Health Rising

Are “Old” Muscles Holding People With Chronic Fatigue Syndrome (ME/CFS) Down? Plus Tompkins’ Team Promises New Insights

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      By Cort Johnson in Health Rising.   “New data collectively supports the presence of specific critical points in the muscle that are affected by free radicals.” Fulle et. al. A group of pioneering Italian researchers have been studying the muscles of people with ME/CFS – a rather lonely task – for over 15 […]

ME/CFS, Naviaux’s Cell Danger Response And A Nervous System Under Threat

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    By Veronique Mead M.D. in Health Rising.   Thanks again to Veronique for providing her intriguing take on chronic fatigue syndrome (ME/CFS). This is one of a series of articles from Health Rising which feature hypotheses created by health care professionals with ME/CFS or who are associated with ME/CFS. (It is a long post – you […]

GET Paper Withdrawal Shocks CBT/GET Proponents – Emboldens ME/CFS Advocates

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By Cort Johnson in Health Rising.   Our mission is to promote evidence-informed health decision-making by producing high-quality, relevant, accessible systematic reviews and other synthesized research evidence. Our work is internationally recognized as the benchmark for high-quality information about the effectiveness of health care. Cochrane  The Cochrane Reviews are the gold standard – highly respected and […]

The Metabolic Trap Shines During The Symposium On The Molecular Basis Of ME/CFS At Stanford

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By Cort Johnson in Health Rising.   If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times – the chance to […]

Invasion: The Source Of The Neuroinflammation In Chronic Fatigue Syndrome ?

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  By Cort Johnson in Health Rising.   Breaches in the Barrier   The last article reported that Younger speculated that people with chronic fatigue syndrome (ME/CFS) have an immune-triggered metabolic disorder.  The widespread neuroinflammation found in ME/CFS patients provides a clue, he thinks, to what’s going on. It suggests that immune cells are breaching […]

The Disability Defenders: The Workwell Foundation, Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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By Cort Johnson.   You don’t need to be a large organization to make a big difference. You simply need to be committed to a field (and producing jaw-dropping results doesn’t hurt either.)  Consisting of three exercise physiologists (one with ME/CFS), a clinical coordinator, and working with one of the top chronic fatigue syndrome (ME/CFS) […]

A Wing, A Prayer And Vicky Whittemore: The NIH And Chronic Fatigue Syndrome In 2018

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    By Cort Johnson in Health Rising.   “I think some people are angry for good reason.  This disease hasn’t gotten enough attention.” Vicky Whittemore   My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in and were […]

The Case For IVIG Treatment In Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, And POTS : IVIG#3

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  By Cort Johnson in Health Rising.   “The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG Chronic Fatigue […]

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in Health Rising.   Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on […]

Stagnant Hypoxia – Where Chronic Fatigue Syndrome And Hyperadrenergic POTS Meet ?

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  By Cort Johnson in Health Rising.   Despite the current lack of consensus as to the underlying biological basis of CFS, there is considerable evidence … to highlight an abnormality of the autonomic nervous system as a unifying pathological factor. Newton et. al. 2013 A fascinating case of research confluence took place a couple of […]

An Honest Doctor On Treating Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia (FM)

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  By Cort Johnson in Health Rising.   Ari Whitten is a Scottsdale, Arizona naturopath who runs the Energy Blueprint website. He’s done an amazing number of podcasts with alternative health practitioners. If you’re interested in alternative health, his website is a good resource. I find that Whitten asks good questions.His May 28th interview with JE Williams, […]

The Cortene Chronic Fatigue Syndrome (ME/CFS) Drug Trial Begins

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  By Cort Johnson in Health Rising.   Since February, Health Rising has described the development of a new drug produced for chronic fatigue syndrome (ME/CFS) by a small pharmaceutical company named Cortene in three blogs: The Cortene Way: New Drug to Be Trialed in Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I Cortene II: A New […]

New Harvard Chronic Fatigue Syndrome (ME/CFS) Research Center Fulfills Crucial Need

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    By Cort Johnson in Health Rising.   In May the Open Medicine Foundation announced they’d committed a major chunk of change – $1.8 million –  to fund an ME/CFS Collaborative Research Center at Harvard Medical School affiliated hospitals. With the addition of the Harvard Center, chronic fatigue syndrome (ME/CFS) research centers are now found at two […]

Enhancing Blood Volume In Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia

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  From Health Rising.   “You guys are about a litre short in blood volume, ok? If I’m sitting at five litres, you’re sitting at four. So, you’re really, really sensitive to blood volume changes. If you’re a little dry, you crash. ” Dr. Nancy Klimas The low blood volume finding in chronic fatigue syndrome […]

Chronic Fatigue Syndrome – It’s Worse Than Multiple Sclerosis – And Fibromyalgia Is No Walk In The Park Either

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  By Cort Johnson in Health Rising.   Multiple sclerosis (MS) is a dreaded disease. About ten years into having chronic fatigue syndrome (ME/CFS), I still remember being tested for it and how thankful I was that I didn’t have it. MS does things to people that ME/CFS doesn’t. For one thing, it kills more […]

Ron Davis (Finally) Gets His Big Grant !

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  By Cort Johnson in Health Rising.   “This proposal aims to uncover the immunological basis of ME/CFS”. Ron Davis – grant application Sometimes the third time is the charm. Ron Davis has gotten (and been turned down for) many NIH grants but even he was shocked by the response to his first couple of […]

Not Letting Suffering Be A Stumbling Block – Terry’s Extraordinary ME/CFS Story

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  By Terry Gilmete in Health Rising.   I’ve had Myalgic Encephalomyelitis (ME) for 32 years.  I was 24 when I first became ill with it after contracting a virus of some sort while teaching high school in East Salinas, California –  just east of Monterey Bay. The students I taught were the children of immigrants; hard […]

An ME/CFS And FM Pioneer Says Good-bye: The Charles Lapp Interview

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  By Cort Johnson in Health Rising.   Dr. Lapp’s path to medicine and then into chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) was an unusual one. Lapp graduated from the Rensselaer Polytechnic Institute with both Bachelor’s and Master’s degrees in engineering. After doing research, consulting, and marketing in Boston, Lapp turned to medicine and […]

The Stories We Tell: Unrest Inspired ME/CFS Effort Triumphs In The Unlikeliest Of Places

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  By Cort Johnson in Health Rising.   When things start moving, help shows up in the most unlikely places.  Take a recent blog from a University of Michigan sports blogger – Ace. Ace has been sick since high school but only in the last couple of years has he been diagnosed as having chronic […]

Ron Davis Talks On ME/CFS………And Texas Listens

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  By Cort Johnson in Health Rising.   Ron Davis was invited to the University of Texas to talk to the biological and bioengineering departments over two days. His long talk was putatively on developing affordable technologies that can be used by doctors, but it ended up being more than that. On the technology side, […]

Bearing Witness For ME/CFS – Valerie Free Lights Up A Hidden World: Pt. I – Valerie’s Story

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    By Cort Johnson in Health Rising.   ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we […]

Urgency: Ron Davis And His (Non-NIH Funded) ME/CFS Collaborative Research Center

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  By Cort Johnson in Health Rising.   This is one of a series of blogs that will look at what’s coming up in 2018 from ME/CFS research foundations. Urgency Those ten NIH research center proposals contained a hidden gift.  Of the ten grant applications, seven failed, leaving at least 21 potential individual research grant applications that […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

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  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

What If ME/CFS Is An Intelligent Process Gone Awry ?

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    By Veronique Mead M.D. in Health Rising.   Veronique had a very gradual onset of ME/CFS beginning in the 1990s when she was a family physician. Her symptoms worsened slowly over 10 years. At her worst activities such as sitting, standing, taking a shower, or talking exhausted her. She changed careers and has since discovered and […]

Cognition And Chronic Fatigue Syndrome (ME/CFS): Key Findings And Seminal Papers

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    By Cort Johnson in Health Rising.   This paper attempts to identify seminal papers regarding cognition or the ability to think well in chronic fatigue syndrome (ME/CFS). It covers what researcher studies tell us about cognitive problems in ME/CFS; what they are, how serious they are and what might be causing them. Cognitive […]

How Physical Therapists Are Getting It About Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in health Rising.   Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is pretty bleak. If a chronic fatigue syndrome (ME/CFS) patient doesn’t encounter […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy

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  By Cort Johnson in Health Rising.   Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, including one from a research […]

Changing Hearts And Minds: A Review Of Unrest

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  By Cort Johnson in Health Rising.   Unrest is about to spring into action. Scheduled to go into widespread theatrical release in dozens of theaters over the next couple of months: on Sept 22nd in the U.S. and Oct. in the U.K., Unrest is about to really make its mark. Jen Brea and her […]

Chronic Fatigue Syndrome Is…….

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  From Health Rising.   A Major Disorder “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009 The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For […]

The Time Is N.O.W. – National Women’s Advocacy Organization Joins The Fight For ME/CFS

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By Cort Johnson in Health Rising.   This one action demonstrates why it’s so important to have a full-time professional advocate for chronic fatigue syndrome (ME/CFS). The National Organization for Women (N.O.W.) is not a small organization; it has 550 chapters in all 50 states. It’s a natural ally for a disease that’s a) dominated […]

Facts: Chronic Fatigue Syndrome Is.. A Major Disorder

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From Health Rising:   “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009 The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For Disease Control (CDC) studies […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

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      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

Regular Use Of Saline May Reduce Symptoms, Boost Energy In POTS (and ME/CFS ?)

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    By Cort Johnson in Health Rising.   ME/CFS and POTS patients have used saline for years to feel better and recover from relapses. That’s really no surprise. The documented low blood volume in both groups suggests that saline would be an excellent temporary help. One chronic fatigue syndrome (ME/CFS) patient suffered a relapse […]

A Biomarker for Chronic Fatigue Syndrome (ME/CFS) ? Immunosignature Provides Another Possibility

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  By Cort Johnson in Health Rising.   A Different Look at the Immune System The ultimate goal of this work is the development of a non-subjective clinical tool for diagnosing patients with ME. Lombardi et. al.  Last month Health Rising looked at a potential ion channel biomarker coming out of the NCNED in Australia. […]

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