Rethinking The Treatment Of Chronic Fatigue Syndrome—A Reanalysis And Evaluation Of Findings From A Recent Major Trial Of Graded Exercise And CBT


    By Carolyn Wilshire et al in ResearchGate.   Abstract BACKGROUND: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. […]

NEID Disease ? Study Suggests Neuro, Endocrine And Immune Systems Work Together To Produce ME/CFS


  By Cort Johnson in Simmaron Research.   Bruun Wyller continues to surprise. When last heard from this erstwhile cognitive behavioral therapy (CBT) proponent asserted that more research into Epstein-Barr virus in chronic fatigue syndrome (ME/CFS) was needed. Now he’s looking at the interaction between the immune and endocrine systems. Wyller begins his new study […]

A Letter To Professor Mark Baker – Centre For Guidelines Director, National Institute For Health And Care Excellence


  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME it has, in our opinion, been necessary to make one […]

Chronic Fatigue Syndrome Is A PHYSICAL Condition Not A Mental Illness, Says Ellen Wiles


  By Ellen Wiles in The Express.   Before I fell ill life was sweet and full of promise. Fresh out of Oxford University, where I had somehow come top in the year, I was working in consultancy while I figured out what I really wanted to do. Then just before Christmas I got flu. I spent […]

David Tuller And The (S)PACE Cake Eaters

David Tuller

    By Anil van der Zee.   In 2015 David Tuller, DrPH, a Senior Fellow in Public Health in Journalism at the Center of Global Public Health, School of Public Health at Berkeley University started writing 3 very detailed blogs about the flaws of the now infamous PACE-trial. The patient community has been advocating for years, if […]

Chronic Fatigue Syndrome: More Research Backs Up Patients


By Temma Ehrenfeld in Psychology Today.   Researchers at Georgetown University Medical Center have found changes in brain chemistry 24 hours after riding a stationary bike for 25 minutes that they consider a molecular signature for chronic fatigue syndrome. Chronic fatigue syndrome was dubbed “psychosomatic” by many until a couple of years ago and sometimes considered a reaction to early trauma. The turning point […]

Pacing And ME


    From The Journal Of Health Psycology. By Keith Geraghty, Mark Hann, Stoyan Kurtev First Published August 29, 2017 Research Article   Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys.   Cognitive behavioural therapy and graded exercise therapy are […]

Trial By Error: My E-Mail Exchange With NICE Chief Executive

David Tuller

  By David Tuller, DrPH.   On Friday, I had an e-mail exchange with Sir Andrew Dillon, chief executive of the NICE Guidance Executive. The other seven Guidance Executive members are various directors within the NICE hierarchy, including the communications director. This group will make the final decision about whether to accept the provisional decision of a […]

Angry Scientists Throw Insults At Each Other Over The Results Of A £5 Million Taxpayer-Funded Study Into Chronic Fatigue Syndrome


    By Stephen Matthews in Mail Online.   Angry scientists are throwing cheap insults at each other regarding the ‘flawed’ results of a landmark £5 million British study on chronic fatigue syndrome. One medical journal dedicated its entire August edition to ripping apart the ‘unreliable’ trial, which was funded by taxpayers. In response, three […]

The Making Of The PACE Scandal


    From Centre for Welfare Reform.   A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution of the Journal of Health Psychology to the literature concerning interventions to manage chronic  health problems. The […]

CDC Removes Reference To Disputed ME/CFS Therapies From Website

David Tuller

  By David Tuller in Undark.   The agency has long recommended two controversial treatments for chronic fatigue syndrome. Earlier this month, it quietly made some changes.   For years, the U.S. Centers for Disease Control and Prevention recommended two controversial treatments for ME/CFS, the illness often known as chronic fatigue syndrome: a program of […]

Why CBT Is Falling Out Of Favour


  By Oliver Burkeman in The Guardian.   Everybody loves cognitive behavioural therapy. It’s the no-nonsense, quick and relatively cheap approach to mental suffering – with none of that Freudian bollocks, and plenty of scientific backing. So it was unsettling to learn, from a paper in the journal Psychological Bulletin, that it seems to be getting less effective over […]

The Smile Trial (Part 1) – (The Lightning Process)


  From Johnthejack.com   Why the trial should never have been allowed in the first place. The first of three blogs on the SMILE trial.   There is no evidence the Lightning Process (LP), a mish-mash of elements of cognitive behavioural therapy, neurolinguistic programming, hypnotherapy, life coaching and osteopathy, is anything other than quackery. For […]

On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again)


    By Cort Johnson in Health Rising.   The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to hide under one’s bed. […]

How A Study About Chronic Fatigue Syndrome Was Doctored, Adding To Pain And Stigma


    By Steven Lubet in The Conversation.   The public relies on scientists to report their findings accurately and completely, but that does not always happen. Too often, researchers announce only their most favorable outcomes, while keeping more disappointing results well out of sight. This phenomenon, first identified by the psychologist Robert Rosenthal in […]

Danish RCT Of Cognitive Behavior Therapy For Whatever Ails Your Physician About You


    By James Coyne in PLOS Blogs.   I was asked by a Danish journalist to examine a randomized controlled trial (RCT) of cognitive behavior therapy (CBT) for functional somatic symptoms. I had not previously given the study a close look. I was dismayed by how highly problematic the study was in so many […]

CBT Won’t Cure My Chronic Fatigue, Any More Than It Would Cancer – It’s A Physical Illness


  By Scott Jordan Harris in i News.   The announcement of a new initiative to offer online Cognitive Behavioural Therapy to teenage suffers of ME, also known as Chronic Fatigue Syndrome, has re-opened debate about whether ME is a mental illness. The reality is there is no debate about the answer to that among anyone […]

New CBT And GET Threat For Australian CFS Patients


  By Sasha Nimmo in Shout Out About ME.   Australian CFS researcher, Prof Andrew Lloyd last year explained he was working on an online program of graded exercise therapy (GET) and cognitive behavior therapy (CBT) at the University of NSW’s Fatigue Clinic. Prof Lloyd described the PACE trial, which evaluated these therapies, as having “reasonably […]

Renowned Scientists Condemn PACE Study


By Russell Logan in shoutaboutme.com   An international group of scientists has added to the growing condemnation of the PACE trial study, published in the Lancet in 2011, which has propped up poor government and clinical care policies for those with the serious neurological illness myalgic encephalomyelitis (ME), sometimes called chronic fatigue syndrome. An open letter from […]

‘CBT Is A Scam And A Waste Of Money’: Popular Talking Therapy Is Not A Long-Term Solution, Says Leading Psychologist


By Jenny Hope, Medical Correspondent for the Daily Mail. People with mental health problems are victims of  a ‘scam’ therapy that is wasting vast sums of money, a leading psychologist has warned. They are being misled because the short-term fix offered by Cognitive Behavioural Therapy (CBT) does not have a lasting benefit, says Oliver James. […]

Trial By Error: The Troubling Case of the PACE Chronic Fatigue Syndrome Study


  By David Tuller, DrPH David Tuller is academic coordinator of the concurrent masters degree program in public health and journalism at the University of California, Berkeley. A few years ago, Dr. Racaniello let me hijack this space for a long piece about the CDC’s persistent incompetence in its efforts to address the devastating illness […]

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