Chronic Illness

15 Helpful Comments That Actually Hurt People With Chronic Illness

Chronic

  By Erin Migdol in The Mighty.   Once people discover you are dealing with health challenges, it often leads them to offer you some advice or comment about your condition. However, your chronic illness may be different than the types of illness they’re used to dealing with — like the common cold or a flu — […]

What I Wish Others Knew About Living With Chronic Pain

Chronic

  By Emily Murray in The Mighty.   You open your eyes and look at the clock. It’s 4:45 a.m. You only have about an hour left in your bed, your safe haven. Sure, maybe you could use a little more sleep. Most people do need that. But lack of sleep isn’t what drives you to hit the […]

6 Ways To Be Heard If You Live With Chronic Illness

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  By Victoria Weter in The Mighty.   Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still I manage to roll out and attempt my day. Through these days, I load up on vitamin B and caffeine, and most days it […]

People With Chronic Conditions Don’t Want Pity – We Want Understanding

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  By Jo Cole in HUFFPOST.   If you see a person who you know has a chronic health condition out and about it’s probably because they’re having a ‘better’ day. When I bumped into a former colleague who told me I was looking well I had mixed emotions. I don’t want to seem ungrateful […]

People With Chronic Conditions Don’t Want Pity – We Want Understanding

Frustration Chronic Illness

  By Jo Cole in HUFFPOST.   If you see a person who you know has a chronic health condition out and about it’s probably because they’re having a ‘better’ day When I bumped into a former colleague who told me I was looking well I had mixed emotions. I don’t want to seem ungrateful […]

Being Negative About My Illness Doesn’t Make Me Less Of A Warrior

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  By Megan Klenke in The Mighty.   I’ve been struggling with writing a lot lately. Who am I kidding, I’ve been struggling with everything lately. I feel this need when I write and a lot of the time in person (basically anytime I’m talking to anyone outside of my family, my boyfriend and my best friend who is […]

Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

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  By Sarah Wells in My Stripey Life.   I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress.  Different schools, different reasons, different children. I’m in the midst of hunting for a secondary school for my son and I am trying desperately hard to make to […]

15 Secrets Of People Who Can’t Work Because Of An Illness

Frustration Chronic Illness

  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

When You Can’t Just ‘Push Through the Pain’

Chronic Pain

  By Stacey T in The Mighty.   This post may get a little soap-box-like, but it’s something I need to talk about because it’s become a huge issue for me. So, most people have heard the phrases “pushing through pain,” “no pain, no gain” and similar ones. But when you have chronic illnesses or […]

When The Physical Symptoms Of My Illness Mimic A Panic Attack

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  By Jo Moss in The Mighty.   I have known for many years that my anxiety and depression don’t just affect my mental health but also cause physical symptoms like fatigue, pain and palpitations. But it wasn’t until my physical health deteriorated that I realized the opposite was also true. For most of my life doctors have blamed […]

28 Unexpected Emotional Symptoms Of Chronic Illness

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  By Paige Wyant in The Mighty.   When you are diagnosed with a chronic illness, the doctor might give you an overview of the common symptoms associated with your illness, but often these are physical manifestations – pain, fatigue, swelling, even brain fog. Many of us are then surprised by all of the emotional side […]

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

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  By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them to others. […]

Having A Chronic Illness Is Not Romantic

Frustration Chronic Illness

  By Becca in Confessions of a Spoonie, as published by Scope.   Becca writes the blog Confessions of a Spoonie and today is talking about the romanticism of chronic illness in books and films and how she feels about it. I  worry about certain things; how clean is my house, all the books on my bookshelf […]

19 Lessons My Invisible Illnesses Have Taught Me

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  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

The Choices You Have As A Chronic Illness Warrior

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  By Lisa Alioto in The Mighty.   Life is full of constant choices. Some are small and meaningless and others are life-changing. The key and beauty of it all is that there is an abundance of daily choices. Every day presents a fresh set of choices and it is up to each one of us to choose […]

Prescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain

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  By Sarah Yahm in Slate.   A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my professions, I took it seriously. I went to appointments armed with lists of well-researched questions written down neatly […]

Are You Chronically Ill ? Don’t Make Things Worse !

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  By Toni Bernhard J.D. in Psychology Today.   I became chronically ill in 2001. For several years afterward, I was a master at making a difficult situation worse for myself. The list is long, but I’ll limit myself to six ways in which I did this: I hated my body for not recovering from what had […]

In My Chronic Illness, I Found A Deeper Meaning

Frustration Chronic Illness

  By Elliot Kukla in The New York Times.   I became disabled overnight in a car accident. The car accident was a dream, but the disability was real. I dreamed I was driving through the ravaged streets of Oakland, Calif., at the end of the world. I turned the corner and careened inescapably into a […]

Guest Post: Being A Mummy With ME

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  From Scope.   I’m Alison, I’m in my (very late!) 30s and I have a debilitating chronic illness called M.E (myalgic encephalomyelitis). I am a mummy to an almost 9 year old beautiful little girl and I write a blog about it at www.beingamummywithme.blogspot.co.uk I used to live a completely “normal” life. I had a […]

How I Remain An Incurable Optimist, Even With Chronic Illness

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  By Lisa Alioto in The Mighty.   I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists and that’s OK. Sometimes you have to give yourself permission to simply absorb reality in its […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling

Chronic

    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

How To Treat A Person With Chronic Illness – A Step-By-Step Guide

Frustration Chronic Illness

  By Jaime from her ‘I Told You I Was Sick’ Blog.   If you have a friend with chronic illness but don’t know how to talk to them, it’s OK. You’re not alone. When you’re healthy, trying to get inside the mind of a person who is always in pain can be confusing. In […]

Losing A Beloved Career To A Chronic Illness: Caroline’s ME/CFS Story

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  By Caroline Christian in Health Rising.   After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break. […]

Why ‘Healthy Coping’ Is Better for Our Health Than Positive Thinking

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    By Mary Mattio in The Mighty.   “Keep thinking positively!” “Keep your chin up!” “Stay strong!” These are some of the most common cliché responses we hear from people in society on a regular basis. They aren’t incorrect responses, and are often made with the best of intentions. However, when the people telling […]

How To Come To Terms With The Limitations Of Your Illness

Chronic

  By Anne Marie Morgan in The Mighty.   To say that there is a stigma in our society surrounding the word “can’t” might be the understatement of this century. Popular slogans tell us to “Just Do It,” and to, “Sleep when you’re dead.” Modern lifestyles push us to take on more and more, and […]

To Those Who Give Me Dirty Looks For Using A Disability Parking Space

Disability Parking

  By Brittney Lindstrom in The Mighty.   I don’t know why, but whenever some people see me get out of the car in a disability parking spot, I get some dirty looks. But why? Do you not believe I have a condition that warrants the use of a disability sticker? What is your issue with it? Do you […]

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