Invisible Illnesses

My Disabilities Are Invisible. I Shouldn’t Have To Prove Them To Strangers

Invisible Illness

    By Isabelle Jani-Friend in The Guardian.   I was recently on a packed Central line train into London. Luckily, I managed to take the last priority disabled seat. My osteoporosis and the fatigue I experience meant it would be hard for me to stand for the 40-minute journey to Oxford Circus. I felt a sense […]

‘But You Don’t Look Sick’: Living With An Invisible Disability

Invisible Illness

    By Nicole Precel in The Sydney Morning Herald.   When Rebecca Young parks her car in a disabled parking spot she often feels the searing stares. Is she driving her grandparents’ car? Why does she have a disability sticker when she is aged in her 30s and appears to walk perfectly well? Ms […]

The Importance Of Accurate Diagnosis Of ME/CFS In Children And Adolescents: A Commentary

childcare

    By Keith James Geraghty and Charles Adeniji in Frontiers.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes a range of debilitating symptoms. While most research has focused on adults, the illness also presents in children and adolescents. Many physicians find it difficult to diagnose the illness. In this commentary […]

My Disabilities Are Invisible. I Shouldn’t Have To Prove Them To Strangers

Invisible Illness

  By Isabelle Jani-Friend in The Guardian.   I was recently on a packed Central line train into London. Luckily, I managed to take the last priority disabled seat. My osteoporosis and the fatigue I experience meant it would be hard for me to stand for the 40-minute journey to Oxford Circus. I felt a […]

20 ‘Comebacks’ To Use When A Doctor Isn’t Taking You Seriously

Doctor

  By Erin Migdol in The Mighty.   When you have an illness that is invisible, complex and/or difficult to treat, that sometimes translates into challenging experiences with doctors. While there are many kind, compassionate doctors out there who are willing to put in the time to figure out your health issues, unfortunately many in […]

Don’t Judge Appearances For Accessible Parking And Other Needs

Invisible Illness

  From Invisible Disabilities Association.   Don’t judge appearances. People with invisible disabilities don’t LOOK Disabled. Don’t judge appearances when you think you see someone abusing privileges or rights reserved for the disabled because you might be making a common mistake based on perception. Have you ever seen someone get out of a car parked […]

When Chronic Fatigue Syndrome Feels Like An Energy-Sucking Vampire

Lost

    By Caitlin Phillips-Peddlesden in The Mighty.   Chronic fatigue syndrome (CFS) fatigue. The invisible illness vampire. The blood- (or energy-) sucking beast ever at your shoulder, teeth in your neck. CFS fatigue is invisible. Many people with CFS have no visibly discernible symptoms. Only the bags under our eyes point to the constant torture people […]

Hidden Disabilities – Heathrow’s Sunflower Lanyard

Air Travel

    From Heathrow.com.   At Heathrow we understand all passengers are unique and we offer different levels of support tailored to your needs. For a hidden disability such as autism, dementia or anxiety, help is always at hand at the airport. If you would like to book assistance just let your airline know 48 […]

To People With Invisible Illnesses, From A Paramedic Who Didn’t Believe You

Invisible Illness

  By Ashley in The Mighty.   I’ve been a paramedic on and off for 10 years now. I’ve seen the good and the bad — probably more bad than good, but I’ve opened my eyes to something different. I’ve seen people in Facebook groups post about how health care professionals treat people with invisible illnesses poorly because they […]

Living My Life In The Grey Area Of Disability

disability

    By Victoria Venable in The Mighty.   When people talk about the “isms” in society, racism and sexism are usually the first that come to mind. Later in the list comes ageism. Often forgotten and misunderstood, is ableism. Ableism: Discrimination or prejudice against individuals with disabilities. In the last nine months of my […]

Why It’s Frustrating To Be Told, ‘You Don’t Look Sick!’ When You Have An Invisible Illness

Invisible Illness

By Jo Moss in The Mighty.   When you live with an invisible chronic illness there’s a phrase you hear a lot: “You don’t look sick!” It’s so common that many of us don’t even bat an eyelid when these words are uttered. But whether it’s from a well-meaning friend, a doctor or a complete stranger, it’s […]

The Burdens Posed By Invisible Physical And Mental Illnesses

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    By Toni Bernhard J.D. in .   I look healthy. My friend, whom I’ll call Gail, also looks healthy. The difference is that I suffer from a physical illness and she suffers from a mental illness: depression. The similarity is that both of our conditions are invisible to others. Despite the different source of our illnesses, our […]

The Struggle You Don’t Realize When You See Me Out And About

Frustration Chronic Illness

    By Lindsay Karp in The Mighty.   There is a lot you don’t realize when you see me out and about. You may think I’m fine when you see me at the playground pushing my son on the swing. You may think this is an ordinary day for me when you see me […]

To Those Who Give Me Dirty Looks For Using A Disability Parking Space

Disability Parking

  By Brittney Lindstrom in The Mighty.   I don’t know why, but whenever some people see me get out of the car in a disability parking spot, I get some dirty looks. But why? Do you not believe I have a condition that warrants the use of a disability sticker? What is your issue with it? Do you […]

To The Doctors Of Patients With Invisible Illnesses Hoping For A Diagnosis

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  By Ashley Creveling in The Mighty.     This letter is on behalf of the thousands of patients who have come to you in the hope that you can give them a small piece of normalcy again.  We came to you in tears, in pain and in disappointment. Our bodies have let us down. They’ve taken […]

When Strangers Judge Me For Sitting Down In A Random Place

POTS

  By Brittany Rogers in The Mighty.        I have a genetic condition called Ehlers-Danlos syndrome. Like many chronic illnesses, this causes widespread pain. It also brings along its co-morbid friends, like postural orthostatic tachycardia syndrome (POTS). POTS is a disturbance in your autonomic system, causing symptoms such as: dizziness, fatigue, lightheadedness, fast heart rate, low […]

5 Myths People With Invisible Disabilities Desperately Want Busted

invisible inlless

By Chanel White in The Mighty. As a young woman battling serious illness with multiple hidden medical devices, I have found there is a high rate of unnecessary and hurtful comments by those who assume I am not sick. This encounter seems to be a reoccurring experience for many patients battling hidden or invisible disabilities. […]

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