From ME News Australia.
More than 700 people signed the petition to ask the Mason Foundation and the University of New South Wales (UNSW) to cease the trial of graded exercise therapy for chronic fatigue syndrome, in the face of newly-released evidence from the PACE trial (which UNSW relied upon in this trial).
“We are deeply concerned that your trial, UN1111-1180-1073, “investigating the efficacy of online continuing education for health professionals to improve the management of chronic fatigue syndrome (CFS)” is based on poor science and is likely to cause harm to patients. We ask the University of NSW to cease this study immediately and the Mason Foundation to withdraw funding and to cease funding trials using graded exercise therapy for chronic fatigue syndrome.”
The petition and covering letter were sent to the trustees of the Mason Foundation, who funded the trial and the UNSW’s President and Vice-Chancellor, Prof Ian Jacobs. A copy was also sent to the (then) Minister for Health, Susan Ley, and the CEO of Australia’s National Health and Medical Research Council (NHMRC), Prof Anne Kelso, as the NHMRC have also funded graded exercise therapy and cognitive behavioural therapy trials for chronic fatigue syndrome at UNSW.
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