Cort Johnson

Are “Old” Muscles Holding People With Chronic Fatigue Syndrome (ME/CFS) Down? Plus Tompkins’ Team Promises New Insights

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      By Cort Johnson in Health Rising.   “New data collectively supports the presence of specific critical points in the muscle that are affected by free radicals.” Fulle et. al. A group of pioneering Italian researchers have been studying the muscles of people with ME/CFS – a rather lonely task – for over 15 […]

Could The Brain’s Mast Cells Be Causing Chronic Fatigue Syndrome (ME/CFS) ?

Simmaron

By Cort Johnson in Simmaron Research.   We propose that stimulation of hypothalamic mast cells by environmental neuroimmune pathogenic and stress triggers activates microglia leading to focal inflammation in the brain and disturbed homeostasis.” Theoharides et. al., 2018 Dr. Theoharis Theoharides is an MD and PhD who has published almost 400 papers. A pioneer in […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

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By Cort Johnson in Health Rising.   Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford

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By Cort Johnson in Health Rising.   If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times – the chance to […]

Invasion: The Source Of The Neuroinflammation In Chronic Fatigue Syndrome ?

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  By Cort Johnson in Health Rising.   Breaches in the Barrier   The last article reported that Younger speculated that people with chronic fatigue syndrome (ME/CFS) have an immune-triggered metabolic disorder.  The widespread neuroinflammation found in ME/CFS patients provides a clue, he thinks, to what’s going on. It suggests that immune cells are breaching […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

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    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

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  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in Health Rising.   Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on […]

Autoimmune Model Proposes Chronic Fatigue Syndrome (ME/CFS) Begins In The Gut

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    By Cort Johnson in Simmaron Research.   Jonas Blomberg’s paper “Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model” was published in “Frontiers in Immunology”, an apt journal for a paper featuring an “explanatory model” of chronic fatigue syndrome (ME/CFS). Autoimmunity is definitely a new “frontier”; as Blomberg points out, it’s possibility […]

System Reset ? Study Suggests Pro-Inflammatory / Autoimmune Reset Occurred In Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Simmaron Research.   Epigenetics research holds the fascinating possibility of figuring out what shifted at the very beginning of chronic fatigue syndrome (ME/CFS).  For many with ME/CFS a sudden change occurred – some sort of biological reset quickly happened – which never relinquished itself. Finding out what “reset” occurred is […]

Stagnant Hypoxia – Where Chronic Fatigue Syndrome And Hyperadrenergic POTS Meet ?

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  By Cort Johnson in Health Rising.   Despite the current lack of consensus as to the underlying biological basis of CFS, there is considerable evidence … to highlight an abnormality of the autonomic nervous system as a unifying pathological factor. Newton et. al. 2013 A fascinating case of research confluence took place a couple of […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins

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  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

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    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

Major Research Group Highlights Inflammation Energy Production Connection In ME/CFS

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  By Cort Johnson. The Simmaron Research Foundation is bringing the brain, the immune system and metabolism together in a way that’s never been seen before. “We propose that chronic low-grade inflammation induces and/or maintains persistent fatigue by inducing an imbalance between cellular-energy availability and cellular- and behavioral energy expenditure.” Lacourt et al. 2018 Neurosci. […]

Health Rising: Montreal ME/CFS I: Metabolism The Main Matter? Exercise Issues Expand & A Bad Brain Motor ?

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  By Cort Johnson in Open Medicine Foundation.   I thought I was in Paris, so much French was being spoken. The conversations in the cafes, on the streets, in the subways – everywhere – were in French. It turns out that with its 4,000,000 plus residents, Montreal is the second largest French speaking city […]

Chronic Fatigue Syndrome – It’s Worse Than Multiple Sclerosis – And Fibromyalgia Is No Walk In The Park Either

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  By Cort Johnson in Health Rising.   Multiple sclerosis (MS) is a dreaded disease. About ten years into having chronic fatigue syndrome (ME/CFS), I still remember being tested for it and how thankful I was that I didn’t have it. MS does things to people that ME/CFS doesn’t. For one thing, it kills more […]

Ron Davis (Finally) Gets His Big Grant !

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  By Cort Johnson in Health Rising.   “This proposal aims to uncover the immunological basis of ME/CFS”. Ron Davis – grant application Sometimes the third time is the charm. Ron Davis has gotten (and been turned down for) many NIH grants but even he was shocked by the response to his first couple of […]

The Autoimmune Virus ? Groundbreaking EBV Finding Could Help Explain ME/CFS

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  By Cort Johnson in Simmaron Research.   Viral Mystery  “I’ve been a co-author in almost 500 papers. This one is more important than all of the rest put together. It is a capstone to a career in medical research,” Harley I sensed some awe in Ron Davis’s voice as he pushed for more understanding of Epstein-Barr […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

Dr Lapp

  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

2018 Budget Gives NIH Big Boost – ME/CFS CDC Program Spared – Insurance Markets Not Stabilized

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  By Cort Johnson in Phoenix Rising.   NIH Budget Grows for Third Year in a Row For the past two years Donald Trump has tried to cut the NIH budget significantly but NIH spending has bipartisan support and the 2018 budget resolution increased NIH funding significantly (once again). – about 10% or $3 billion […]

Cortene – A New Drug For Chronic Fatigue Syndrome (ME/CFS) Pt III: The Clinical Trial

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  By Cort Johnson in Health Rising.   An Exploratory Drug Trial For ME/CFS In the next month or so, Cortene, a small drug development company, will do a very unusual thing – trial a new drug in chronic fatigue syndrome (ME/CFS). The first two parts of the series on this new drug covered how […]

The Cortene Way: New Drug To Be Trialled In Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I

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  By Cort Johnson in Health Rising.   Research funding for chronic fatigue syndrome (ME/CFS) has been poor at best but clinical trials have elicited a wholly different degree of disappointment altogether. Few clinical trials are ever done and those are often involve alternative approaches. The 6 active clinical trials listed in clinicaltrials.gov, for instance, include […]

Bearing Witness For ME/CFS – Valerie Free Lights Up A Hidden World: Pt. I Valerie’s Story

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  By Cort Johnson in Phoenix Rising.   ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we begin […]

The Stories We Tell: Unrest Inspired ME/CFS Effort Triumphs In The Unlikeliest Of Places

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  By Cort Johnson in Health Rising.   When things start moving, help shows up in the most unlikely places.  Take a recent blog from a University of Michigan sports blogger – Ace. Ace has been sick since high school but only in the last couple of years has he been diagnosed as having chronic […]

Ron Davis Talks On ME/CFS………And Texas Listens

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  By Cort Johnson in Health Rising.   Ron Davis was invited to the University of Texas to talk to the biological and bioengineering departments over two days. His long talk was putatively on developing affordable technologies that can be used by doctors, but it ended up being more than that. On the technology side, […]

NEID Disease ? Study Suggests Neuro, Endocrine And Immune Systems Work Together To Produce ME/CFS

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  By Cort Johnson in Simmaron Research.   Bruun Wyller continues to surprise. When last heard from this erstwhile cognitive behavioral therapy (CBT) proponent asserted that more research into Epstein-Barr virus in chronic fatigue syndrome (ME/CFS) was needed. Now he’s looking at the interaction between the immune and endocrine systems. Wyller begins his new study […]

Could Chronic Fatigue Syndrome (ME/CFS) Be A Chronic Form Of Sepsis ?

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  By Cort Johnson in Simmaron Research.   This is one of a series of blogs highlighting hypotheses mostly written by doctors or other professionals with ME/CFS, or in this case, doctors who have cared for them. The hypothesis examined in this case: Dr. Bell’s idea, produced in his monograph, “Cellular Hypoxia and Neuro-immune Fatigue”, […]

Urgency: Ron Davis And His (Non-NIH Funded) ME/CFS Collaborative Research Center

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  By Cort Johnson in Health Rising.   This is one of a series of blogs that will look at what’s coming up in 2018 from ME/CFS research foundations. Urgency Those ten NIH research center proposals contained a hidden gift.  Of the ten grant applications, seven failed, leaving at least 21 potential individual research grant applications that […]

Cognition And Chronic Fatigue Syndrome (ME/CFS): Key Findings And Seminal Papers

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    By Cort Johnson in Health Rising.   This paper attempts to identify seminal papers regarding cognition or the ability to think well in chronic fatigue syndrome (ME/CFS). It covers what researcher studies tell us about cognitive problems in ME/CFS; what they are, how serious they are and what might be causing them. Cognitive […]

Treating Autism And ME/CFS: Could One Drug Do Both ?

Drugs Trials

    by Cort Johnson in Open Medicine Foundation.   Autism is one of the most difficult conditions to treat. A neurodevelopmental disease that typically strikes before the age of two, about a dozen different areas of the brain are affected. Autism is characterized by social withdrawal, problems with both verbal and non-verbal communications and […]

How Physical Therapists Are Getting It About Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in health Rising.   Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is pretty bleak. If a chronic fatigue syndrome (ME/CFS) patient doesn’t encounter […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy

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  By Cort Johnson in Health Rising.   Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, including one from a research […]

Changing Hearts And Minds: A Review Of Unrest

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  By Cort Johnson in Health Rising.   Unrest is about to spring into action. Scheduled to go into widespread theatrical release in dozens of theaters over the next couple of months: on Sept 22nd in the U.S. and Oct. in the U.K., Unrest is about to really make its mark. Jen Brea and her […]

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