Fibromyalgia

Tips For Newbies With Fibromyalgia And/Or Chronic Fatigue Syndrome (ME/CFS)

Cort_Johnson

  By Cort Johnson in Health Rising.   Having any disease is scary, but having chronic fatigue syndrome (ME/CFS) and/or fibromyalgia (FM) often adds a hefty dose of confusion and bewilderment to that fear.  Not only are people with ME/CFS and FM typically exhausted and in pain, but problems with short-term memory and information processing […]

96 Patients Prescribed Medical Cannabis

Medical-Marijuana

by Denise Grech in Times of Malta. Ninety-six patients have been prescribed medical cannabis since the law was amended in March this year, Superintendent of Public Health Charmaine Gauci said. The 96 patients were under the care of 14 doctors, she said, adding the superintendence was also following the cases closely. Many of these patients suffered from fibromyalgia, […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

chronic-illness

  By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not […]

Invisible Disabilities: Just Because You Can’t See it Doesn’t Mean it’s Not Real

Invisible Illness

  From Healthy Living Facts.   Have you ever heard diseases like fibromyalgia called an “invisible disability?” Essentially, invisible disabilities are conditions that can’t be seen but still have serious effects on your ability to live a normal life. The term makes a distinction between conditions like cerebral palsy, where the effects of the disability are […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

Chronic

By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

The Differences Between Temporary And Chronic Pain

ChronicPainManagement

  By Krista Germanis in The Mighty.   Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

Smart Phones

  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

The Other Side Of The Opioid Epidemic: Denying Treatment To People With Chronic Pain

pills

    By Kate Nicholson in The Mighty.   When I went into the office one Saturday afternoon in August 1994, I planned to spend a few hours finishing a brief that was due in federal court Monday morning. At the time, I was a civil rights attorney for the justice department. After 30 minutes […]

Please Don’t Confuse My Chronic Pain With ‘Low Pain Tolerance’

ChronicPainManagement

By Alexandra Kaye in The Mighty.   “Pain tolerance” and “pain threshold” are phrases used to describe how much pain a person can handle, but they don’t actually mean the same thing. Pain tolerance is how much pain you can handle while still functioning (for me, this means how much pain I can handle without taking medication). […]

“Sticky Blood” – Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome And Fibromyalgia – The Dysautonomia Conference #4

Blood Test

  By Cort Johnson in Health Rising.   This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. As if we needed another syndrome.  Chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), fibromyalgia (syndrome), irritable bowel syndrome (IBS) are old-timers in the ME/CFS/FM world. In the last […]

The RCCX Hypothesis: Could It Help Explain Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia And Other Diseases ?

Genetics

  By Remy in Health Rising.   The RCCX hypothesis blog by Remy is the third in a series of blogs by Health Rising which highlight hypotheses produced by health care professionals which attempt to shed a new light on the chronic fatigue syndrome / fibromyalgia spectrum of diseases. Chronic illness is exploding in modern […]

8 Ways You Can Support Your Friends With ME And Fibromyalgia

Frustration Chronic Illness

  By Victoria Fernando in The Mighty.   I have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and I am writing this post in honor of International ME/CFS and Fibromyalgia Awareness Day, this Saturday, May 12th, 2018. Kudos to all those surviving and doing their best whilst living with these diseases, and to the caregivers and loved ones who love and […]

Fibromyalgia, Chronic Fatigue Patients Show Similar Issues With Postural Control In Study

Postural Control

  By Jose Marques Lopes, PhD in Fibromyalgia News Today.   Patients with fibromyalgia and patients with chronic fatigue syndrome (CFS) both show similar differences in postural control in comparison with healthy subjects, researchers found in a study. The study, “Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome,” appeared in the journal PLOS ONE. Patients […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

Dr Lapp

  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

Did A Multiple Sclerosis Study Give Us Clues About ME/CFS And Fibromyalgia ?

research

    By Cort Johnson in Simmaron Research.   Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? Because some distinct similarities exist between the three diseases, and when diseases like ME/CFS and FM aren’t getting much research, sometimes it pays to pay attention to diseases […]

Good News: First Licence Granted to Treat Pain With Medicinal Cannabis

THC

  From Your Daily Ideas.   License to treat pain with medicinal cannabis given the go ahead A license to treat chronic pain with medicinal cannabis has been granted here for the first time, it has emerged. A 3-month agreement was given the green light by the Department of Health to use Tetrahydrocannabinol (THC) people […]

19 Lessons My Invisible Illnesses Have Taught Me

Free

  By Caz in The Mighty.   Living with invisible, chronic illness can often feel like trudging through mud – an endless downward spiral of problems, regrets and maybe a sprinkle or more of resentment, too. I know I have my down days and struggles with fibromyalgia, a stoma, fatigue, pain and migraines. But it’s important to appreciate […]

Elevations Of Ventricular Lactate Levels Occur In Both Chronic Fatigue Syndrome And Fibromyalgia

brain-power

  From Solve ME/CFS Initiative.   Note: the use of “CFS” in this article reflects the nomenclature used in the studies referenced. New research published in Fatigue: Biomedicine, Health & Behavior found ventricular lactate (lactate present in cerebrospinal fluid) might serve as a biological marker of underlying brain dysfunction for patients with chronic fatigue syndrome (CFS), fibromyalgia […]

Blue Badge Scheme Could Be Extended To Autism And Dementia Sufferers

access-bluebadge

  From BBC News:   People with dementia and autism could get blue badge parking permits in England under new government proposals. It is hoped that providing the permits for those with hidden disabilities will create equality between the treatment of physical and mental health. The Department for Transport said at the moment only certain […]

To Those Who Find My Illness ‘Hard To Understand’ When They See Me Smiling

Chronic

    By Tiffany Early in The Conversation.   My husband and I had a conversation about how others perceive my illness the other day. It wasn’t a confrontational conversation — it was more the random musings that happen when you’re waiting for dinner to come out of the oven. Joe mentioned that a mutual friend had once […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS

Cort_Johnson

  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

Different Triggers – Different Illnesses: Exercise Affects Brains Of ME/CFS And GWI Patients Differently

Cort_Johnson

  By Cort Johnson in Health Rising.   Baraniuk believes chronic fatigue syndrome (ME/CFS), fibromyalgia and Gulf War Illness are  related. In fact, he calls the post-exertional malaise found in chronic fatigue syndrome (ME/CFS) a “unique characteristic of CFS that is shared by Gulf War Illness (GWI) subjects”. Both diseases often involve a triggering event […]

Swollen Glands Or Lymph Nodes With Fibromyalgia & ME/CFS

Doctor

      By Adrienne Dellwo in Very Well.   Question: “In your conversations with all of these people who have FMS do you ever come across swollen glands in the neck and under the jaw line? I get a very tight feeling in my neck sometimes and burning sensations. Have had bloods done but they come […]

Thousands Share Their Invisible Disabilities On Twitter

Invisible Illness

  From BBC News.   Using the hashtag #InvisiblyDisabledLooksLike, Twitter users across the world with hidden disabilities have been sharing pictures and stories to challenge society’s perceptions. Many people live with hidden disabilities – a physical, mental, sensory or neurological condition which don’t have physical signs but are painful, exhausting and isolating. They must also deal […]

Pacing By Numbers: Using Your Heart Rate To Stay Inside The Energy Envelope

heartrate

    By Bruce Campbell in CFIDS & Fibromyalgia Self Help. If you have CFS, you are probably familiar with post-exertional malaise, the severe fatigue that results from doing too much. You can avoid or at least reduce malaise by staying within your limits or energy envelope. This article describes a strategy for staying within one […]

Glial Cell Inhibitors: The Next Sleep Drugs For Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS) ?

brain-power

    By Cort Johnson in Health Rising.   Sleep disturbances and severe stress as glial activators: key targets for treating central sensitization in chronic pain patients? Jo Nijs,Marco L. Loggia,Andrea Polli,Maarten Moens,Eva Huysmans,Lisa Goudman, Expert Opinion on Therapeutic Targets  Volume 21, 2017 – Issue 8 . The interplay between central sensitization (pain originating in the central nervous […]

Natural Treatments For Mild Cognitive Impairment — Might These Also Help The “Fog” Of FM And CFS ?

Brain Fog

    By Richard N. Podell, M.D., MPH in Open Medicine Foundation.   Patients with ME/CFS or Fibromyalgia (FM) struggle with mental “fog”. We don’t understand why and there’s been little research on why it happens or what to do. The Mild Cognitive Impairment or MCI of ageing is a different kind of cognitive “fog”. […]

Exercise Tests Suggest Autoimmunity Causes The Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS

Cort_Johnson

  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

What To Do When Doctors Don’t Give A Crap !

Doctor

  From The Little Lifestyle Blog.   Now doctors have very hard and demanding jobs dealing with life and death situations all the time, so I highly respect them and what they do but while being ill with Fibromyalgia, Chronic fatigue and Depression I had some bad experiences with them! They weren’t all bad I had […]

Pacing Yourself With Fibromyalgia & Chronic Fatigue Syndrome

Pace

  By Adrienne Dellwo in Very Well.   When living with fibromyalgia and chronic fatigue syndrome, pacing is key to managing your symptoms. That’s easier said than done with the busy lives most of us lead, but with some effort, you can learn to pace yourself. Why is Pacing Important with Fibromyalgia & Chronic Fatigue […]

7 Things You Need To Know About Supplements

Supplements

    By By Adrienne Dellwo in About Health.   Getting Started With Supplements: Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications. However, […]

Central Sensitivity Syndromes

imagesQMYHGPKJ

  By Adrienne Dellwo in About Health   Fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) are difficult illnesses to classify. Both have a broad range of physical symptoms that span multiple systems, and they’re associated with multiple psychological symptoms as well. In addition, they’re often accompanied by a slew of other illnesses — many of […]

Magnesium: Is Deficiency The Root Cause of Fibromyalgia, CFS/ME & More?

magnesium

  In Blog by Alyssa Reid.   According to USDA guidelines, it is believed that up to 80% of Americans are  deficient in magnesium.  When you read through the symptoms of magnesium deficiency, many of them ring true in regards to fibromyalgia and CFS/ME/SEID symptoms…So, I have to ask, is magnesium deficiency possibly the root […]

The York ME Community © 2015
Powered by Live Score & Live Score App