Scientist Ron Davis Is Fighting To Cure His Son’s Chronic Fatigue: ‘It’s Like A Living Death’

Ron Davis

 

By Johnny Dodd in People.

 

Stanford geneticist Ron Davis faces his toughest challenge yet: tackling the chronic fatigue syndrome that has left his 37-year-old son bedridden.

Thirty minutes into a Zoom interview about their years-long battle to keep their son Whitney Dafoe alive, Janet Dafoe shoots her husband Ron Davis an anxious glance.

Whitney, 37, suffers from a severe case of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — an incurable disease that can leave its victims in a state of crippling fatigue and exhaustion.

It’s been 12 hours since Whitney, who is bedridden and dependent on a feeding tube, last rang the tiny bell he uses to summon his parents when he needs something — and Janet, 71, can’t help but worry.

“Sometimes when that happens, I get that feeling in the pit of my stomach that the next time I go in there, he’s going to be dead,” she tells PEOPLE.

 

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