Cort Johnson

The Best, Most, Biggest And Least Of 2018 In Chronic Fatigue Syndrome And Fibromyalgia

johnson_cort

  By Cort Johnson in Health Rising.   The Best, Most and Least of 2018 A look back at a most interesting year which has to start with Cortene… Treatment Nicest Surprise It wasn’t supposed to go like this. First, in a disease like ME/CFS, you’re supposed find a repurposed drug or two to treat […]

Ten Ways To Prove That Exercising Will Not Cure Chronic Fatigue Syndrome (ME/CFS)

KCWQ0Sya_400x400

By Cort Johnson in Health Rising.   Your family, friends and even your doctor may, probably will at some point, prod you to get moving.  They think that if you can just get on your feet again and start exercising, you’ll be so much better. It’s irritating to hear and just reinforces how isolated you […]

Filling “The Landscape Of Unmet Needs” In ME/CFS and FM: The Bateman Horne Center Pt 1

Cort_Johnson

    By Cort Johnson in Health Rising.   This is the first of a couple of blogs that will celebrate visionaries within the ME/CFS/FM communities who took action to make their visions real. Dr. Bateman was doing yeoman’s work serving the ME/CFS/FM community in her medical practice in Salt Lake City, Utah.  She could […]

Deconditioning Denied: Could A Large ME/CFS Study Put An End To The Deconditioning Myth ?

johnson_cort

  By Cort Johnson in Health Rising. The Deconditioned ME/CFS Patient? A huge (n=345) 1998 UK study set the stage. The smaller, less muscular hearts and carotid arteries found in ME/CFS made it clear – at least to those researchers – that both physical and cardiovascular deconditioning was present in ME/CFS. They recommended a graded exercise program to […]

Death in Chronic Fatigue Syndrome (ME/CFS) – What Has It Told Us ? The Autopsy Files

johnson_cort

    By Cort Johnson in Health Rising.   It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s no […]

Could Poor Microcirculation Be Causing Chronic Fatigue Syndrome (ME/CFS) ?

johnson_cort

  By Cort Johnson in Health  Rising. Could the microvascular system – the small capillaries and the red blood cells that run through them – hold the key to energy problems in chronic fatigue syndrome (ME/CFS) and perhaps fibromyalgia? The idea that the blood delivery system – not some metabolic derangement per se – is […]

Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)

Cort_Johnson

  By Cort Johnson in Health Rising.   Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear.  Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

220px-Cochrane_logo_stacked.svg

  By Cort Johnson in Health Rising. Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

Are “Old” Muscles Holding People With Chronic Fatigue Syndrome (ME/CFS) Down? Plus Tompkins’ Team Promises New Insights

Cort_Johnson

      By Cort Johnson in Health Rising.   “New data collectively supports the presence of specific critical points in the muscle that are affected by free radicals.” Fulle et. al. A group of pioneering Italian researchers have been studying the muscles of people with ME/CFS – a rather lonely task – for over 15 […]

Could The Brain’s Mast Cells Be Causing Chronic Fatigue Syndrome (ME/CFS) ?

Simmaron

By Cort Johnson in Simmaron Research.   We propose that stimulation of hypothalamic mast cells by environmental neuroimmune pathogenic and stress triggers activates microglia leading to focal inflammation in the brain and disturbed homeostasis.” Theoharides et. al., 2018 Dr. Theoharis Theoharides is an MD and PhD who has published almost 400 papers. A pioneer in […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

220px-Cochrane_logo_stacked.svg

By Cort Johnson in Health Rising.   Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford

Cort_Johnson

By Cort Johnson in Health Rising.   If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times – the chance to […]

Invasion: The Source Of The Neuroinflammation In Chronic Fatigue Syndrome ?

Cort

  By Cort Johnson in Health Rising.   Breaches in the Barrier   The last article reported that Younger speculated that people with chronic fatigue syndrome (ME/CFS) have an immune-triggered metabolic disorder.  The widespread neuroinflammation found in ME/CFS patients provides a clue, he thinks, to what’s going on. It suggests that immune cells are breaching […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

Cort_Johnson

By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

Cort_Johnson

    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

Cort_Johnson

  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

Cort_Johnson

    By Cort Johnson in Health Rising.   Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on […]

Autoimmune Model Proposes Chronic Fatigue Syndrome (ME/CFS) Begins In The Gut

Cort_Johnson

    By Cort Johnson in Simmaron Research.   Jonas Blomberg’s paper “Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model” was published in “Frontiers in Immunology”, an apt journal for a paper featuring an “explanatory model” of chronic fatigue syndrome (ME/CFS). Autoimmunity is definitely a new “frontier”; as Blomberg points out, it’s possibility […]

System Reset ? Study Suggests Pro-Inflammatory / Autoimmune Reset Occurred In Chronic Fatigue Syndrome (ME/CFS)

Genes

  By Cort Johnson in Simmaron Research.   Epigenetics research holds the fascinating possibility of figuring out what shifted at the very beginning of chronic fatigue syndrome (ME/CFS).  For many with ME/CFS a sudden change occurred – some sort of biological reset quickly happened – which never relinquished itself. Finding out what “reset” occurred is […]

Stagnant Hypoxia – Where Chronic Fatigue Syndrome And Hyperadrenergic POTS Meet ?

Cort_Johnson

  By Cort Johnson in Health Rising.   Despite the current lack of consensus as to the underlying biological basis of CFS, there is considerable evidence … to highlight an abnormality of the autonomic nervous system as a unifying pathological factor. Newton et. al. 2013 A fascinating case of research confluence took place a couple of […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins

Cort_Johnson

  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

Cort_Johnson

    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

Major Research Group Highlights Inflammation Energy Production Connection In ME/CFS

Scientist using a microscope

  By Cort Johnson. The Simmaron Research Foundation is bringing the brain, the immune system and metabolism together in a way that’s never been seen before. “We propose that chronic low-grade inflammation induces and/or maintains persistent fatigue by inducing an imbalance between cellular-energy availability and cellular- and behavioral energy expenditure.” Lacourt et al. 2018 Neurosci. […]

Health Rising: Montreal ME/CFS I: Metabolism The Main Matter? Exercise Issues Expand & A Bad Brain Motor ?

Cort_Johnson

  By Cort Johnson in Open Medicine Foundation.   I thought I was in Paris, so much French was being spoken. The conversations in the cafes, on the streets, in the subways – everywhere – were in French. It turns out that with its 4,000,000 plus residents, Montreal is the second largest French speaking city […]

Chronic Fatigue Syndrome – It’s Worse Than Multiple Sclerosis – And Fibromyalgia Is No Walk In The Park Either

Cort_Johnson

  By Cort Johnson in Health Rising.   Multiple sclerosis (MS) is a dreaded disease. About ten years into having chronic fatigue syndrome (ME/CFS), I still remember being tested for it and how thankful I was that I didn’t have it. MS does things to people that ME/CFS doesn’t. For one thing, it kills more […]

Ron Davis (Finally) Gets His Big Grant !

Ron Davis

  By Cort Johnson in Health Rising.   “This proposal aims to uncover the immunological basis of ME/CFS”. Ron Davis – grant application Sometimes the third time is the charm. Ron Davis has gotten (and been turned down for) many NIH grants but even he was shocked by the response to his first couple of […]

The Autoimmune Virus ? Groundbreaking EBV Finding Could Help Explain ME/CFS

Cort_Johnson

  By Cort Johnson in Simmaron Research.   Viral Mystery  “I’ve been a co-author in almost 500 papers. This one is more important than all of the rest put together. It is a capstone to a career in medical research,” Harley I sensed some awe in Ron Davis’s voice as he pushed for more understanding of Epstein-Barr […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

Dr Lapp

  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

2018 Budget Gives NIH Big Boost – ME/CFS CDC Program Spared – Insurance Markets Not Stabilized

Cort_Johnson

  By Cort Johnson in Phoenix Rising.   NIH Budget Grows for Third Year in a Row For the past two years Donald Trump has tried to cut the NIH budget significantly but NIH spending has bipartisan support and the 2018 budget resolution increased NIH funding significantly (once again). – about 10% or $3 billion […]

Cortene – A New Drug For Chronic Fatigue Syndrome (ME/CFS) Pt III: The Clinical Trial

Cort_Johnson

  By Cort Johnson in Health Rising.   An Exploratory Drug Trial For ME/CFS In the next month or so, Cortene, a small drug development company, will do a very unusual thing – trial a new drug in chronic fatigue syndrome (ME/CFS). The first two parts of the series on this new drug covered how […]

The Cortene Way: New Drug To Be Trialled In Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I

Cort_Johnson

  By Cort Johnson in Health Rising.   Research funding for chronic fatigue syndrome (ME/CFS) has been poor at best but clinical trials have elicited a wholly different degree of disappointment altogether. Few clinical trials are ever done and those are often involve alternative approaches. The 6 active clinical trials listed in clinicaltrials.gov, for instance, include […]

Bearing Witness For ME/CFS – Valerie Free Lights Up A Hidden World: Pt. I Valerie’s Story

Free-Valerie

  By Cort Johnson in Phoenix Rising.   ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we begin […]

The Stories We Tell: Unrest Inspired ME/CFS Effort Triumphs In The Unlikeliest Of Places

Cort_Johnson

  By Cort Johnson in Health Rising.   When things start moving, help shows up in the most unlikely places.  Take a recent blog from a University of Michigan sports blogger – Ace. Ace has been sick since high school but only in the last couple of years has he been diagnosed as having chronic […]

Ron Davis Talks On ME/CFS………And Texas Listens

Ron Davis

  By Cort Johnson in Health Rising.   Ron Davis was invited to the University of Texas to talk to the biological and bioengineering departments over two days. His long talk was putatively on developing affordable technologies that can be used by doctors, but it ended up being more than that. On the technology side, […]

The York ME Community © 2015
Powered by Live Score & Live Score App