ME Association

The ME Association Flu Vaccine Information And Guidance For 2020 – 2021

Flu (Text serie)

By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Each year we fully update the ME Association information and guidance on flu vaccination in relation to ME/CFS. We hope to publish the free 2020-2021 leaflet by early October – once flu vaccination programmes begin, and we have all the relevant information about the new vaccine. […]

Forward ME Letter Re: Post-Covid/ME/CFS Management With Caution About Exercise

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  By Russell Fleming, Content Manager, ME Association The following letter has been produced by the Countess of Mar and members of Forward ME which is a collaboration of M.E. charities that includes the ME Association. It has been used by, for example, Physios 4 ME, when encountering guidance from other organisations that has raised […]

ME Awareness: Failure To Accurately Diagnose Can Lead To Lifetime Of Misery And Suffering

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  By Debbie Mckno in the ME Awareness website. My name is Debbie. Here is the story of my long, exhausting, and difficult battle to get diagnosed with Fibromyalgia and Myalgic Encephalomyelitis. From 17 years old, I was told by doctors, “You are just run down.” I had constant infections, viruses, and chronic tonsillitis. Feeling […]

Stalwart Champion Of The ME Community Retires After Distinguished Parliamentary Career

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By Dr Charles Shepherd, Hon. Medical Adviser, ME Association.   ME advocate and parliamentary champion, the Countess of Mar, retires from The House of Lords after 45 years. Earlier in the week the Countess of Mar wrote to members of Forward-ME to say that she would be retiring from the House of Lords as from today. […]

ME Association Guidance: Coronavirus (covid-19) Update | 09 March 2020

Coronavirus Generic 1

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. The ME Association information and guidance about the coronavirus that was originally issued in early February and updated again last week, will continue being updated and issued on a weekly basis. This is to take account of the rapidly changing situation here in the UK […]

ME Association May Summary of ME/CFS Published Research – 19 June 2019

Research

  By Charlotte Stephens, Research Correspondent, ME Association. The Index of Published ME/CFS Research has now been updated to take account of the research that has been published during the month of May 2019. It’s a little later than normal due to ME-related absence. The Index is a useful way to locate and then read all relevant research […]

Post Twenty Seven. No, I’m Not Tired.

ME Drained

  From puffins&penguins&me.   The ME Association was recently asked by the media to compile a piece describing the difference between having ME and just feeling tired all the time. Given the frustratingly common misconception that ME is ‘feeling tired’, this of course resulted in a lively discussion on their Facebook page, and it prompted me to […]

Trial By Error: NIH Grants $2.1 Million To UK Biobank !

David Tuller

  By David Tuller, DrPH   The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: “The funding represents the biggest ever single […]

Review: People With ME/CFS Are More Functionally Impaired Than People With Multiple Sclerosis – 19 July 2017

ME

  From The ME Association. Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease that shares an overlap […]

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