An ME blog by Valerie Eliot-Smith.
This year will bring some changes which mean I need to step back from my research and advocacy work. This work has covered a number of different topics and this is reflected in the sub-heading of this blog “Law and health; due process and civil society“. However, my main focus has been on issues facing the international community of people who live with the illness myalgic encephalomyelitis (ME) – sometimes also conflated unhelpfully with the condition “chronic fatigue syndrome/CFS”.
I have lived with ME since 1981 (possibly longer) and began to learn about its history and pathology from 1989, when I was first diagnosed. In 2009, I started increasing the scope and range of my research online and in 2012 I set up this blog in order to publish my work on the so-called “Secret Files on ME“.
Starting this blog was not a planned decision but rather a rapid response to some misinformation about the “Secret Files” which was circulating online (how little has changed). Since then, I have used it as a platform to explore and publish more information about a variety of topics. As is the case for all advocates who themselves live with ME, the amount of work I have been able to achieve has been severely restricted by the illness.
For more detail about my qualifications and experience see the About section of this blog.
To read the rest of this blog, click on the link below: