Invisible Illness

Invisible Disabilities: Just Because You Can’t See it Doesn’t Mean it’s Not Real

Invisible Illness

  From Healthy Living Facts.   Have you ever heard diseases like fibromyalgia called an “invisible disability?” Essentially, invisible disabilities are conditions that can’t be seen but still have serious effects on your ability to live a normal life. The term makes a distinction between conditions like cerebral palsy, where the effects of the disability are […]

‘Invisible’ Disabilities: Car Park Confrontation Prompts Call For Greater Recognition

Invisible Illness

By Laura Collins and Lucy Robinson in ABC.Net Australia.   Fed up with judgemental looks, comments and confrontations, a young South Australian woman living with a debilitating disease is calling for more recognition of ‘invisible’ disabilities. Key points: Sarah Larcombe has undergone seven major surgeries in nine years She has a disability permit and is […]

Friends In Australia’s Parliament For People With ME And Chronic Fatigue Syndrome

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  By Sasha Nimmo in ME Australia.   Three senators have formed Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia’s federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John,  Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a […]

Northern Rail ‘Sorry’ Over Mobility Scooter Mishap

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  From BBC News.   Northern Rail has apologised after a passenger who is disabled was told she could not travel with her mobility scooter despite being sold a ticket. The 31-year-old, who has autism and the debilitating Ehlers-Danlos syndromes, filmed her experience on board a train on her way to a wedding on Thursday. […]

This Teenage Girl Just Made A Vital Point About ‘Invisible Illness’

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    From indy100.   It’s worth remembering that not all illnesses are visible. Yasmin Swift, a 19-year-old hairdresser from Ashford, Kent, knows this all too well; around seven months ago, she was diagnosed with idiopathic pulmonary arterial hypertension, a rare lung disorder whose cause is unknown. Symptoms vary in terms of severity, but they can […]

What I Wish People Knew About My Illness, Even When I Look Fine

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  By Deema H in The Mighty.   I haven’t quite decided what I think is worse: living with a chronic illness or living with an invisible chronic illness. I’ve come to find people don’t realize it’s offensive, not a compliment, to say, “But you don’t look sick!” Let me tell you something: Looking healthy doesn’t make […]

Disabilities Are Not Always Obvious. Don’t Judge Us Without Knowing The Full Story

Disability Dice

  By Nia Sims in The Guardian.   Too many of my friends have told me of being abused by strangers when using an accessible (or “disabled”) parking space. Sometimes there is a note left under the windscreen wiper – “you should be ashamed of yourself, I saw you and there’s nothing wrong with you. […]

Disabled Woman Says Stansted Airport Refused To Offer Her Help Because She ‘Didn’t Look Ill’

Air Travel

  By Julia Buckley in The Independent.   A disabled passenger has branded Stansted Airport staff “disgusting” after she was denied assistance because she “didn’t look disabled”. Nathalie Allport-Grantham, 23, was flying to Nice with Ryanair on 31 December when a member of staff refused her the assistance she had confirmed ahead of her flight. She had […]

Thousands Share Their Invisible Disabilities On Twitter

Invisible Illness

  From BBC News.   Using the hashtag #InvisiblyDisabledLooksLike, Twitter users across the world with hidden disabilities have been sharing pictures and stories to challenge society’s perceptions. Many people live with hidden disabilities – a physical, mental, sensory or neurological condition which don’t have physical signs but are painful, exhausting and isolating. They must also deal […]

‘But You Don’t Look Disabled ?’ What Living With An Invisible Disability Is Really Like

Invisible Illness

  By Mared Parry in The Tab.   I shouldn’t have to prove I’m disabled by showing my scars If you were sat opposite me on the train or if you looked at my Instagram, you’d never guess I’m disabled. You’d never guess I had major surgery three weeks ago, or that I’ve been having […]

Using Mobility Aids When You Have An Invisible Illness

Invisible Illness

    “What happened to you, then?” There’s no ideal time to acquire a long-term chronic illness, but becoming disabled halfway through your undergraduate degree has to be up there in the Least Convenient Life Situations list. Adapting to the student experience whilst learning to live with a painful and debilitating neurological condition isn’t a […]

10 Mic-Drop Replies For Every Time Someone Doubts Your Illness

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  by Elaine Atwell in Healthline.   If you’ve ever had to explain your medical condition to a stranger, you’ve probably experienced the wide-eyed pity, the awkward silence, and the “Oh yeah, my cousin has that” comment. But the most frustrating experience of all may be when you patiently explain your condition to someone, and […]

5 Reasons Unsolicited Medical Advice Hurts More Than It Helps

Advice

    By Saidee Wynn in The Mighty.   Look, I get it. You see someone hurting and you want to help them. Maybe you were sick once but because you tried x-supplement or y-exercise and you now feel better – and that’s great. I’m happy for you, really, I am. And I appreciate the […]

The Challenge Of Explaining How I Feel As Someone With CFS/ME

Invisible Illness

    By Emma England in The Mighty.   One of the most frustrating things about living with CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) is that most of the time, I don’t “look” ill, and so people may not understand the fact that there’s anything wrong with me. CFS/ME falls into the category described as “invisible […]

The Psychology Of Hidden Disability

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    By Katherine Bouton in Psychology Today.   My hidden disability is hearing loss, but the psychological, emotional, and professional ramifications I experience are true for anyone with a hidden disability. Most hidden disabilities are considered in some way shameful or devaluing. Hearing loss is seen as a sign of aging and is often […]

Learning To Be ‘OK’ With Where My Health Is Right Now

Invisible Illness

    By Savanna Sheilds in The Mighty.   Growing up, I had the world at my feet. I made good grades, competed in a variety of extracurricular activities, and made good choices in order to get into college and someday have the idyllic American life. I was planning on graduating college, getting hired immediately […]

What Does ‘Fighting’ Really Mean When You Are Severely Disabled?

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  By Rachel Higginson in The Mighty.   Grab the cuppa of your choice, and make yourself comfy, this is a long one. But it may also be the most important and passionate thing I’ve written. I love Dylan Thomas’ poem “Do Not Go Gentle.”  I know, I know, it’s about death, but actually I […]

What I Really Mean When I Say ‘I’m Fine’ As Someone With Chronic Illness

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    By Lana Barhum in The Mighty.   Living with chronic illness and pain is something that isn’t easily understood by people who are not going through the same thing. Moreover, the effects of illness are an emotional and personal daily battle. Many people have this notion that if you look fine, you are feeling […]

10-Year-Old Designs Bathroom Sign For People With Invisible Conditions

Iain Gray MSP and 10 year old Grace Warnock, a school pupil from Prestonpans in East Lothian, unveil a new disabled toilet signs, designed by Grace, which is now in place at the Scottish Parliament’s accessible toilets. Grace has Crohn's Disease and, like many other people, uses accessible toilets as they provide the space and facilities to manage the requirements of her condition. Grace came up with the idea of this sign to show that people might not have a visible disability, but may still require to use an accessible toilet. 12 march 2016.  Pic - Andrew Cowan/Scottish Parliament

Story from The Mighty.   Grace Warnock is only 10, but she’s perceptive. She easily picked up on judgmental looks from strangers when she would use public bathrooms for people with disabilities. Grace has Crohn’s disease, an inflammatory bowel disease you can’t see from the outside. The condition can be painful and requires her to make […]

Shadow Minister Set For Disability Equality Road Trip

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Story by John Pring in Disability News Service.   A Labour shadow minister is to travel the country to ask disabled people for their help in designing a 21st-century social security system. Debbie Abrahams, the shadow minister for disabled people, launched her “disability equality roadshow” last week at a parliamentary event held to mark the […]

Chronic Fatigue Syndrome Research Gains Funding, And Controversy

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An article by Miriam E Tucker People who suffer from the condition known as chronic fatigue syndrome are accustomed to being dismissed by health care professionals and to only occasional mentions of their condition in the media. These past few weeks have been a notable exception, but with quite different conversations going on in the […]

Man With Crohn’s Disease Writes Powerful Facebook Post To People Challenge Him For Using Disabled Facilities

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A man has published an incredibly brave and personal post explaining why people should think before they judge him for using disabled facilities. Ste Walker, 24, suffers from Crohn’s disease and, as a result, sometimes has to use disabled toilets or parking spaces. But because his illness is easily hidden and he looks “normal” on […]

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