opened in London in 1938 to exceptional reviews. Noël Coward was a fan. King George VI took his wife to see it. In 1940, it became a British film, followed four years later by the […]

Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia & POTS? Pt I – The Brainstem Series

Cort_Johnson

    By Cort Johnson in Health Rising.   Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with headaches, dizziness, muscle weakness and pain, sound and light sensitivity, and a general sense of being […]

Allodynia: A Rare, Distinct Type Of Pain In Fibromyalgia And ME/CFS

Chronic Pain

    By Adrienne Dellwo in Very Well Health.   Allodynia is a rare type of pain, generally on the skin, that’s caused by something that wouldn’t normally cause pain. This pain type is frequently associated with fibromyalgia, and some people with chronic fatigue syndrome have it as well. Other conditions associated with allodynia include neuropathy, postherpetic neuralgia (shingles), and migraines. Outside of these conditions, […]

One Of The Most Advanced Solar Farms In The World To Be Built Near York

2015-08-25_bus_12139137_I1

  By By Chloe Laversuch in YorkMix.   A solar energy farm said to be the most advanced in the UK and possibly the world will open near York this autumn. Panels will be installed on land at Boscar Grange Farm to the east of the A19, 12 miles north of the city near Easingwold. It is one […]

Government Is Failing On Disabled Women’s Rights, UN Is Told

dns-sticky-short1

    By John Pring in Disability News Service.   Activists have told a UN committee how the UK government is failing to address the significant barriers and human rights violations faced by disabled women in accessing social security, justice, jobs and health services. Eleanor Lisney and Rachel O’Brien, from the disabled women’s collective Sisters of Frida, were […]

How To Cope With “Brain Fog” When You’re Chronically Ill

Brain Fog

  By Toni Bernhard J.D. in Psychology Today.   Cognitive dysfunction is often a distressing feature of chronic pain and illness.   People who are chronically ill (which includes chronic pain) often experience cognitive difficulties. Sometimes this is referred to as “brain fog,” which is defined as a lack of mental clarity due to an inability to focus or remember things. […]

Wheelchair Friendly Walks In Yorkshire

traveling-in-a-wheelchair

    From Fenetic Wellbeing.   Can you remember a sunny bank holiday? Us neither. But on the off-chance the heavens don’t open, we’ve put our heads together and come up with some cracking wheelchair friendly spots for a day out in Yorkshire. Can you remember a sunny bank holiday? Us neither. But on the […]

How To Track Down Your Old Pensions

Pension

    From SAGA Magazine.   There’s more than £400 million of unclaimed pension savings in the UK, here are our top tips for tracing your old pension pots… More and more people are moving jobs several times throughout their working life and accruing multiple pension pots along the way. With the disappearance of the […]

Shock, Hypoxia & ME/CFS: Part I

Nervous system

From Syndrome A.   When I first got sick with ME/CFS, I was a teenager. I was quite baffled when I suddenly became too exhausted to make it to classes, stopped sleeping almost entirely and started sweating profusely. I sweat raindrops: huge drops of sweat rolled down my sides constantly. No antiperspirant was a match […]

To Those Who Say Chronically Ill People Are ‘So Lucky’ Not To Work Full-Time

Chronic Illness

  By Alexandra Ellen in The Mighty.   Have you ever had the “joy” of experiencing a conversation similar to this on a Sunday afternoon? “What time do you start work tomorrow?” “Ummm, I don’t work on Mondays.” “Ahhh, you’re so lucky!” I lost count of the number of times I’ve had similar conversations. I […]

Chronic Fatigue Syndrome: ‘It Was Like A Switch Had Been Flipped. I Couldn’t Stand Ip’

Irish Times

  By Louise Ní Chríodáin in The Irish Times.   Aspiring dancer Rosa Devine was 16 when illness took her legs from under her. Bedridden, by what she came to know as chronic fatigue syndrome, comic books and art would become first a solace, and then the trajectory to a new future. “It was easier to […]

Virgin Trains Launches New Alexa Feature For Disabled Passengers To Book Help

virgin-train_2179164b

  From ITV News.   A train company has launched a new service enabling disabled passengers to book travel assistance using voice commands. Virgin Trains customers can request help getting on and off trains and reserve wheelchair spaces with Alexa-enabled devices. The JourneyCare service for people with special requirements could previously only be booked by […]

People With Rare Diseases Get ‘Unequal Treatment’ From ‘Inflexible’ NHS Drug Regulator, Warns Report Calling For System Reform

NHS

    By Vanessa Chalmers in The Daily Mail.   The NHS drug regulator has been branded ‘inflexible’ when it comes to approving medicines for rare diseases in a report calling for it to be reformed. The National Institute for Health and Care Excellence (NICE) gives guidance on how to improve health care, including advising on how […]

Trial By Error: The Cost Of MUS

David Tuller

    By David Tuller, DrPH In January, I wrote about the problematic online training course developed by the Royal College of General Practitioners and touted by Steve Brine MP as addressing the “misconceptions” about ME (or CFS/ME, as the online course calls the illness). The lead author of the course was Carolyn Chew-Graham, a professor of general […]

Are Surgeons Missing The Major Differential Diagnosis That Is More Common Than Multiple Sclerosis And HIV combined ?

Doctor

        By Nina Muirhead in Royal College of Surgeons.   It’s a great feeling when we meet a new outpatient that we know how to manage surgically. Unfortunately, every surgical specialty experiences a subgroup of patients who present with symptoms that cannot be resolved by surgery. These symptoms may span immune, neurological […]

Myalgic Encephalomyelitis – Unknown Cause. No Cure. New Hope.

ME 1

  By Lily Williams in ASBMBTODAY.   Lizzie Mooney is 12 years old. She is tall for her age with long blond hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches […]

The York ME Community © 2015
Powered by Live Score & Live Score App