From Invest In ME Research.
A parliamentary debate on the research and treatment of Myalgic Encephalomyelitis (ME) secured by Carol Monaghan MP for Glasgow North West was held on Thursday 21 June 2018 at 1.30-4.30pm in Westminster Hall. The request for debate was raised with cross-party support at a Back Bench Committee Meeting on 5 June 2018.
UK charity Invest in ME Research published a June 2018 status update for MPs and others on the progress of the UK Centre of Excellence for ME research and treatment: investinme.org/ce-cofeforme.shtml#exsu
A report by Invest in ME Research on the broader issues of accountability and actions needed is here: http://investinme.org/IIMER-Newslet-1806-01.shtml
This includes their recommendation that a five-year, ring-fenced budget of £20 million per year for biomedical research into ME should be allocated, and funding for the Centre of Excellence for ME that the charity has been facilitating the development of for the last eight years.
It was wonderful to hear the Invest in ME Research Centre of Excellence for ME research and treatment raised early on in the debate. The Parliamentary Under-Secretary of State for Public Health and Social Care said it sounds very promising and that he looks forward to hearing more about this. From the perspective of the Let’s Do It for ME campaign, it was also humbling to be acknowledged for raising over £800,000 to date to enable the biomedical research programme to get underway in 2013 (Donate here to help us make it to a £million); and the sad fact that we have not all lived to see this day.
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