Invest in ME Research

NICE Guidelines Consultation – Misinformed Or Cynical ?

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  From Invest in ME Research.   The NICE decision “to not update the NICE guideline on chronic fatigue syndrome/myalgic encephalomyelitis” at this time seems to be an error of judgement based on misinformation. That is clearly so. Yet on delving deeper one begins to see something more from what must have been a pre-determined decision made […]

Response To NICE 10 Year Surveillance (2017) – Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

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  From Invest in ME Research.   Response by Invest in ME – First Thoughts Invest in ME Research have submitted a response to the request for comments on the NICE guideline on CG53 Chronic fatigue syndrome/myalgic encephalomyelitis: diagnosis and management Surveillance proposal consultation document. Invest in ME Research submitted a response in excess of […]

Invest In ME Research

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A new update for the research projects being performed and planned at the UK Centre of Excellence for ME hub in Norwich Research Park brings the total raised so far for projects there to £195,000. Along with the other funds we have established the charity and supporters have raised in excess of £700,000 for biomedical research […]

The York ME Community – Inter-Company Fantasy Football League For The York ME TGA Shield

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies have enjoyed a great 2016/17 season with Bransby Wilson coming out on top and winning […]

Failings Of The Establishment Organisations Toward People With ME

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  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

Funding Biomedical Research Into ME

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  From Invest in ME Research.   An update to our gut microbiota and related projects being performed at the UK Centre of Excellence for ME in Norwich Research Park brings the total raised so far for projects there to £186,000. Thanks to our supporters maintaining the momentum in establishing this major UK and European […]

Mike Harley’s 28 Marathons For Invest In ME Research

Mike in Brussels

    The York ME Community would like to wish Mike Harley good luck as he runs the Barcelona Marathon this weekend in aid of Invest in ME Research, and to help raise ME Awareness. To read more on Mike’s amazing achievements so far, hit the link at the top of this site.

Invest in ME Research – Integrity in Media and Research

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    A week can be a long time in ME. Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for some years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it has suddenly […]

ME/CFS Talks Held In Norwich

Institute of Food Research

From The Institute of Food Research.   An event held in Norwich in January 2017 gave the public a chance to hear about some of the biomedical research being undertaken on the debilitating condition ME (Myalgic Encephalomyelitis). The event was hosted by IFR and Invest in ME Research, a charity promoting biomedical research and education into […]

Biomedical Research Into ME Colloquium 7 – 31st May – 1st June 2017

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  Our international conferences and research colloquiums are annual events which are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. All conferences have been held in London and have been CPD-accredited. Our conference trailer below was made to celebrate our tenth year as a […]

What is ME ?

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    ME – What it IS… Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS, Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection […]

A Summit Of CMOs For ME

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  From Invest in ME Research.   Invest in ME Research is already approaching the issues around ME with an international context. We have already engaged with researchers and clinicians in other countries. So in this discussion we can also use the knowledge and collaborative activities from discussions the charity has had with all of […]

Invest In ME Research

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    Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We aim to do this by identifying the three key areas to concentrate our efforts on – funding for biomedical research, […]

Invest In ME Research

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  Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We aim to do this by identifying the three key areas to concentrate our efforts on – funding for biomedical research, education […]

Response To “Why We Are Supporting The MEGA Research Project” Action for ME Nov22/2016

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    By James David Chapman   MEGA: I will not support CFS researchers who refuse to discuss CFS research. I do not believe science and “patient engagement” is served when patients’ questions are blocked.  The continued joint silence over Pace gives me no confidence in the MEGA trial proposals. People with M.E (pwme) have […]

Dr Øystein Fluge To Give Public Talk In Norwich

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  From Invest in ME Research.   We are pleased to announce that Dr Øystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be giving a public lecture in Norwich on 26th January 2017. The lecture will take place at The Assembly House, Norwich beginning at 18.30. More details will be […]

Landmark Day For Research Funding

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  From Invest in ME Research.   Today we reach a landmark day in our B-cell/rituximab research project where the total in donations and pledges has reached £1/2 million. This is a phenomenal achievement for the charity and its team of supporters. Congratulations to everyone on this fantastic news. In a comparatively short period of […]

UK Rituximab Trial Update

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    We are pleased to announce that Dr Oystein Fluge and his team from Haukeland University Hospital in Bergen, Norway, will be visiting the Norwich Centre to continue and extend the collaboration between IiME-funded researchers as the plans for the UK rituximab trial develop. Already the IiME funded researchers have been collaborating with Dr […]

“Biomarker Research Advances In ‘Chronic Fatigue Syndrome’ ”

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  by Miriam Tucker, 8th November 2016   According to Professor Anthony Komaroff, Professor of Medicine at Harvard, studies over the last decade point to the biological underpinnings of ME/CFS. At the biennial International Association for CFS/ME Conference in Fort Lauderdale (27th-30th October 2016), more than 100 papers were presented that further contribute to the […]

A Foundation For Biomedical Research Into ME

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  Invest in ME Research are pleased to announce that it has been awarded an Awards for All grant to support our proposal for a Centre of Excellence for ME.   The charity will use the funding to create a business plan for the development of a dedicated Centre of Excellence for ME. We will […]

The Results They Really Didn’t Want You To See: Key ME/CFS Trial Data Released

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    By Conrad Bower in The Canary.   Researchers at Queen Mary University of London (QMUL), have been ordered to release a full data from a controversial ME/CFS (myalgic encephalomyelitis/ chronic fatigue syndrome) study known as the PACE trial. A preliminary analysis of the data reveals a shocking difference to the original published results, […]

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