Invest in ME Research

The York ME TGA Inter-Company Fantasy Football League

Football

The York ME TGA Inter-Company Fantasy Football League   The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 to 1,000 people of all ages in the York area alone. Companies enjoyed […]

Meet The Researchers Behind A New Trial Into ME

Research

    The Quadram Institute on the Norwich Research Park is holding a public meeting to talk about their ongoing research into myalgic encephalomyelitis (ME or ME/CFS). The event will also be a chance to give your opinions about the planned future clinical trial into a new form of treatment that targets gut microbes for […]

UK Charity Pledges £500,000 For Research Into ME In Norwich Research Park

Research Study

    From The Quadram Institute.   UK Charity Invest in ME Research is pledging £500,000 for continued research into the disease myalgic encephalomyelitis (ME or ME/CFS) in Norwich Research Park, UK (NRP). This major investment builds on the foundations already made for a UK/European Centre of Excellence for ME research hub in Norwich Research Park. The […]

The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield – Update

Football

  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility. This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone. Of those around York, 200 are likely to be severe, meaning house or bed bound.   […]

Phoebe & Georgina’s Sponsored Kayak !

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    By Georgina & Phoebe in Let’s Do It for Myalgic Encephalomyelitis.   Even a live Second World War grenade  couldn’t stop us! On Sunday the 28th of July we began our quest to conquer a 25 mile kayak to raise money for Invest In ME Research. This journey consisted of a very early start, […]

8 Years Doing It For ME !

Invest In ME

    If you have been with us from the start then please congratulate yourself on your part in changing the landscape of research and future treatment of ME in UK and beyond! Also please accept our massive thanks for your ongoing support to help the charity Invest in ME Research achieve so much. If you are […]

Invest In ME Research Newsletter July 2019

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Invest in ME Research is an independent UK charity campaigning for and facilitating biomedical research into myalgic encephalomyelitis (ME). More details of the charity are here.   Clinical trial at Quadram At the IIMEC14 international conference in London in May Professor Simon Carding from Quadram Institute announced the intention to conduct a clinical trial for ME in Norwich […]

THE YORK ME COMMUNITY INTER COMPANY FANTASY FOOTBALL LEAGUE

Football

THE YORK ME COMMUNITY INTER COMPANY FANTASY FOOTBALL LEAGUE   It’s not only the Premier League that won’t be decided until the last day ! Our Inter Company Fantasy Football League which involves local businesses supporting ME Awareness will also be decided this weekend.   You might have missed out on your chance over the […]

Mike Harley’s Marathons For ME

Mike Harley

  Good luck to Mike Harley who is running 28 Marathons across Europe to raise Awareness and funds for Invest In ME Research.   On Sunday the 17th of March he will be running the Cyprus Marathon.   As always, a huge thanks from everyone in The York ME Community  Mike ! See the tab […]

There Is Something Right In The State Of Denmark

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        From Invest In ME Research.   Following excellent work by European ME Alliance-Denmark member Dansk ME Foreningen, and work and input by those such as European ME Clinicians Council member Dr Jesper Mehlsen, there is now unified support in the Danish parliament for separating ME G93.3 from Functional Disorders and acknowledgment […]

The York ME Community – York Inter Company Fantasy Football League For The York ME TGA Shield

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,000 people in the UK, and 800 in the York area alone.  Of those around York, 200 are likely to be severe, meaning house or bed bound. On […]

A Continuing Saga Of Ineptitude

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From Invest In ME Research.   Comment After failing ME patients for so many years with their guidelines, and despite being taken to a judicial review (by patients), and despite the NICE guidelines director seeming to admit that the current guidelines were unfit for purpose, NICE were able to begin afresh and really concentrate on […]

Mike’s EU Marathons For Invest In ME Research – Bulgaria Report

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By Mike Harley.   Just 5 weeks after Tallinn, I travelled to Sofia in Bulgaria to run their city marathon for number 19 of 28.  With Cat 38 weeks pregnant I had expected to be going solo but one of my good mates, Mike Ward, volunteered to come with me.  I tried hard to find a […]

Join Team IiMER Royal Parks Half Marathon October 2018

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    From Invest in ME Research.   Invest in ME Research has secured FIFTEEN places in the London Royal Parks Half Marathon on Sunday 14th October 2018 and some are still available. If anyone you know may be willing and able to join Team IiMER 2018 in this event then details are at: investinme.org/IIMER-Newslet-1801-02.shtml This will be […]

Parliamentary Debate On ME Research And Treatment

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  From Invest In ME Research.   A parliamentary debate on the research and treatment of Myalgic Encephalomyelitis (ME) secured by Carol Monaghan MP for Glasgow North West was held on Thursday 21 June 2018 at 1.30-4.30pm in Westminster Hall. The request for debate was raised with cross-party support at a Back Bench Committee Meeting […]

Centre Of Excellence For ME

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  This page is for the researchers funded by IiMER to communicate what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with patients and the public. We hope this will help more people understand ME and the possibilities and […]

Invest In ME Research Biomedical Research Into ME (BRMEC) Colloquiums

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The Invest in ME Research Biomedical Research into ME (BRMEC) Colloquiums are research meetings organised by the charity to encourage biomedical research into ME and international collaboration amongst researchers. This has been one of the main objectives of the charity. Invest in ME Research began arranging biomedical research conferences in our first year and have continued them […]

Mike Harley’s EU Marathons For Invest In ME Research – Denmark

Denmark

  By Mike Harley.   I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen.  Here’s what they told me about living with ME in Denmark. For Danish translations click here Rebecca Hansen​ ​ Can you give us an overview of what life is like for ME patients in […]

Royal Parks Half Marathon

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  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

Mike’s EU Marathons For Invest In ME Research – Austria

Austria

  AUSTRIA I’ve interviewed 3 people with ME in Austria who have given me their account of life there with the illness. How did you get ill and how were you diagnosed? Sebastian:  Probably following an EBV infection at elementary school age. Sonja:  I had neuroborreliosis from 2011-2014, after which I was fine for 1 year. When […]

Raising Awareness Of ME In The Heart Of London – The Royal Parks Half Marathon

Run

  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

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