Fibromyalgia

Is The Brain Causing The Small Fiber Neuropathy In Fibromyalgia (And ME/CFS ?)

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    By Cort Johnson in Health Rising.   It seemed ever so clear. The reduction in the number of small nerves in the skin and eyes of roughly forty percent or so of the people with fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) must bring the body – as opposed to the brain – into […]

“This Is What Disabled Looks Like”: The Sometimes Hard-To-See Line Between Visible And Invisible Disabilities

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  From the CoffeeSpoonie Blog.   There are disabilities we think of as visible, and disabilities we think of as invisible. (Mental illness? Invisible. Quadriplegia? Visible. Autoimmune disease? Invisible. Blindness, with a cane and guide dog? Visible.) Neat little categories that we are expected to sort our disabilities into, to help others understand better when […]

Extreme Itch In Fibromyalgia And Chronic Fatigue Syndrome

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By Adrienne Dellwo in Very Well Health.   Because fibromyalgia and chronic fatigue syndromeinvolve the central nervous system, we get all kinds of strange things goings on with our nerves. Along with burning, tingling, numbness, and pinpricks, we can experience itchiness that can be severe and persistent. It’s maddening, especially since scratching doesn’t do a thing to help. For […]

The ME/CFS And Fibromyalgia “What Would You Have Done Differently” Survey

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By Cort Johnson in Health Rising. when you get it right you pass it on… Gary Snyder   When things go wrong, the “If only I had known! “, “If only I could have that back!” mantra shows up in spades. Of course, we all make mistakes – major mistakes – that we wish we could […]

The Crash That Follows The Push Of ME/CFS And FM Awareness Day

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  By Jodie Smith in Phoenix Rising.   It’s been about a month since the ME/CFS community pulled out all the stops for our May 12 International ME/CFS and FM Awareness Day. I think we have a great deal to be proud of, and encouraged by. With each passing year this bunch of chronically ill […]

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: The Spinal Series #3

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  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Could […]

Spinal Stenosis, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia: The Spinal Series #3

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  By Cort Johnson in Health Rising.   The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to correct craniocervical instability. Leader in the […]

“Just Be Positive!” Toxic Positivity, ME/CFS And Fibromyalgia

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  By Lori Madeira and Cort Johnson in Health Rising.    In the face of a chronic illness, our friends and family can resort to simple solutions: just try and be positive they might advise. Look on the bright side. Focus oun what you can do. It’s not bad advice, but it often comes across as out […]

Don’t Judge Appearances For Accessible Parking And Other Needs

Invisible Illness

  From Invisible Disabilities Association.   Don’t judge appearances. People with invisible disabilities don’t LOOK Disabled. Don’t judge appearances when you think you see someone abusing privileges or rights reserved for the disabled because you might be making a common mistake based on perception. Have you ever seen someone get out of a car parked […]

A Ketamine Revolution For Depression And Pain ? Spravato, Fibromyalgia And ME/CFS

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  By Cort Johnson in Health Rising.   For years, ketamine was known for its use as an anesthetic or as a recreational drug. It had the nice benefit of being able to knock one out without impacting heart rate or breathing.  Its ability to provide quick and safe sedation saved many lives during the Vietnam […]

Hidden Disabilities – Heathrow’s Sunflower Lanyard

Air Travel

    From Heathrow.com.   At Heathrow we understand all passengers are unique and we offer different levels of support tailored to your needs. For a hidden disability such as autism, dementia or anxiety, help is always at hand at the airport. If you would like to book assistance just let your airline know 48 […]

To People With Invisible Illnesses, From A Paramedic Who Didn’t Believe You

Invisible Illness

  By Ashley in The Mighty.   I’ve been a paramedic on and off for 10 years now. I’ve seen the good and the bad — probably more bad than good, but I’ve opened my eyes to something different. I’ve seen people in Facebook groups post about how health care professionals treat people with invisible illnesses poorly because they […]

Chronic Illness: Aren’t You Glad It Isn’t Worse ?

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  From The Brainless Blogger.   Okay, so stop telling people it could be worse. Yeah. It could be worse. It can always be worse. But it sure as hell could be better. We are aware it could be worse. We tell ourselves this sometimes to get through. Hell, sometimes worse happens and we are […]

The Difference Between ‘Rest’ And ‘Bad’ Days For My Chronic Illness

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    By Amy Saunders in The Mighty.   Living with an illness is hard. It means being ill. It means constant worry that you’re going to be ill. And it means your life is spent managing your illness to avoid being ill. You can have days when you feel on top of the world […]

5 Reasons We Should Never Assume Someone Isn’t In Pain

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      By Christina Carrell in The Mighty.   I was sitting in one of those canvas painting classes, waving a paintbrush back and forth in a very amateur attempt to recreate Monet’s “Bridge Over a Pond of Water Lillies” (spoiler: I’m not an artist and the end result bore little resemblance to the […]

15 Things People With Chronic Illness Mean When They Say ‘I Don’t Feel Good’

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  By Veronica Vivona in The Mighty.   Many of those with chronic illness may be used to saying they’re “good” or “fine” when it comes to how they’re feeling. It doesn’t always mean they’re actually good or fine though. It might just be what they’re portraying to the world. They may do this for a variety of […]

Which Painkiller ?

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  From NHS Choices.   The type of medicines that you need to treat your pain depend on what type of pain you have. For pain associated with inflammation, such as back pain or headaches, paracetamol and anti-inflammatory painkillers work best. If the pain is caused by sensitive or damaged nerves, as is the case with shingles or sciatica, it’s usually treated with tablets that […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

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  By Alicia Thompson in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean […]

Why I Gave Up Trying To Be The ‘Good Patient’

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    By Alexis Redenbach in The Mighty. We’ve all seen the movies: the patient stoically braves the struggles of treatment and only gets angry one time, in a huge but righteous burst of frustration. The person in a traumatic accident is told they will never walk again but by sheer force of will, they somehow […]

Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia & POTS? Pt I – The Brainstem Series

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    By Cort Johnson in Health Rising.   Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with headaches, dizziness, muscle weakness and pain, sound and light sensitivity, and a general sense of being […]

Enhancing Blood Volume In Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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    From Health Rising.   “You guys are about a litre short in blood volume, ok? If I’m sitting at five litres, you’re sitting at four. So, you’re really, really sensitive to blood volume changes. If you’re a little dry, you crash. ” Dr. Nancy Klimas.   The low blood volume finding in chronic […]

14 Things People May Not Realize We Do Because Of Sudden Flare-Ups

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  By Cassidy Colbert in The Mighty.   Living life with a chronic illness is basically living life constantly walking on eggshells. One day you may be bouncing off the walls because you are so full of energy and the next you are lying on the cool bathroom floor — your only source of relief from the agonizing […]

A Winter’s Tale – A Former Mountain Climber Reflects On Post Exertional Malaise And ME/CFS/FM

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By Simon Parker in Health Rising.   Fifteen years ago I was diagnosed with Fibromyalgia and ME (aka Chronic Fatigue Syndrome), a debilitating condition that includes continual pain and delayed fatigue as its primary symptoms. I often find myself trying to explain to other people what the delayed fatigue is like by giving an example […]

The Hummingbird: Could A Blood Flow Enhancer Help With Fibromyalgia, POTS And ME/CFS ?

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  By Cort Johnson in Health Rising. A Different Approach to Fibromyalgia “The effects of not getting good blood flow to your brain, joints and muscles?…. Fibromyalgia” – Vital Motion Erik Hiester D.O., is not your ordinary doctor. He’s an interesting blend of engineer and doctor. Hiester’s first love was biomedical engineering (B.S. and M.S.). Wanting […]

International ME Awareness Day – 12th of May

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  From ME Support.   The clock is now counting down to International May 12th Awareness Day 2019. This year, 2019, marks the 27th anniversary of International May 12th Awareness Day. The idea originated with Thomas Michael Hennessy, Jr., the founder of Repeal Existing Stereotypes about Chronic Immunological and Neurological Diseases (no longer active). Tom Hennessy was based in […]

Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising.   Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear.  Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]

96 Patients Prescribed Medical Cannabis

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by Denise Grech in Times of Malta. Ninety-six patients have been prescribed medical cannabis since the law was amended in March this year, Superintendent of Public Health Charmaine Gauci said. The 96 patients were under the care of 14 doctors, she said, adding the superintendence was also following the cases closely. Many of these patients suffered from fibromyalgia, […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

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  By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not […]

Invisible Disabilities: Just Because You Can’t See it Doesn’t Mean it’s Not Real

Invisible Illness

  From Healthy Living Facts.   Have you ever heard diseases like fibromyalgia called an “invisible disability?” Essentially, invisible disabilities are conditions that can’t be seen but still have serious effects on your ability to live a normal life. The term makes a distinction between conditions like cerebral palsy, where the effects of the disability are […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

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By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

The Differences Between Temporary And Chronic Pain

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  By Krista Germanis in The Mighty.   Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

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  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

The Other Side Of The Opioid Epidemic: Denying Treatment To People With Chronic Pain

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    By Kate Nicholson in The Mighty.   When I went into the office one Saturday afternoon in August 1994, I planned to spend a few hours finishing a brief that was due in federal court Monday morning. At the time, I was a civil rights attorney for the justice department. After 30 minutes […]

Please Don’t Confuse My Chronic Pain With ‘Low Pain Tolerance’

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By Alexandra Kaye in The Mighty.   “Pain tolerance” and “pain threshold” are phrases used to describe how much pain a person can handle, but they don’t actually mean the same thing. Pain tolerance is how much pain you can handle while still functioning (for me, this means how much pain I can handle without taking medication). […]

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