Jo Moss

Inside The Isolation Caused By ME/CFS Hypersensitivity

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    By Jo Moss in A Journey Through The Fog.   I find hypersensitivity one of the hardest ME/CFS symptoms to cope with as it can be so isolating. Hypersensitivity comes in many forms: hypersensitivity to light, touch, noise, smells, vibrations, foods, medication, chemicals, heat, cold and irritants like pollen and dust. All of […]

Unsolicited Health Advice Is Intrusive & Invalidating – Please Stop

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    By Jo Moss in A Journey Through The Fog.   Everyone living with a chronic illness has had to deal with unsolicited advice about their health. Whether it’s from strangers on social media or from well-meaning friends and family, uninvited advice is a frustrating part of living with an incurable chronic illness. It’s […]

I’m Disabled & I Rely On Single-Use Plastics – Please Don’t Judge Me

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      By Jo Moss in A Journey Through The Fog.   Reading through this month’s writing prompts, the one that sparked my interest the most was ‘Reusing’. When I think of ‘reusing’ I automatically turn to the need to reduce single-use plastic, and the detrimental effect plastic has on our oceans. It’s been […]

Why Having ME/CFS Makes Me Dread The Summer

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    By Jo Moss in A Journey Through The Fog.   After I read the news that the temperatures in the UK were going to reach 27 degrees this week, my anxiety levels rose dramatically and panic set in. I hoped I would having longer to adjust to the summer – what happened to […]

Chronic Illness & Grief

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  By Jo Moss in A Journey Through The Fog.   Each month a fellow blogger (A Chronic Voice) hosts a ‘Link-up party’. It is a monthly get-together for anyone with a chronic illness. An opportunity to share, to listen, and to learn from one another. It’s a great way to provide insight into life with […]

Pacing Is A Simple Concept. So Why Do I Find It So Hard ?

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    By Jo Moss in A Journey Through The Fog.   Living with a chronic illness like ME/CFS creates many challenges. Along with the multitude of symptoms, we also have to learn to adapt to the restrictions placed on our lives and to manage our limited energy levels. The term “pacing” crops up repeatedly […]

Practical Solutions To Everyday Spoonie Problems

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  By Jo Moss in A Journey Through The Fog.   Having a chronic illness means everyday tasks can be challenging, exhausting and painful. But there are steps we can take to make life easier, to limit the stress caused and to conserve our energy for more enjoyable activities. Here are some practical solutions to […]

Chronic Illness & Boredom – The Real Groundhog Day

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    By Jo Moss in A Journey Through The Fog.   Each month a fellow blogger (A Chronic Voice) hosts a ‘Link-up party’. It is a monthly get-together for anyone with a chronic illness. An opportunity to share, to listen, and to learn from one another. It’s a great way to provide insight into life […]

Why Having ME/CFS Makes Me Dread The Summer

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  By Jo Moss in Journey Through The Fog.   After I read the news that the temperatures in the UK were going to reach 27 degrees this week, my anxiety levels rose dramatically and panic set in. I hoped I would having longer to adjust to the summer – what happened to spring? – […]

ME/CFS Patients Worldwide Face Scepticism And Ignorance From Doctors

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  By Jo Moss in A Journey through the fog.   I would like to take the opportunity, for ME awareness month, to talk about the problems ME/CFS patients like myself face getting a diagnosis, and also the general ignorance surrounding ME/CFS within the medical profession. I know not all doctors are bad, but sadly […]

Why Are We So Quick To Judge ME/CFS Recovery Stories ?

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  From A Journey Through The Fog By Jo Moss.   As a community we are very good at supporting each other especially when one of our own is having a particularly bad time with their health. But one thing I’ve noticed, that I find disheartening, is that we don’t give people a safe platform […]

8 Common Myths About ME/CFS Debunked

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  By Jo Moss in A Journey Through The Fog.   For ME Awareness month I want to tackle some of the common misconceptions surrounding this debilitating illness. The lack of belief and ignorance surrounding ME is deep-rooted and causes significant harm to patients worldwide. Due to the disbelief, misconceptions, and stigma that are attached […]

Living With Severe ME – A Glimpse Into My World (Video)

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  From A Journey Through The Fog by Jo Moss.   I have created a very honest video about the reality of living with severe ME to try to raise awareness. I would really appreciate it if you could watch and share. Thank you. “ME has stolen so much from me but the most frustrating […]

9 Tips To Guide You Through A PIP Benefit Application

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By Jo Moss in A Journey Through The Fog.   We all know the anxiety inducing feeling of the dreaded brown envelope falling on your door mat. Being assessed, or reassessed for health and disability benefits, is both exhausting and scary. We are often made to feel we are faking it or exaggerating our symptoms. […]

The Questions I Ask When People Refuse to Believe ME Exists

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  By Jo Moss in The Mighty.   I have been in my local paper twice recently raising awareness about myalgic encephalomyelitis (ME). Both times, spiteful comments have been left by members of the public stating: “ME doesn’t exist.” “It’s all in their heads.” “You are just lazy.” It’s a stigma we, the ME community, […]

The Questions I Ask When People Refuse To Believe ME Exists

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  By Jo Moss in The Mighty.   I have been in my local paper twice recently raising awareness about myalgic encephalomyelitis (ME). Both times, spiteful comments have been left by members of the public stating: “ME doesn’t exist.” “It’s all in their heads.” “You are just lazy.” It’s a stigma we, the ME community, […]

When The Isolation Of Illness Causes The Outside World To Feel ‘Alien’

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  By Jo Moss in The Mighty.   When you have severe ME/CFS, or any illness that causes you to become housebound, you feel isolated. It’s very easy to feel forgotten. Your life is put on hold but the world goes on outside without you. How can an event that is so catastrophic for you […]

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