Invest in ME Research

Raising Funds For Invest In ME Research – At No Cost To You !

GoRaise

An easy way to raise funds for Invest in ME Research without it costing you a penny. Who says you don’t get owt for nowt ? There are over 3,000 retailers at GoRaise who will donate to Invest in ME Research every time you shop with them via our link at the top of this […]

The SMILE Trial And Its Not-So-Happy Aftermath – A Statement From Invest In ME Research

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  From Invest in ME Research.   Invest in ME Research has never approved of the Lightning Process (LP) business and its model of operation where former ‘recovered’ patients pay a lot of money to become practitioners of this Trade Mark training programme. We view this as a pyramid business – unregulated, unaccountable and unscientific. […]

Mike’s EU Marathons For Invest In ME Research – Vilnius (10.09.17)

Mike Vilnius

  By Mike Harley.   Prior to flying out to Vilnius for number 12 of 28 I was contacted by a Lithuanian sports journalist working for the marathon who was keen to interview me.  I thought our interview would be used on the marathon website but it actually made it into Lithuania’s main newspaper and site, […]

Mike Harley’s 26 EU Marathons For Invest In ME Research – Lithuania Sunday 10 September 2017

Mike Harley Luxembourg 27 May 2017

  Mike Harley is running an amazing 26 Marathons across Europe to raise awareness of ME, and funds for Invest in ME Research. Next one up, his 12th, is on Sunday 10th of September 2017 in Vilnius in Lithuania. A part of what Mike does is to get in touch with locals in the area […]

Invest In ME Research Fund Update

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      Invest in ME Research has now reached the target set for the B-cell/rituximab fund. This is another major target reached and is a wonderful achievement by dedicated supporters and friends across the world. The total of funds raised or pledged for B-cell/rituximab projects is £520,000. From this the charity has already funded […]

NICE Guidelines Consultation – Misinformed Or Cynical ?

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  From Invest in ME Research.   The NICE decision “to not update the NICE guideline on chronic fatigue syndrome/myalgic encephalomyelitis” at this time seems to be an error of judgement based on misinformation. That is clearly so. Yet on delving deeper one begins to see something more from what must have been a pre-determined decision made […]

Response To NICE 10 Year Surveillance (2017) – Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

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  From Invest in ME Research.   Response by Invest in ME – First Thoughts Invest in ME Research have submitted a response to the request for comments on the NICE guideline on CG53 Chronic fatigue syndrome/myalgic encephalomyelitis: diagnosis and management Surveillance proposal consultation document. Invest in ME Research submitted a response in excess of […]

Invest In ME Research

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A new update for the research projects being performed and planned at the UK Centre of Excellence for ME hub in Norwich Research Park brings the total raised so far for projects there to £195,000. Along with the other funds we have established the charity and supporters have raised in excess of £700,000 for biomedical research […]

The York ME Community – Inter-Company Fantasy Football League For The York ME TGA Shield

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies have enjoyed a great 2016/17 season with Bransby Wilson coming out on top and winning […]

Failings Of The Establishment Organisations Toward People With ME

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  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

Funding Biomedical Research Into ME

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  From Invest in ME Research.   An update to our gut microbiota and related projects being performed at the UK Centre of Excellence for ME in Norwich Research Park brings the total raised so far for projects there to £186,000. Thanks to our supporters maintaining the momentum in establishing this major UK and European […]

Mike Harley’s 28 Marathons For Invest In ME Research

Mike in Brussels

    The York ME Community would like to wish Mike Harley good luck as he runs the Barcelona Marathon this weekend in aid of Invest in ME Research, and to help raise ME Awareness. To read more on Mike’s amazing achievements so far, hit the link at the top of this site.

Invest in ME Research – Integrity in Media and Research

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    A week can be a long time in ME. Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for some years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it has suddenly […]

ME/CFS Talks Held In Norwich

Institute of Food Research

From The Institute of Food Research.   An event held in Norwich in January 2017 gave the public a chance to hear about some of the biomedical research being undertaken on the debilitating condition ME (Myalgic Encephalomyelitis). The event was hosted by IFR and Invest in ME Research, a charity promoting biomedical research and education into […]

Biomedical Research Into ME Colloquium 7 – 31st May – 1st June 2017

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  Our international conferences and research colloquiums are annual events which are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. All conferences have been held in London and have been CPD-accredited. Our conference trailer below was made to celebrate our tenth year as a […]

What is ME ?

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    ME – What it IS… Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS, Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection […]

A Summit Of CMOs For ME

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  From Invest in ME Research.   Invest in ME Research is already approaching the issues around ME with an international context. We have already engaged with researchers and clinicians in other countries. So in this discussion we can also use the knowledge and collaborative activities from discussions the charity has had with all of […]

Invest In ME Research

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    Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We aim to do this by identifying the three key areas to concentrate our efforts on – funding for biomedical research, […]

Invest In ME Research

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  Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We aim to do this by identifying the three key areas to concentrate our efforts on – funding for biomedical research, education […]

Response To “Why We Are Supporting The MEGA Research Project” Action for ME Nov22/2016

Omega

    By James David Chapman   MEGA: I will not support CFS researchers who refuse to discuss CFS research. I do not believe science and “patient engagement” is served when patients’ questions are blocked.  The continued joint silence over Pace gives me no confidence in the MEGA trial proposals. People with M.E (pwme) have […]

Dr Øystein Fluge To Give Public Talk In Norwich

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  From Invest in ME Research.   We are pleased to announce that Dr Øystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be giving a public lecture in Norwich on 26th January 2017. The lecture will take place at The Assembly House, Norwich beginning at 18.30. More details will be […]

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