Parents And Children Missing From Their Lives Due To M.E.



From ME Action.


Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are missing precious days and years with their children due to the disease, and parents of children with ME are fighting to provide care for their sick children in a world where there is scarce medical knowledge, treatments and research funding for ME.

From May 5th to May 12th, the ME community around the world is fighting for justice for people with ME. We are the Millions Missing! Learn more at

Read the stories of parents with ME, and parents of children with ME. 

My ASD daughter doesn’t understand why Dad is unable to get out of bed anymore, always living in the dark, always having to be quiet around Daddy, doesn’t understand why I cannot play with her to help her with her daily challenges, why mommy has to bathe Dad from the bed. More funding is a must for this horrid disease. It impacts our families in ways most cannot conceive of. We are the millions missing. Please save our lives. One voice from the dark.

– Glenn Yonce | Greenwood, USA.


To read the rest of this story, click on the link below:


Link to ME story

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