Did A Multiple Sclerosis Study Give Us Clues About ME/CFS And Fibromyalgia ?


    By Cort Johnson in Simmaron Research.   Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? Because some distinct similarities exist between the three diseases, and when diseases like ME/CFS and FM aren’t getting much research, sometimes it pays to pay attention to diseases […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis


  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

19 Lessons My Invisible Illnesses Have Taught Me


  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

Elevations Of Ventricular Lactate Levels Occur In Both Chronic Fatigue Syndrome And Fibromyalgia


  From Solve ME/CFS Initiative.   Note: the use of “CFS” in this article reflects the nomenclature used in the studies referenced. New research published in Fatigue: Biomedicine, Health & Behavior found ventricular lactate (lactate present in cerebrospinal fluid) might serve as a biological marker of underlying brain dysfunction for patients with chronic fatigue syndrome (CFS), fibromyalgia […]

Blue Badge Scheme Could Be Extended To Autism And Dementia Sufferers


  From BBC News:   People with dementia and autism could get blue badge parking permits in England under new government proposals. It is hoped that providing the permits for those with hidden disabilities will create equality between the treatment of physical and mental health. The Department for Transport said at the moment only certain […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling


    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS


  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?


  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

Different Triggers – Different Illnesses: Exercise Affects Brains Of ME/CFS And GWI Patients Differently


  By Cort Johnson in Health Rising.   Baraniuk believes chronic fatigue syndrome (ME/CFS), fibromyalgia and Gulf War Illness are  related. In fact, he calls the post-exertional malaise found in chronic fatigue syndrome (ME/CFS) a “unique characteristic of CFS that is shared by Gulf War Illness (GWI) subjects”. Both diseases often involve a triggering event […]

Swollen Glands Or Lymph Nodes With Fibromyalgia & ME/CFS


      By Adrienne Dellwo in Very Well.   Question: “In your conversations with all of these people who have FMS do you ever come across swollen glands in the neck and under the jaw line? I get a very tight feeling in my neck sometimes and burning sensations. Have had bloods done but they come […]

Thousands Share Their Invisible Disabilities On Twitter

Invisible Illness

  From BBC News.   Using the hashtag #InvisiblyDisabledLooksLike, Twitter users across the world with hidden disabilities have been sharing pictures and stories to challenge society’s perceptions. Many people live with hidden disabilities – a physical, mental, sensory or neurological condition which don’t have physical signs but are painful, exhausting and isolating. They must also deal […]

Pacing By Numbers: Using Your Heart Rate To Stay Inside The Energy Envelope


    By Bruce Campbell in CFIDS & Fibromyalgia Self Help. If you have CFS, you are probably familiar with post-exertional malaise, the severe fatigue that results from doing too much. You can avoid or at least reduce malaise by staying within your limits or energy envelope. This article describes a strategy for staying within one […]

Glial Cell Inhibitors: The Next Sleep Drugs For Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS) ?


    By Cort Johnson in Health Rising.   Sleep disturbances and severe stress as glial activators: key targets for treating central sensitization in chronic pain patients? Jo Nijs,Marco L. Loggia,Andrea Polli,Maarten Moens,Eva Huysmans,Lisa Goudman, Expert Opinion on Therapeutic Targets  Volume 21, 2017 – Issue 8 . The interplay between central sensitization (pain originating in the central nervous […]

Natural Treatments For Mild Cognitive Impairment — Might These Also Help The “Fog” Of FM And CFS ?

Brain Fog

    By Richard N. Podell, M.D., MPH in Open Medicine Foundation.   Patients with ME/CFS or Fibromyalgia (FM) struggle with mental “fog”. We don’t understand why and there’s been little research on why it happens or what to do. The Mild Cognitive Impairment or MCI of ageing is a different kind of cognitive “fog”. […]

Exercise Tests Suggest Autoimmunity Causes The Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS


  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

What To Do When Doctors Don’t Give A Crap !


  From The Little Lifestyle Blog.   Now doctors have very hard and demanding jobs dealing with life and death situations all the time, so I highly respect them and what they do but while being ill with Fibromyalgia, Chronic fatigue and Depression I had some bad experiences with them! They weren’t all bad I had […]

Pacing Yourself With Fibromyalgia & Chronic Fatigue Syndrome


  By Adrienne Dellwo in Very Well.   When living with fibromyalgia and chronic fatigue syndrome, pacing is key to managing your symptoms. That’s easier said than done with the busy lives most of us lead, but with some effort, you can learn to pace yourself. Why is Pacing Important with Fibromyalgia & Chronic Fatigue […]

7 Things You Need To Know About Supplements


    By By Adrienne Dellwo in About Health.   Getting Started With Supplements: Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications. However, […]

Central Sensitivity Syndromes


  By Adrienne Dellwo in About Health   Fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) are difficult illnesses to classify. Both have a broad range of physical symptoms that span multiple systems, and they’re associated with multiple psychological symptoms as well. In addition, they’re often accompanied by a slew of other illnesses — many of […]

Magnesium: Is Deficiency The Root Cause of Fibromyalgia, CFS/ME & More?


  In Blog by Alyssa Reid.   According to USDA guidelines, it is believed that up to 80% of Americans are  deficient in magnesium.  When you read through the symptoms of magnesium deficiency, many of them ring true in regards to fibromyalgia and CFS/ME/SEID symptoms…So, I have to ask, is magnesium deficiency possibly the root […]

Study: Fibromyalgia Sufferers Have Trouble Processing Sight, Sound, Touch


  By David Heitz in Healthline.   New research provides even more evidence that people with fibromyalgia have a real pathology and that it may be linked to trouble processing everyday sights and sounds. In a paper published earlier this month in Arthritis & Rheumatology, Marina Lopez-Sola of the University of Colorado, Boulder, showed that people […]

Sensory Overload In Fibromyalgia & Chronic Fatigue Syndrome


    By Adrienne Dellwo in About Health.   Sensory overload is a common problem in fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS.) It’s a symptom that can have a significant effect on your daily life and discourage a lot of activities. Sensory overload can make you feel panicky, confused, and overwhelmed. It can result […]

Neurotransmitters In Fibromyalgia & Chronic Fatigue Syndrome


By Adrienne Dellwo in About Health. What’s Going On in Your Brain? Fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) long remained mysteries to medical science, and we’re just now getting a picture of what’s going on in the body, and especially the brains, of people with these conditions. One thing that research has […]

Are Chronic Fatigue Syndrome And Fibromyalgia Related To Parkinson’s Disease?


By Cort Johnson in Health Rising. The Chronic Pain Connection. From “hand-warmers” to ion channel blockers to magnetic field generators more and more different approaches to get at the chronic pain are being tried. Now comes an entirely different approach. First, studies indicated that in rodents in chronic pain neurons thought to be associated with […]

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