ME Blogs

A Woman Who Dared, With ME

Rivka-Solomon

  by Rivka Solomon It was late afternoon, and I could barely get my body out of bed. In fact, I had been in bed most of the last few days––or was it weeks? Even with all that rest, my legs were still too weak to stand up. It wasn’t that I lacked the desire to […]

Can Positivity Cure Any Disease ?

Anil

    By Anil van der Zee, in his Capture, Dance, Words Blog.   As long as I have been suffering from my illness I’ve read and have also had some people tell me that the cause and course of my disease rests in some way in my own hands. I have always found that remark […]

Bottom Of The Ramp

Research Funding

  From The Occupy ME Blog.   In aggregate, 2017 turned out to be the biggest year of ME/CFS funding at NIH ever. But when I scratched the surface, I found bad news buried within the superficially good news. We are still at the bottom of the funding ramp that Dr. Collins promised us, and […]

Graded Exercise Therapy Causes Harm In ME/CFS. Everyone Knows That, Right ?

GET

    From The Self Taught Author Blog by Clark Ellis.   What is patently obvious to the majority of ME/CFS sufferers is not at all obvious to most others. It is not obvious to NHS staff. It not obvious to academics and politicians. It is not obvious to the public. There are many reports […]

M.E. Meant This Blog Took Me Several Months To Write

Feeling sad

    By Isabel Walter in Huffpost.   On holiday in the Peak District in June 2007, three months after being diagnosed with ME, I sat down one afternoon with a pile of postcards and discovered I could no longer write. The words were clear in my head, but the pen in my hand made […]

What To Do When Doctors Don’t Give A Crap !

Doctor

  From The Little Lifestyle Blog.   Now doctors have very hard and demanding jobs dealing with life and death situations all the time, so I highly respect them and what they do but while being ill with Fibromyalgia, Chronic fatigue and Depression I had some bad experiences with them! They weren’t all bad I had […]

Getting Back On Your Feet After An Illness

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    From The Little Lifestyle Blog By Keira.   I’ve recently started talking  about my experience with M.E (chronic fatigue syndrome) and we have barely scratched the surface of that topic but right now I’d like to talk about how I went from bed ridden to where I am now, I’m not saying I […]

Trial by Error: NICE Rejects My FOI Request

David Tuller

  By David Tuller, DrPH in Virology Blog.   The National Institute for Health and Care Excellence, the U.K. organization that develops clinical guidelines for medical conditions, has rejected my freedom-of-information request for the names of the experts involved in the reassessment of the guidance for the illness it calls CFS/ME. This isn’t surprising, since […]

Neuro(logist) – M.E. Militant

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    By Anil van der Zee.   The other day Dr. Jim Faas, insurance physician, lawyer, former President of the Association of Insurance Physicians (NVVG) and Senior Staff Officer at the Dutch unemployment office (UWV bezwaar en beroep), wrote a blog in the biggest Dutch medical news website Medisch Contact about the current situation […]

The Smile Trial (Part 3) – (The Lightning Process)

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    By johnthejack.   The only one to benefit is Parker. The last of three blogs on the SMILE trial. Part one is here and part two here.   The SMILE trial was deeply flawed: criteria used were too broad, participants self-selected, it was not properly controlled and it relied upon subjective measures when participants […]

Smile Trial (part 2) – The Lightning Process

lightning-e1422445255450

    From The Johnthejack Blog. A trial so flawed as to be worthless. The second of three blogs on the SMILE trial. The first is here.   The SMILE trial was ‘a pilot randomized trial with children (aged 12 to 18 years) comparing specialist medical care with specialist medical care plus the Lightning Process‘. A report was published […]

Living With ME – Emelyne’s Transcript

Living with ME

  From the #SpeakforME Blog.   My name is Emelyne and I #SpeakforME because so many people suffer in the dark behind closed doors. ME has no bias, it affects men, women, children, adults, young and old. It can change during your life, it can get really tough. It can get better and there can […]

You, ME And CBT

Caution

    From the Jamison Writes Blog.   I remember when a doctor of mine suggested I incorporate cognitive behavioral therapy (CBT) and graded exercise therapy (GET) into my treatment plan. She might as well have said, “Hey Jamison, I’d like you to try smoking cigarettes to treat your symptoms. Start slow, maybe a few […]

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