Chronic Illness

Why My Chronic Fatigue Is Like A Cell Phone Battery

Smart Phones

  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

ME/CFS and Freeze: A Metabolic State Of Hibernation That Is Not In Your Head

Nervous System

By Veronique Mead in Chronic Illness Trauma Studies.   This post introduces the relationship between chronic fatigue syndrome aka ME/CFS and freeze and similar death-like states such as hibernation. It draws from a 2016 study showing statistically significant objective metabolic changes in ME/CFS and how it is a very real physiological state that is not psychological. […]

10 Feelings That Alternate in My Mind As I Live With ME/CFS

Lonely

  By Kendall Kuzma in The Mighty.   For someone in reasonable health, it can be hard to understand what a loved one is going through if they are struggling with some kind of ongoing health issue. It’s especially tough for everyone if the illness is one which is unseen, as in, no obvious signs of the […]

The UK’s General Medical Council Just Threw 250,000 Disabled People Under A Bus

General Medical Council

By Steve Topple in The Canary.   A response from the General Medical Council (GMC) to hundreds of complaints has effectively abandoned 250,000 disabled people. It also demonstrates the GMC’s contempt for the patients it’s supposed to protect. Moreover, in dismissing patient’s concerns, it’s whitewashed what one MP believes could be the “biggest medical scandal of the 21st century”. […]

Netflix and Hill: The True Story Behind “Afflicted”

Jamison

  By Jamison Hill in Jamison Writes.   On August 10th Netflix released Afflicted, a seven-episode series in which I appear with six other chronically ill patients. Though I had high hopes for the series, and some parts were accurate, it has ultimately caused damage to the chronic illness community, portraying many of the participants as […]

Why The Netflix Docuseries ‘Afflicted’ Is Harmful For The Chronic Illness Community

Netflix

  By Paige Wyant in The Mighty.   “Afflicted,” a new Netflix docuseries that premiered on August 10, follows seven people who live with chronic illnesses. I originally thought “Afflicted” was going to shed light on less-known illnesses and elevate the stories and voices of those who struggle with them, but the docuseries did the opposite. Instead […]

5 Mistaken Assumptions About The Chronically Ill

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  By  Toni Bernhard J.D. in Psychology Today.   The chronically ill carry the extra burden of frequently being misunderstood. I hope the day will come when chronic illness (which includes chronic pain) is recognized as a normal—and inevitable—part of the human life cycle. I also hope the day will come when people understand that chronic illness can […]

What I Wish People Knew About My Illness, Even When I Look Fine

chronic-illness

  By Deema H in The Mighty.   I haven’t quite decided what I think is worse: living with a chronic illness or living with an invisible chronic illness. I’ve come to find people don’t realize it’s offensive, not a compliment, to say, “But you don’t look sick!” Let me tell you something: Looking healthy doesn’t make […]

What I Wish People Knew About My Illness, Even When I Look Fine

Chronic

  By Deema H in The Mighty.   I haven’t quite decided what I think is worse: living with a chronic illness or living with an invisible chronic illness. I’ve come to find people don’t realize it’s offensive, not a compliment, to say, “But you don’t look sick!” Let me tell you something: Looking healthy doesn’t make […]

17 Tips From 17 Years Sick

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  By Toni Bernhard J.D.in Psychology Today.   When I began to write for Psychology Today over seven years ago, one of the first articles I posted was called “10 Tips from 10 Years Sick.” It’s seven years later. A lot has happened in my life, but there’s been one constant: chronic illness, including chronic pain. Since 10 + […]

Is It Wise To Have A Pet When You’re Chronically Ill ?

Dogs

  By Marianne Davis in The Mighty.   There is increasingly strong evidence that sharing our life with a pet has important health benefits. Anybody who has one or more will tell you that their dog, cat, bird, rabbit or any other creature is the apple of their eye. This is especially true for those […]

15 Helpful Comments That Actually Hurt People With Chronic Illness

Chronic

  By Erin Migdol in The Mighty.   Once people discover you are dealing with health challenges, it often leads them to offer you some advice or comment about your condition. However, your chronic illness may be different than the types of illness they’re used to dealing with — like the common cold or a flu — […]

What I Wish Others Knew About Living With Chronic Pain

Chronic

  By Emily Murray in The Mighty.   You open your eyes and look at the clock. It’s 4:45 a.m. You only have about an hour left in your bed, your safe haven. Sure, maybe you could use a little more sleep. Most people do need that. But lack of sleep isn’t what drives you to hit the […]

6 Ways To Be Heard If You Live With Chronic Illness

Frustration Chronic Illness

  By Victoria Weter in The Mighty.   Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still I manage to roll out and attempt my day. Through these days, I load up on vitamin B and caffeine, and most days it […]

People With Chronic Conditions Don’t Want Pity – We Want Understanding

Chronic

  By Jo Cole in HUFFPOST.   If you see a person who you know has a chronic health condition out and about it’s probably because they’re having a ‘better’ day. When I bumped into a former colleague who told me I was looking well I had mixed emotions. I don’t want to seem ungrateful […]

People With Chronic Conditions Don’t Want Pity – We Want Understanding

Frustration Chronic Illness

  By Jo Cole in HUFFPOST.   If you see a person who you know has a chronic health condition out and about it’s probably because they’re having a ‘better’ day When I bumped into a former colleague who told me I was looking well I had mixed emotions. I don’t want to seem ungrateful […]

Being Negative About My Illness Doesn’t Make Me Less Of A Warrior

Chronic

  By Megan Klenke in The Mighty.   I’ve been struggling with writing a lot lately. Who am I kidding, I’ve been struggling with everything lately. I feel this need when I write and a lot of the time in person (basically anytime I’m talking to anyone outside of my family, my boyfriend and my best friend who is […]

Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

Sarah Wells

  By Sarah Wells in My Stripey Life.   I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress.  Different schools, different reasons, different children. I’m in the midst of hunting for a secondary school for my son and I am trying desperately hard to make to […]

15 Secrets Of People Who Can’t Work Because Of An Illness

Frustration Chronic Illness

  By Paige Wyant in The Mighty.   If you have a chronic illness, you may know what it feels like to be a “full-time patient.” Between the physical and emotional symptoms, constant doctor appointments and numerous tests and procedures (not to mention keeping track of it all), being chronically sick can become a full-time job in itself. You […]

When You Can’t Just ‘Push Through the Pain’

Chronic Pain

  By Stacey T in The Mighty.   This post may get a little soap-box-like, but it’s something I need to talk about because it’s become a huge issue for me. So, most people have heard the phrases “pushing through pain,” “no pain, no gain” and similar ones. But when you have chronic illnesses or […]

When The Physical Symptoms Of My Illness Mimic A Panic Attack

ME

  By Jo Moss in The Mighty.   I have known for many years that my anxiety and depression don’t just affect my mental health but also cause physical symptoms like fatigue, pain and palpitations. But it wasn’t until my physical health deteriorated that I realized the opposite was also true. For most of my life doctors have blamed […]

28 Unexpected Emotional Symptoms Of Chronic Illness

Chronic

  By Paige Wyant in The Mighty.   When you are diagnosed with a chronic illness, the doctor might give you an overview of the common symptoms associated with your illness, but often these are physical manifestations – pain, fatigue, swelling, even brain fog. Many of us are then surprised by all of the emotional side […]

The ‘Energy Bubble’ Analogy That Can Help Explain Pacing With A Chronic Illness

energy bubble

  By Christina Baltais in The Mighty.   Pacing is about energy conservation, both physical and emotional. When you’re living with a chronic illness, it’s an essential skill for preventing flare-ups or “crashes.” This “energy bubble analogy” can be useful to help you visualize and understand the limits of your energy, and help you explain them to others. […]

Having A Chronic Illness Is Not Romantic

Frustration Chronic Illness

  By Becca in Confessions of a Spoonie, as published by Scope.   Becca writes the blog Confessions of a Spoonie and today is talking about the romanticism of chronic illness in books and films and how she feels about it. I  worry about certain things; how clean is my house, all the books on my bookshelf […]

19 Lessons My Invisible Illnesses Have Taught Me

Free

  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

The Choices You Have As A Chronic Illness Warrior

ME3

  By Lisa Alioto in The Mighty.   Life is full of constant choices. Some are small and meaningless and others are life-changing. The key and beauty of it all is that there is an abundance of daily choices. Every day presents a fresh set of choices and it is up to each one of us to choose […]

Prescribing Mindfulness Allows Doctors To Ignore Legitimate Female Pain

Mindfulness

  By Sarah Yahm in Slate.   A few years ago, after a series of cascading injuries and illnesses that rendered me unable to type, drive, or sleep, I briefly became a professional patient. Like all of my professions, I took it seriously. I went to appointments armed with lists of well-researched questions written down neatly […]

Are You Chronically Ill ? Don’t Make Things Worse !

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  By Toni Bernhard J.D. in Psychology Today.   I became chronically ill in 2001. For several years afterward, I was a master at making a difficult situation worse for myself. The list is long, but I’ll limit myself to six ways in which I did this: I hated my body for not recovering from what had […]

In My Chronic Illness, I Found A Deeper Meaning

Frustration Chronic Illness

  By Elliot Kukla in The New York Times.   I became disabled overnight in a car accident. The car accident was a dream, but the disability was real. I dreamed I was driving through the ravaged streets of Oakland, Calif., at the end of the world. I turned the corner and careened inescapably into a […]

Guest Post: Being A Mummy With ME

Lonely

  From Scope.   I’m Alison, I’m in my (very late!) 30s and I have a debilitating chronic illness called M.E (myalgic encephalomyelitis). I am a mummy to an almost 9 year old beautiful little girl and I write a blog about it at www.beingamummywithme.blogspot.co.uk I used to live a completely “normal” life. I had a […]

How I Remain An Incurable Optimist, Even With Chronic Illness

Lonely

  By Lisa Alioto in The Mighty.   I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists and that’s OK. Sometimes you have to give yourself permission to simply absorb reality in its […]

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