Cort Johnson

How Physical Therapists Are Getting It About Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in health Rising.   Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is pretty bleak. If a chronic fatigue syndrome (ME/CFS) patient doesn’t encounter […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy

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  By Cort Johnson in Health Rising.   Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, including one from a research […]

Changing Hearts And Minds: A Review Of Unrest

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  By Cort Johnson in Health Rising.   Unrest is about to spring into action. Scheduled to go into widespread theatrical release in dozens of theaters over the next couple of months: on Sept 22nd in the U.S. and Oct. in the U.K., Unrest is about to really make its mark. Jen Brea and her […]

Is Poor Sleep Pummelling the Immune System In ME/CFS And Fibromyalgia ? A Vicious Circle Examined

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    By Cort Johnson in Simmaron Research.   Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgia (FM) know the consequences of poor sleep – the fatigue and pain, the difficulty concentrating, the irritability and more. Sleep is when our body rejuvenates itself; no sleep – no rejuvenation. Given how important sleep is to […]

Exercise Tests Suggest Autoimmunity Causes the Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS

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  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

The Time Is N.O.W. – National Women’s Advocacy Organization Joins The Fight For ME/CFS

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By Cort Johnson in Health Rising.   This one action demonstrates why it’s so important to have a full-time professional advocate for chronic fatigue syndrome (ME/CFS). The National Organization for Women (N.O.W.) is not a small organization; it has 550 chapters in all 50 states. It’s a natural ally for a disease that’s a) dominated […]

Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) Is Inflammatory Disorder

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  By Cort Johnson in Simmaron Research.   There’s been a great deal of controversy and confusion surrounding ME/CFS — even whether it is an actual disease. Our findings show clearly that it’s an inflammatory disease and provide a solid basis for a diagnostic blood test.” Mark Davis There’s nothing like a high-profile study from a […]

OMF Symposium To Provide First Look At Metabolomic / Immune Results In ME/CFS

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    By Cort Johnson in Health Rising.   The Real Action – The Working Group The Open Medicine Foundation’s “Community Symposium on the Molecular Basis of ME/CFS” is coming up next week. The Symposium follows a two-day workshop – an ME/CFS research jam session that dozens of researchers and MD’s will participate in. Davis […]

The Big Fishing Expedition: Report From The NIH Intramural Study On ME/CFS

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    By Cort Johnson in Simmaron Research.   The NIH’s Intramural Study on ME/CFS now underway is almost certainly the most comprehensive chronic fatigue syndrome (ME/CFS) study ever done. In fact, it may be one of the more multi-faceted studies done in any disease. It’s breadth is astonishing. Besides the blood, urine, fecal matter […]

On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again)

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    By Cort Johnson in Health Rising.   The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to hide under one’s bed. […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

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      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

Passionate Pragmatist: Carol Head And The Fight For ME/CFS Equality: The SMCI Pt. I

Cort Johnson

  By Cort Johnson in Health Rising. As we head for International ME/CFS Awareness Day and the biggest advocacy effort that I’ve ever seen, it’s a good time to look at The Solve ME/CFS Initiative (formerly the CFIDS Association of America) – the oldest and most prominent chronic fatigue syndrome (ME/CFS) organization. For years the only ME/CFS […]

The Shift: Top Science Journal Asserts Shift in Attitude Towards ME/CFS Has Occurred

Cort Johnson

  By Cort Johnson “Chronic Fatigue Syndrome is a biological disease” Dr. Ian Lipkin’s Center for Infection and Immunity at Columbia University From NIH Director Francis Collins’ high profile blog “Moving Toward Answers in ME/CFS“, to the New York Times Opinion piece “Getting It Wrong on Chronic Fatigue Syndrome” exposing the failures of the PACE trial, […]

A Biomarker for Chronic Fatigue Syndrome (ME/CFS) ? Immunosignature Provides Another Possibility

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  By Cort Johnson in Health Rising.   A Different Look at the Immune System The ultimate goal of this work is the development of a non-subjective clinical tool for diagnosing patients with ME. Lombardi et. al.  Last month Health Rising looked at a potential ion channel biomarker coming out of the NCNED in Australia. […]

Treating Chronic Fatigue Syndrome (ME/CFS): The IACFS/ME Conference Overviews Part V

Cort Johnson

    By Cort Johnson in Health Rising.   Treatments are, of course, where the rubber meets the road. The Oct 2016 conference featured a different chemotherapy/autoimmune drug that appears to be helping, a drug that helped one ME/CFS/POTS patient to fully recover, how exercise tests may be uncovering drug combinations to prevent PEM, a […]

The Beast, The Disease And The Breakthrough: A Way Forward For ME/CFS And Fibromyalgia?

Cort Johnson

    By Cort Johnson in Health Rising.   The “Beast” was just twenty-five years old. A physical specimen, David Fajgenbaum went from gym rat to invalid incredibly quickly. First his lymph nodes swelled, then red dots appeared on his chest. This medical resident got so fatigued that he began stealing naps in empty exam […]

The IACFS/ME 2016 Conference Overviews #1: Energy And Exercise To The Fore

Cort Johnson

  By Cort Johnson in Health Rising.   The wind blew like mad all four days of the conference. Maybe those are winds of change… A sense of excitement and hope I hadn’t seen before pervaded this conference.  More than anything else, this was a conference of possible beginnings. Fields of inquiry such as metabolomics are being […]

The “Starvation” Disease? Metabolomics Meets Chronic Fatigue Syndrome Down Under

Cort Johnson

    By Cort Johnson in Health Rising. “The pathological nature of the fatigue experienced by ME/CFS sufferers is its inexplicable persistence, severity and its inability to be sufficiently relieved by rest.” Armstrong et. al. The Naviaux metabolomics study with its findings suggesting that a hypometabolic state is present in chronic fatigue syndrome was thrilling, […]

Researchers Call For More In-Depth Mitochondrial Testing In Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising. A letter to the editor of the BioMed Central Journal urged more in depth mitochondrial testing than has been done be done in ME/CFS. The letter referred to a study done by an ME/CFS researcher, Maureen Hanson, and funded by the Chronic Fatigue Initiative. The CFI is very […]

End ME/CFS Severe Patient Study Turns To The Mitochondria

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By Cort Johnson on ProHealth and Health Rising The mantra at the Severely Ill study is to follow the evidence where it leads. We don’t know exactly what Davis has found or if will be ultimately validated. We do know that something eyebrow raising involving the mitochondria has shown up in the early stages of […]

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