Myalgic Encephalomyelitis: International Consensus Criteria

ME Explanation

    From The Journal of Internal Medicine.   Abstract:   The label ‘chronic fatigue syndrome’ (CFS) has persisted for many years because of the lack of knowledge of the aetiological agents and the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it […]

The Health Cost Of Cutting Free School Lunches Will Be Far Greater Than The Price Of Them

Free School Meals

    By Sophia Komninou in The Conversation.   The Conservative Party’s manifesto pledge to replace free school lunches – for children in the first three years of primary school in England – with free breakfasts is curious to say the least. Since it was announced, researchers have found that the cost of the project is hugely […]

Failings Of The Establishment Organisations Toward People With ME

invest

  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

The Last Major Disease To Be Studied ? Ron Davis of Stanford Thinks So

Ron Davis

    by Ayanna Monteverdi in menedelspod.com.   Let’s say you’re a biomedical researcher looking for a place to make your mark. You find out that there is still a major disease that affects more than 2 million people in the US, and we still know virtually nothing about this disease at the molecular level. […]

What’s The Harm ? How I Turned To Wellness Out Of Desperation To Cure My Chronic Illness

Natasha Lipman

    By Natasha Lipman.   This week, I headed up to Leeds to speak at the British Dietetic Association’s Eat Fact Not Fiction event, where I had the pleasure of telling my story of falling for wellness, and why it’s so important that we don’t just dismiss people as stupid for falling for these trends. I’ve […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

Mike Drop

  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

8 Things That Spoonies Are Totally Over

Spoonie Warrior

    From The Spoonie Warrior Blog.   While my condition has only been disabling for the past year and a half, I’ve technically had chronic illnesses my entire life. Even before being diagnosed, my illnesses affected my life greatly. Most people will want to hear that, despite my struggles, I make sure that I […]

Disabled Go – Access Information For The Disabled

Disabled Go

  A very warm welcome to DisabledGo.com. We hope that you find our services really useful and that you visit us often. On our website you’ll find detailed access information to thousands of venues across the UK and the Republic of Ireland: shops, pubs, restaurants, cinemas, theatres, railway stations, hotels, universities, hospitals and more. Established over […]

This 12-Year-Old Is Creating An App For Disabled People

Alexander Knoll

  By Joe Fryer in NBC News.   At just 12 years old, Alexander Knoll is already handing out business cards. Even more impressive, his title on those business cards is “CEO.” The inventive, freckle-faced redhead is creating something called the Ability App, which is like Yelp for accessibility. When it’s finished, the free application […]

Magical Happenings At The North Yorkshire Moors Railway

Railway

    From The Yorkshire Times.   Calling all Muggles! To celebrate the 20th anniversary of Harry Potter and the Philosopher’s Stone, the North Yorkshire Moors Railway is offering free entry to all children dressed as witches and wizards from Saturday 24th – Monday 26th June. Children who visit in fancy dress will travel free […]

Viruses And CFS: Statements By Ron Davis And Bob Naviaux

Medicine Foundation

    From Open Medicine Foundation.   Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear that a virus is involved in sustaining the disease. However, some patients may have a continuous problem with viruses, especially those viruses we always carry like […]

Government Fails To Deliver £4 bn Savings After Cutting Disability Benefit, New Analysis Shows

DWP Caxton House

  By Shehab Khan in The Independent.     The Government has failed to deliver the £4bn of savings it was expecting to make after cutting disability benefit, according to new analysis. The Office for Budget Responsibility (OBR) said the Government was hoping to cut spending by 20 per cent by moving from the Disability […]

York Minster Appoints Head Of Bell Ringing – Who Plans To Heal, Then Peal

Minster

  From YorkMix.   York Minster has appointed a new head of bell ringing – and she said: ‘There is some healing to do’. Angela Mitchell, the head of Ralph Butterfield Primary School, is the new Head of Bell Tower. She was a member of the bell ringers who were sacked by the Minster over […]

New Members Of The European ME Alliance

EMEA

  From the European ME Alliance Website.   Recently the European ME Alliance met in London for its 2017 Annual General Meeting. The events took place following the Invest in ME Research Conference week consisting of research Colloquium and Conference events. Amongst the other business at the meeting was the acceptance of applications from two […]

ME/CFS: A New Explanation – And Cure ?

Dr Eriksen

      From TraceyDuvall.com.   In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via […]

ME And Me: Making Films About Disability To Raise Awareness

Film

      From Disability Horizons.   Disabled writer and actor Thom Jackson-Wood, who has ME, talks to Disability Horizons about his films, Awaken and The Black Box, both of which are about disability. Written after frustrations at disabled people being misrepresented on TV, he hopes the films will raise awareness of different disabilities, and […]

7 TV Shows That Got Chronic Illness (Mostly) Right

Golden Girls

    By Erin Migdol in The Mighty.   If you’re looking for an accurate, informative, compassionate representation of your illness, it’s safe to say you’ll probably have a hard time finding it on TV. Most shows portray illnesses in a sensational, highly dramatized way, picking and choosing certain symptoms or stereotypes to emphasize and […]

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