ME awareness

Science, Politics And ME. – A Book By Dr Ian Gibson

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      From Invest in ME Research.   Background At the 10th Invest in ME International ME Conference 2015. Dr Ian Gibson announced that he was planning on writing a book about ME – and the politics and prejudice which has affected the way that ME is perceived, treated, researched and funded – as well […]

Comment: Where Is Chronic Illness Represented In Popular Culture?

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    Chronic illness is misrepresented in TV and film, and it damages the lives of people coping with it, writes Naomi Chainey in SBS.   I once watched an episode of House M.D. where a man came to the clinic and outlined his symptoms.  Familiar symptoms.  My symptoms.  Having just been diagnosed with one […]

2 Subjective Measures Of Incapacity In CFS

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    By Russell Logan in Shout Out About ME.   As an ME or CFS sufferer, how often have you had someone say to you, ‘we’re all tired, get over it’, or ‘you don’t look sick’? Although the illness is mostly invisible, part of the problem is that some patients aren’t as sick as […]

Pacing Yourself With Fibromyalgia & Chronic Fatigue Syndrome

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  By Adrienne Dellwo in Very Well.   When living with fibromyalgia and chronic fatigue syndrome, pacing is key to managing your symptoms. That’s easier said than done with the busy lives most of us lead, but with some effort, you can learn to pace yourself. Why is Pacing Important with Fibromyalgia & Chronic Fatigue […]

Do You Want Your MP To Have A Better Understanding Of M.E.? 

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  The All Party Parliamentary Group (APPG) on M.E. is hosting an awareness-raising drop-in session for MPs in London on Wednesday 11 May from 12.45pm to 2pm. If you’d like your MP attend, get in touch with them now if you can, or get someone well enough to email them.  Just Google to find out […]

7 Things You Need To Know About Supplements

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    By By Adrienne Dellwo in About Health.   Getting Started With Supplements: Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications. However, […]

Caterham Model’s Fashion Show Raises Over £800 For ME

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  By Kevin Black in Local People.   Caterham based model Joanna Chamberlain has raised over £800 for charity with a spectacular fashion show held in the town’s New Caterham Arms pub. Joanna and Her Vintage Violets  was the title of the evening and the theme was the 1940s-50s and was in aid of www.investinme.org a […]

Invest In ME March Update

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  Invest in ME supporters made March another marvellous mixed bag of awareness & fundraising for the charity’s biomedical research funds for myalgic encephalomyelitis. Thank you each & every one! Actor Jon Campling took along his Invest in ME charity collection box to another Comic Con event, this time in Oxford: “Huge Thanx 2 all […]

Analysis Of M.E./C.F.S. Studies

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  From meanalysisblogspot.com   Scientific analysis and ME psychosocial research: will they ever meet?   I get frustrated by the endless recycling of unsubstantiated claims and opinions about ME, and can fully understand why many people get quite angry about it. So I intend to write a short series of blogs looking at the claims […]

First Yorkshire Marathon Places Go On Sale Today – Get Them Running For ME !

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Before ME hit, I enjoyed running and took part in a number of marathons, running for charity.  This is beyond me now and I’m jealous when I see people out there running past my front window ! The Yorkshire Marathon is a very popular event and places will be up for grabs from today and […]

Huddersfield Woman Nathalie Wright Talks About The Misery Of Living With ME

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    Story by Nathalie Wright in the Huddersfield Examiner.   In this thought provoking first person feature Huddersfield 22-year-old Nathalie Wright reveals how her life has been devastated by the crippling illness ME. Nathalie grew up in Pole Moor above Slaithwaite, went to Wilberlee Primary School, Crossley Heath School in Halifax and then Greenhead […]

M.E., MYSELF AND I…. by Barnaby Eaton-Jones

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Hello! My name’s Barnaby Eaton-Jones, but that’s my problem. I’ve had M.E. since 1991, so that means I’ve been unwell for longer than I’ve been well. This, as you may imagine, is described by me as ‘a bit of an arse’. Which is somewhat of an understatement. So, picture the scene – a young, lithe, […]

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