Chronic Illness

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

energy bubble

  By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them to others. […]

Having A Chronic Illness Is Not Romantic

Frustration Chronic Illness

  By Becca in Confessions of a Spoonie, as published by Scope.   Becca writes the blog Confessions of a Spoonie and today is talking about the romanticism of chronic illness in books and films and how she feels about it. I  worry about certain things; how clean is my house, all the books on my bookshelf […]

19 Lessons My Invisible Illnesses Have Taught Me


  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

The Choices You Have As A Chronic Illness Warrior


  By Lisa Alioto in The Mighty.   Life is full of constant choices. Some are small and meaningless and others are life-changing. The key and beauty of it all is that there is an abundance of daily choices. Every day presents a fresh set of choices and it is up to each one of us to choose […]

Prescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain


  By Sarah Yahm in Slate.   A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my professions, I took it seriously. I went to appointments armed with lists of well-researched questions written down neatly […]

Are You Chronically Ill ? Don’t Make Things Worse !


  By Toni Bernhard J.D. in Psychology Today.   I became chronically ill in 2001. For several years afterward, I was a master at making a difficult situation worse for myself. The list is long, but I’ll limit myself to six ways in which I did this: I hated my body for not recovering from what had […]

In My Chronic Illness, I Found A Deeper Meaning

Frustration Chronic Illness

  By Elliot Kukla in The New York Times.   I became disabled overnight in a car accident. The car accident was a dream, but the disability was real. I dreamed I was driving through the ravaged streets of Oakland, Calif., at the end of the world. I turned the corner and careened inescapably into a […]

Guest Post: Being A Mummy With ME


  From Scope.   I’m Alison, I’m in my (very late!) 30s and I have a debilitating chronic illness called M.E (myalgic encephalomyelitis). I am a mummy to an almost 9 year old beautiful little girl and I write a blog about it at I used to live a completely “normal” life. I had a […]

How I Remain An Incurable Optimist, Even With Chronic Illness


  By Lisa Alioto in The Mighty.   I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists and that’s OK. Sometimes you have to give yourself permission to simply absorb reality in its […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling


    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

How To Treat A Person With Chronic Illness – A Step-By-Step Guide

Frustration Chronic Illness

  By Jaime from her ‘I Told You I Was Sick’ Blog.   If you have a friend with chronic illness but don’t know how to talk to them, it’s OK. You’re not alone. When you’re healthy, trying to get inside the mind of a person who is always in pain can be confusing. In […]

Losing A Beloved Career To A Chronic Illness: Caroline’s ME/CFS Story


  By Caroline Christian in Health Rising.   After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break. […]

Why ‘Healthy Coping’ Is Better for Our Health Than Positive Thinking


    By Mary Mattio in The Mighty.   “Keep thinking positively!” “Keep your chin up!” “Stay strong!” These are some of the most common cliché responses we hear from people in society on a regular basis. They aren’t incorrect responses, and are often made with the best of intentions. However, when the people telling […]

How To Come To Terms With The Limitations Of Your Illness


  By Anne Marie Morgan in The Mighty.   To say that there is a stigma in our society surrounding the word “can’t” might be the understatement of this century. Popular slogans tell us to “Just Do It,” and to, “Sleep when you’re dead.” Modern lifestyles push us to take on more and more, and […]

To Those Who Give Me Dirty Looks For Using A Disability Parking Space

Disability Parking

  By Brittney Lindstrom in The Mighty.   I don’t know why, but whenever some people see me get out of the car in a disability parking spot, I get some dirty looks. But why? Do you not believe I have a condition that warrants the use of a disability sticker? What is your issue with it? Do you […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’


By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not understanding […]

Could This Documentary Change The Way We Perceive Chronic Fatigue Syndrome ?


    By Guy Kelly in The Telegraph.   It has been more than 60 years since a bewildering epidemic swept through the Royal Free Hospital in north London, rendering almost 300 members of staff incapacitated and forcing the place to close for three months. At the time, in 1955, the mysterious, polio-like outbreak (called […]

What To Remember On Days Your Illness Makes You Feel Like Giving Up


  By Sarah Waisler in The Mighty.   Dear You, You are absolutely right. This does suck, it’s not fair, you do deserve better. This is not what you had planned and you would have done more if you had been given the chance. But you weren’t given that chance and my heart breaks for you. I […]

For Patients With CFS, Going To The Bathroom Is Similar To Running A Marathon.


    By: Ellen de Visser.   Patient and doctor Mark Vink about Chronic Fatigue Syndrome. Having so little energy that you can only leave your bed twice a day: that’s what CFS can be like. Researchers suggest it’s a mental disease. Nonsense, says doctor and CFS-patient Mark Vink. Mark Vink’s whole world consists of […]

Leaky Gut: What Is It, And What Does It Mean For You ?


    By Marcelo Campos, MD  in Harvard Health Publishing.   Before the medical community had better understanding of the mechanisms that cause disease, doctors believed certain ailments could originate from imbalances in the stomach. This was called hypochondriasis. (In Ancient Greek, hypochondrium refers to the upper part of the abdomen, the region between the breastbone and the navel.) […]

12 Ways Teachers Can Help Their Chronically Ill Students Be Successful


  By Katrina Pears in The Mighty.   Life has changed a lot for me over the years of having this illness. I once was top of the class. I worked hard, with lots of extra study, and got the grades I wanted. Being diagnosed with chronic fatigue syndrome meant my hours of activity every […]

I Live With Disabling Illness And Chronic Fatigue. It Has Taught Me To Ask For Help.


    By Litsa Dremousis in The Washington Post. Remember the last time your WiFi went out? How you felt alone in an empty world? You tried to restart it yourself, to no avail. Then you called tech support, which was as helpful as pouring glue down a clogged drain. You were baffled that no one […]

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