Invest in ME Research

Join Team IiMER Royal Parks Half Marathon October 2018

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    From Invest in ME Research.   Invest in ME Research has secured FIFTEEN places in the London Royal Parks Half Marathon on Sunday 14th October 2018 and some are still available. If anyone you know may be willing and able to join Team IiMER 2018 in this event then details are at: investinme.org/IIMER-Newslet-1801-02.shtml This will be […]

Parliamentary Debate On ME Research And Treatment

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  From Invest In ME Research.   A parliamentary debate on the research and treatment of Myalgic Encephalomyelitis (ME) secured by Carol Monaghan MP for Glasgow North West was held on Thursday 21 June 2018 at 1.30-4.30pm in Westminster Hall. The request for debate was raised with cross-party support at a Back Bench Committee Meeting […]

Centre Of Excellence For ME

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  This page is for the researchers funded by IiMER to communicate what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with patients and the public. We hope this will help more people understand ME and the possibilities and […]

Invest In ME Research Biomedical Research Into ME (BRMEC) Colloquiums

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The Invest in ME Research Biomedical Research into ME (BRMEC) Colloquiums are research meetings organised by the charity to encourage biomedical research into ME and international collaboration amongst researchers. This has been one of the main objectives of the charity. Invest in ME Research began arranging biomedical research conferences in our first year and have continued them […]

Mike Harley’s EU Marathons For Invest In ME Research – Denmark

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  By Mike Harley.   I spoke to Rebecca Hansen from the Danish ME Association ME Foreningen and severe ME patient Kamilla Thomsen.  Here’s what they told me about living with ME in Denmark. For Danish translations click here Rebecca Hansen​ ​ Can you give us an overview of what life is like for ME patients in […]

Royal Parks Half Marathon

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  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

Mike’s EU Marathons For Invest In ME Research – Austria

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  AUSTRIA I’ve interviewed 3 people with ME in Austria who have given me their account of life there with the illness. How did you get ill and how were you diagnosed? Sebastian:  Probably following an EBV infection at elementary school age. Sonja:  I had neuroborreliosis from 2011-2014, after which I was fine for 1 year. When […]

Raising Awareness Of ME In The Heart Of London – The Royal Parks Half Marathon

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  From Invest in ME Research.   Invest in ME Research have secured FIFTEEN places in the Royal Parks Half Marathon on Sunday 14th October 2018. This will be another great opportunity for the charity to raise awareness of its strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME – […]

Mike’s EU Marathons For Invest In ME Research – Malta

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    By Mike Harley.   I made contact with the Malta ME, CFS and Fibromyalgia Alliance before flying out for number 15 of 28, here’s what they told me about life in Malta with ME.  I had lots of great support from the group and they managed to get the challenge featured in Lovin Malta alongside the coverage I managed […]

Removing Isolation From Young People With ME

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  Background Invest in ME Research concentrates much effort on finding, funding and facilitating biomedical research into myalgic encephalomyelitis (ME) as this, we believe, provides the only means to resolve the situation in which millions of people find themselves. A disease such as ME presents many challenges to a patient and to a family. It […]

Rituximab Trial And Research

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  From Invest In ME Research.   Statement Following Preliminary Phase III Rituximab Clinical trial Results from Norway Following the preliminary results which Professor Olav Mella recently publicly released from the Phase III multi-centre double-blinded placebo-controlled Rituximab Clinical Trial (see statement 21st November 2017) the charity has had discussions with advisors and researchers and has now […]

ME/Chronic Fatigue Syndrome

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  From The Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

Letters To Professor Mark Baker At NICE

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  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis click here This pdf is an easier format to read is here. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME […]

A Letter To Professor Mark Baker – Centre For Guidelines Director, National Institute For Health And Care Excellence

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  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME it has, in our opinion, been necessary to make one […]

Mike’s EU Marathons for ME – Malta

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  MALTA I’ve been speaking to the Malta ME, CFS & Fibromyalgia Alliance about ME there and here’s a summary of my findings from talking with them and my own research. Number of ME patients in Malta There is no study or any estimates to show or at least a demarcation if there ever was […]

Rituximab Trial Status November 2017

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  From the Let’s do it for ME website.   Surprising news from Norway today, but the ground-breaking work continues in UK thanks to all involved and everyone supporting Invest in ME Research, so please don’t be too disappointed, as the charity explains in the following statement published today and reposted below. Professor Olav Mella […]

13th Invest In ME Research International ME Conference

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  IIMEC13 This annual international, CPD accredited research conference provides a platform for the latest and most promising biomedical research into ME. IIMEC13 will be the thirteenth conference and regularly attracts researchers, clinicians, doctors, nurses, occupational therapists, healthcare professionals and patient groups twenty countries from around the world. The conference is a full day event […]

Fund Update For COFE B-Cell/Rituximab Research

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  From Invest in ME Research.   Invest in ME Research has now reached the target set for the B-cell/rituximab fund. This is another major target reached and is a wonderful achievement by dedicated supporters and friends across the world. The total of funds raised or pledged for B-cell/rituximab projects is £520,000. From this the […]

Raising Funds For Invest In ME Research – At No Cost To You !

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An easy way to raise funds for Invest in ME Research without it costing you a penny. Who says you don’t get owt for nowt ? There are over 3,000 retailers at GoRaise who will donate to Invest in ME Research every time you shop with them via our link at the top of this […]

The SMILE Trial And Its Not-So-Happy Aftermath – A Statement From Invest In ME Research

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  From Invest in ME Research.   Invest in ME Research has never approved of the Lightning Process (LP) business and its model of operation where former ‘recovered’ patients pay a lot of money to become practitioners of this Trade Mark training programme. We view this as a pyramid business – unregulated, unaccountable and unscientific. […]

Mike’s EU Marathons For Invest In ME Research – Vilnius (10.09.17)

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  By Mike Harley.   Prior to flying out to Vilnius for number 12 of 28 I was contacted by a Lithuanian sports journalist working for the marathon who was keen to interview me.  I thought our interview would be used on the marathon website but it actually made it into Lithuania’s main newspaper and site, […]

Mike Harley’s 26 EU Marathons For Invest In ME Research – Lithuania Sunday 10 September 2017

Mike Harley Luxembourg 27 May 2017

  Mike Harley is running an amazing 26 Marathons across Europe to raise awareness of ME, and funds for Invest in ME Research. Next one up, his 12th, is on Sunday 10th of September 2017 in Vilnius in Lithuania. A part of what Mike does is to get in touch with locals in the area […]

Invest In ME Research Fund Update

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      Invest in ME Research has now reached the target set for the B-cell/rituximab fund. This is another major target reached and is a wonderful achievement by dedicated supporters and friends across the world. The total of funds raised or pledged for B-cell/rituximab projects is £520,000. From this the charity has already funded […]

NICE Guidelines Consultation – Misinformed Or Cynical ?

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  From Invest in ME Research.   The NICE decision “to not update the NICE guideline on chronic fatigue syndrome/myalgic encephalomyelitis” at this time seems to be an error of judgement based on misinformation. That is clearly so. Yet on delving deeper one begins to see something more from what must have been a pre-determined decision made […]

Response To NICE 10 Year Surveillance (2017) – Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

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  From Invest in ME Research.   Response by Invest in ME – First Thoughts Invest in ME Research have submitted a response to the request for comments on the NICE guideline on CG53 Chronic fatigue syndrome/myalgic encephalomyelitis: diagnosis and management Surveillance proposal consultation document. Invest in ME Research submitted a response in excess of […]

Invest In ME Research

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A new update for the research projects being performed and planned at the UK Centre of Excellence for ME hub in Norwich Research Park brings the total raised so far for projects there to £195,000. Along with the other funds we have established the charity and supporters have raised in excess of £700,000 for biomedical research […]

The York ME Community – Inter-Company Fantasy Football League For The York ME TGA Shield

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  The York ME Community runs an Inter-Company Fantasy Football League sponsored by TGA Mobility.  This is to help raise awareness of the illness that affects around 250,00 people in the UK, and 800 in the York area alone. Companies have enjoyed a great 2016/17 season with Bransby Wilson coming out on top and winning […]

Failings Of The Establishment Organisations Toward People With ME

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  From Invest in ME Research.   It may have escaped the notice of some that the MRC is preparing to be absorbed into the new UK Research and Innovation (UKRI) and the existing CEO, Sir John Savill, will be winding down affairs until the transition is completed. Link to Appointment notification We have stated […]

Funding Biomedical Research Into ME

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  From Invest in ME Research.   An update to our gut microbiota and related projects being performed at the UK Centre of Excellence for ME in Norwich Research Park brings the total raised so far for projects there to £186,000. Thanks to our supporters maintaining the momentum in establishing this major UK and European […]

Mike Harley’s 28 Marathons For Invest In ME Research

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    The York ME Community would like to wish Mike Harley good luck as he runs the Barcelona Marathon this weekend in aid of Invest in ME Research, and to help raise ME Awareness. To read more on Mike’s amazing achievements so far, hit the link at the top of this site.

Invest in ME Research – Integrity in Media and Research

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    A week can be a long time in ME. Although Invest in ME Research has been highlighting plans to establish a Centre of Excellence for ME for some years, and although our supporters have been raising funds for the UK rituximab trial since we announced plans for that in 2013, it has suddenly […]

ME/CFS Talks Held In Norwich

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From The Institute of Food Research.   An event held in Norwich in January 2017 gave the public a chance to hear about some of the biomedical research being undertaken on the debilitating condition ME (Myalgic Encephalomyelitis). The event was hosted by IFR and Invest in ME Research, a charity promoting biomedical research and education into […]

Biomedical Research Into ME Colloquium 7 – 31st May – 1st June 2017

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  Our international conferences and research colloquiums are annual events which are designed to bring together researchers, clinicians, patient groups and patients/carers in order to make progress in research into ME. All conferences have been held in London and have been CPD-accredited. Our conference trailer below was made to celebrate our tenth year as a […]

What is ME ?

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    ME – What it IS… Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS, Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection […]

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