From Gwenfar’s Garden and other musings.
This article was first published in the ME Association’s ME Essential magazine, Spring 2021, pages 32-33.
Slow onset ME. You’ve probably never heard of it. It’s mentioned here and there, and on the ME Association website, but there are no explanatory leaflets or research articles. This isn’t anybody’s fault. It’s just that this subset of ME is much less well understood. It must be hard to research something that is so gradual that it is almost ephemeral. So I wanted to write up my ME journey, so that when others search for “slow-onset ME”, they would know they’re not alone.
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I got a virus and never got well. That’s the most common response to the question ‘How did you get ME?’. It wasn’t like that for me. No virus, just a slow decline over many years, with my symptoms masked by those of other health problems.
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