Health Rising

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

What If ME/CFS Is An Intelligent Process Gone Awry ?

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    By Veronique Mead M.D. in Health Rising.   Veronique had a very gradual onset of ME/CFS beginning in the 1990s when she was a family physician. Her symptoms worsened slowly over 10 years. At her worst activities such as sitting, standing, taking a shower, or talking exhausted her. She changed careers and has since discovered and […]

Cognition And Chronic Fatigue Syndrome (ME/CFS): Key Findings And Seminal Papers

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    By Cort Johnson in Health Rising.   This paper attempts to identify seminal papers regarding cognition or the ability to think well in chronic fatigue syndrome (ME/CFS). It covers what researcher studies tell us about cognitive problems in ME/CFS; what they are, how serious they are and what might be causing them. Cognitive […]

How Physical Therapists Are Getting It About Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in health Rising.   Immunologists aren’t interested. Neurologists, in general, are to be avoided. Endocrinologists can’t be bothered. Except for primary care physicians specializing in chronic fatigue syndrome (ME/CFS), the outlook in the medical field for ME/CFS patients is pretty bleak. If a chronic fatigue syndrome (ME/CFS) patient doesn’t encounter […]

Three NIH Funded ME/CFS Research Centers….And (What Else ?) A Controversy

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  By Cort Johnson in Health Rising.   Almost two years after Dr. Collins announced that the NIH would reinvigorate ME/CFS, the NIH has finally provided funding for three research centers and one data center. Earlier this year the ME/CFS research community surprised by submitting no less than 10 applications, including one from a research […]

Changing Hearts And Minds: A Review Of Unrest

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  By Cort Johnson in Health Rising.   Unrest is about to spring into action. Scheduled to go into widespread theatrical release in dozens of theaters over the next couple of months: on Sept 22nd in the U.S. and Oct. in the U.K., Unrest is about to really make its mark. Jen Brea and her […]

Chronic Fatigue Syndrome Is…….

Mental Health

  From Health Rising.   A Major Disorder “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009 The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For […]

The Time Is N.O.W. – National Women’s Advocacy Organization Joins The Fight For ME/CFS

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By Cort Johnson in Health Rising.   This one action demonstrates why it’s so important to have a full-time professional advocate for chronic fatigue syndrome (ME/CFS). The National Organization for Women (N.O.W.) is not a small organization; it has 550 chapters in all 50 states. It’s a natural ally for a disease that’s a) dominated […]

Facts: Chronic Fatigue Syndrome Is.. A Major Disorder

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From Health Rising:   “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009 The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For Disease Control (CDC) studies […]

The Scientist, The Seahorse And The Nanoneedle – Catching Up With Ron Davis On ME/CFS

Ron Davis

      By Cort Johnson in Health Rising.   The “most famous scientist in the world” visited Ron Davis and his End ME/CFS group a couple of weeks ago and gave the project a thumbs up. James Watson and Francis Crick produced arguably the single most important breakthrough in science in the past 100 […]

Regular Use Of Saline May Reduce Symptoms, Boost Energy In POTS (and ME/CFS ?)

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    By Cort Johnson in Health Rising.   ME/CFS and POTS patients have used saline for years to feel better and recover from relapses. That’s really no surprise. The documented low blood volume in both groups suggests that saline would be an excellent temporary help. One chronic fatigue syndrome (ME/CFS) patient suffered a relapse […]

A Biomarker for Chronic Fatigue Syndrome (ME/CFS) ? Immunosignature Provides Another Possibility

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  By Cort Johnson in Health Rising.   A Different Look at the Immune System The ultimate goal of this work is the development of a non-subjective clinical tool for diagnosing patients with ME. Lombardi et. al.  Last month Health Rising looked at a potential ion channel biomarker coming out of the NCNED in Australia. […]

Treating Chronic Fatigue Syndrome (ME/CFS): The IACFS/ME Conference Overviews Part V

Cort Johnson

    By Cort Johnson in Health Rising.   Treatments are, of course, where the rubber meets the road. The Oct 2016 conference featured a different chemotherapy/autoimmune drug that appears to be helping, a drug that helped one ME/CFS/POTS patient to fully recover, how exercise tests may be uncovering drug combinations to prevent PEM, a […]

The IACFS/ME 2016 Conference Overviews #1: Energy And Exercise To The Fore

Cort Johnson

  By Cort Johnson in Health Rising.   The wind blew like mad all four days of the conference. Maybe those are winds of change… A sense of excitement and hope I hadn’t seen before pervaded this conference.  More than anything else, this was a conference of possible beginnings. Fields of inquiry such as metabolomics are being […]

The “Starvation” Disease? Metabolomics Meets Chronic Fatigue Syndrome Down Under

Cort Johnson

    By Cort Johnson in Health Rising. “The pathological nature of the fatigue experienced by ME/CFS sufferers is its inexplicable persistence, severity and its inability to be sufficiently relieved by rest.” Armstrong et. al. The Naviaux metabolomics study with its findings suggesting that a hypometabolic state is present in chronic fatigue syndrome was thrilling, […]

Researchers Call For More In-Depth Mitochondrial Testing In Chronic Fatigue Syndrome (ME/CFS)

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  By Cort Johnson in Health Rising. A letter to the editor of the BioMed Central Journal urged more in depth mitochondrial testing than has been done be done in ME/CFS. The letter referred to a study done by an ME/CFS researcher, Maureen Hanson, and funded by the Chronic Fatigue Initiative. The CFI is very […]

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