chronic fatigue syndrome

My Daily Routine Living With . . . Chronic Fatigue Syndrome

Irish Times

  By Carmel Breen in The Irish Times.   Imagine: you slip gently into the Land of Nod as a high-drive, progressive, active, healthy person only to awaken to an unexpected, uninvited invader. Under the cloak of darkness, it has stealthily and rapidly colonised your world, rendering you a useless, frustrated spectator in the brutish […]

Chronic Fatigue Syndrome Treatment ‘Should Be Withdrawn’

BBC News

  From BBC News.   A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded exercise therapy (GET) can actually be harmful to some people. He argues the idea of getting patients to do increasing amounts of exercise […]

Post-Exertional Malaise (PEM) And Graded Exercise Therapy (GET) In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Feeling_Fatigued_and_Drained_Ayurvedic_tips_to_Re-energize_Yourself

By S. Eyssens.   Preface: “The public have an insatiable curiosity to know everything, except what is worth knowing.”Oscar Wilde. Until Europeans discovered Australia, Black Swans did not exist, let alone could they even be imagined. They did not make sense, nor could they be, as they challenged common sense and common knowledge at that time in our […]

Health Notes: Fatigue or Chronic Fatigue Syndrome ?

Chronic Pain

  By Alecia Humphreys in Ladue News.   You are officially one month into 2018. Maybe it’s the year you pledged to work out more, read more, travel more – do anything and everything more. While it’s great to have goals, it’s hard to implement more into an already hectic schedule, especially when you aren’t allowing yourself […]

5 Things Not To Say To People With Chronic Fatigue

Chronic

  By: Katie Medlock in CARE2.   Chronic fatigue syndrome is one of those disorders that many people may joke about having, but the reality for actual sufferers is no joke at all. Because the main symptom, fatigue, is something that everyday folks experience every now and then, they don’t necessarily understand that those with a diagnosis experience […]

How Disabled People Care For Each Other When Doctors Can’t

Caring

  By David M Perry in Pacific Standard.   In her new film Unrest, Jennifer Brea offers a groundbreaking look at the power of community where medicine falls short. When Jennifer Brea was 28 years old, she got sick and spiked a fever of 104.7 degrees. The fever went down, but soon she found herself […]

Sheringham Film And Panel Event Exposes Hidden Struggle Of Patients Living With Chronic Fatigue

Norman Lamb MP

  By Eleanor Pringle in North Norfolk News.   The hidden struggles of life with Chronic Fatigue Syndrome (CFS) will be highlighted this month as the Sheringham Little Theatre and Norman Lamb back an inspiring North Norfolk organisation. The Sheringham CFS group is the only support group in North Norfolk which focuses specifically on the disease. Now, […]

Changing Lives While Living With Chronic Illness

Erica

  By Chris Goudreau in ValleyAdvocate.com.   Erica Verrillo of Whatley has written more than half a dozen books and launched a non-profit national organization, all while being partially bedridden for the past three decades. Verillo has Myalgic Encephalomyelitis (M.E.), a chronic and fluctuating neurological disease characterized by extreme exhaustion, muscle weakness, sensitivity to pain, confusion, forgetfulness, […]

Chronic Fatigue Syndrome Is A PHYSICAL Condition Not A Mental Illness, Says Ellen Wiles

Medical

  By Ellen Wiles in The Express.   Before I fell ill life was sweet and full of promise. Fresh out of Oxford University, where I had somehow come top in the year, I was working in consultancy while I figured out what I really wanted to do. Then just before Christmas I got flu. I spent […]

Which Heart Rate Monitor For ME/CFS ?

heart-monitor

  By iamclarkellis in The Self Taught Author Blog.   There’s a very interesting discussion about wearable heart rate monitors on Science for ME. I’m not going to reproduce those discussions here but you might want to check them out. It’s free to become a member and it’s a very good forum. There’s some research which suggests post […]

SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome

research

  Rebecca Baker, Social Affairs Reporter, The Advertiser (Australia).   World-first research in Adelaide that involves taking the blood samples of donors every seven minutes aims to unlock the mystery of a debilitating illness that has no cure or treatment. Thousands of samples taken for the study are now being stored in a freezer to […]

Chronic Fatigue Syndrome (CFS)

MECFS

  From Better Health Channel.   Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is an illness that affects a person’s nervous system (commonly called a ‘neurological illness’). It can occur at any age and can affect children as well as adults. At least 35,000 Victorians have ME/CFS. The term ‘myalgic encephalomyelitis’ means pain in […]

Chronic Fatigue Syndrome: One Woman’s Debilitating Experience With ME

International Business Times

  By Ruchira Sharma in International Business Times.   The illness myalgic encephalomyelitis (ME), more commonly known as chronic fatigue syndrome, is bewildering for a number of reasons. For one, there are thought to be around 250,000 sufferers in the UK, most of whom are women. Women account for four times the number of male sufferers. While ME follows […]

Chronic Fatigue Syndrome: More Research Backs Up Patients

Temma-Ehrenfeld_1

By Temma Ehrenfeld in Psychology Today.   Researchers at Georgetown University Medical Center have found changes in brain chemistry 24 hours after riding a stationary bike for 25 minutes that they consider a molecular signature for chronic fatigue syndrome. Chronic fatigue syndrome was dubbed “psychosomatic” by many until a couple of years ago and sometimes considered a reaction to early trauma. The turning point […]

Different Triggers – Different Illnesses: Exercise Affects Brains Of ME/CFS And GWI Patients Differently

Cort_Johnson

  By Cort Johnson in Health Rising.   Baraniuk believes chronic fatigue syndrome (ME/CFS), fibromyalgia and Gulf War Illness are  related. In fact, he calls the post-exertional malaise found in chronic fatigue syndrome (ME/CFS) a “unique characteristic of CFS that is shared by Gulf War Illness (GWI) subjects”. Both diseases often involve a triggering event […]

Chronic Fatigue Syndrome Is…… A Major Disorder

ME

  From Health Rising.   “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009   The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For Disease Control […]

5 Things I Had To Let Go Of When I Stopped Working

Work

  By Christina Baltais in The Mighty.   When illness makes you unable to work, you learn to let go of so much more than just your job. These are the layers of letting go I experienced when I had to take a step back from the world. Each required a paradigm shift to help […]

Chronic Fatigue Syndrome / Myalgic Encephalitis

Australia

  From The Parliament of New South Wales.   Mr GREG APLIN ( Albury ) ( 20:15 ): I have witnessed the damage wrought on healthy, happy individuals by chronic fatigue syndrome. I have also witnessed the additional harm caused by health professionals and ordinary people who regard it as “all in the mind”. This is a one-two hit that delivers […]

Blood Cells In Chronic Fatigue Syndrome Are Drained Of Energy

Blood Cells

  By Andy Coghlan in New Scientist. Thirteen years ago, Cara Tomas was rendered bedbound with chronic fatigue syndrome. It came on suddenly, she says, without warning signs. Even now she has good days and bad days due to the lingering effects of the disease. “A lot of people dismiss it as a psychological disease, which […]

Resisting Attempts To Silence #PwME

Silence

  By Gabby Klein in Relating to ME.   Methods of Silencing Dissent to Control a Specific Agenda Globally, government agencies and officials as well as private sector companies, and organizations use known astroturfing and silencing methods to achieve their intended goals.  They use media to spread propaganda to manipulate opinions. They employ specific tactics […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

Fatigue

By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not understanding […]

Mike’s EU Marathons – Slovenia

Mike Harley Luxembourg 27 May 2017

  By Mike Harley.   SLOVENIA I talked to a number of patients within the only Slovenia ME/FM facebook group (500 members) about their experiences living with ME & FM in Slovenia, here’s what they told me….. How do doctors in Slovenia perceive ME? Some are professional but others are very unprofessional. The result seems […]

Could This Documentary Change The Way We Perceive Chronic Fatigue Syndrome ?

Jen

    By Guy Kelly in The Telegraph.   It has been more than 60 years since a bewildering epidemic swept through the Royal Free Hospital in north London, rendering almost 300 members of staff incapacitated and forcing the place to close for three months. At the time, in 1955, the mysterious, polio-like outbreak (called […]

My Life As ‘Little Miss Brain Fog’

Brain Fog

    By Jane Shaw in The Mighty.   Like its name, myalgic encephalomyelitis is also rather complicated and extraordinary. The illness made Little Miss Brain Fog feel like Little Miss Dotty, Little Miss Scatterbrain, Little Miss Fickle, Little Miss Whoops, Mr. Bump, Mr. Topsy Turvey, Mr. Forgetful, Mr. Lazy, Mr. Muddle, Mr. Dizzy, Mr. […]

Precise.ly Chosen As Patient-Tracking Platform In ME/CFS Study

nih_logo

By Linda Avey in prweb.   Precise.ly, Inc. has been selected to be the patient portal in a $40 million, five-year NIH-funded, multi-center study focused on the study of chronic fatigue syndrome (ME/CFS). It represents the first major research support for a condition that affects millions of Americans.   SAN FRANCISCO, (CALIF.) (PRWEB) OCTOBER 09, 2017 […]

The SMILE Trial Lightning Process For Children With CFS: Results Too Good To Be True ?

lightning-e1422445255450

    A guest post by Dr. Keith Geraghty Honorary Research Fellow at the University of Manchester, Centre for Primary Care, Division of Population Health and Health Services Research in James C Coyne’s website, Coyne of the Realm.   The Advertising Standards Authority previously ruled that the Lightning Process (LP) should not be advertised as […]

Too Fatigued To Do Anything – Director Jennifer Brea Exposes The Personal Pain Of A Rare Disorder In The Doc ‘Unrest.’

Jen Unrest

  By Amy Kaufman   Jennifer Brea was a PhD candidate at Harvard University when her mind started to fail her. At age 28, she was already an accomplished academic, a graduate of Princeton who’d moved to Massachusetts to delve into the world of political economy and statistics. But in the midst of her studies, […]

The Ambiguous Term “ME/CFS”: Why ME And CFS Cannot Be Combined

ME

    By Jerrold Spinhirne.   Increasingly, researchers, doctors, advocates, and patients are using the mixed term “ME/CFS” as if it had some clear, specific meaning and referred to some identifiable disease. In actuality, however, the mixed term “ME/CFS” is ambiguous, logically incoherent, and a major impediment for making progress in research of the neurological disease […]

Trial By Error: NIH Grants $2.1 Million To UK Biobank !

David Tuller

  By David Tuller, DrPH   The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: “The funding represents the biggest ever single […]

For Patients With CFS, Going To The Bathroom Is Similar To Running A Marathon.

Chronic

    By: Ellen de Visser.   Patient and doctor Mark Vink about Chronic Fatigue Syndrome. Having so little energy that you can only leave your bed twice a day: that’s what CFS can be like. Researchers suggest it’s a mental disease. Nonsense, says doctor and CFS-patient Mark Vink. Mark Vink’s whole world consists of […]

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