ME in Australia

Calcium Channel ion Defects: Research From Australia’s Griffith Uni

Australia

    by Sasha Nimmo in ME Australia.   Queensland’s Griffith University is home to the National Centre for Neuroimmunology and Emerging Diseases (NCNED), one of the leading centres for research in ME and chronic fatigue syndrome.  They’ve been in the news lately for their patented biomarker discovery on calcium channel ion defects in patients. […]

Response From The Mason Foundation: Petition To Stop Graded Exercise Therapy Trial

Sydney

  From ME News Australia.   More than 700 people signed the petition to ask the Mason Foundation and the University of New South Wales (UNSW) to cease the trial of graded exercise therapy for chronic fatigue syndrome, in the face of newly-released evidence from the PACE trial (which UNSW relied upon in this trial). “We are […]

National Centre For Neuroimmunology And Emerging Diseases – Australia

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    From Griffith University.   Major improvement in the diagnosis of Chronic Fatigue Syndrome is expected following the award of $4 m in funding to one of Australia’s foremost authorities on the condition. Professors Sonya Marshall-Gradisnik and Don Staines and Dr Samantha Johnston from the National Centre For Neuroimmunology and Emerging Diseases (NCNED) at […]

Severe ME: Suffering Ignored And Denied Help

Severe ME

By Sasha Nimmo in ME Australia.   Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian patient organisations. In Australia, that is between 96,700 and 241,800 people (ABS population figures). Of those, 25% are so severely affected that they cannot […]

Rethinking Chronic Fatigue Syndrome

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      By Sylvia Rowley in The Saturday Paper (Australia).   I’m typing this lying in my dark bedroom with my eyes closed, on a dark screen with earplugs in,” writes 45-year-old Anna Kennedy, a Melbourne-based clinical psychologist, in one of our first email exchanges. “It’s a rotten place for me to be as […]

Severe ME: ‘Took Nearly 40 Years To Be Diagnosed’

Severe ME

    by Sasha Nimmo in The Blue Coffee Mug Blog in ME Australia.   Between 24,000 – 60,000 Australians have severe ME.  This is the first in a series telling the stories of Australians with severe ME. Given the wrong medical treatment and intervention harmed this patient’s health to the point of no return. Disbelief […]

More Than A Million Americans Are Suffering From A Mysterious, Debilitating Disease — And They’re Sick And Tired Of Being Ignored

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    By Rafi Letzter in Business Insider Australia.   Imagine living with a disease that renders you disabled and exhausted, unable to meet the physical demands of daily living. Now imagine that much of the medical establishment refused to believe your disease was “real” in the sense of a physical illness, and failed to fund […]

Rethinking Chronic Fatigue Syndrome

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  By Sylvia Rowley in The Saturday Paper. (From an Australian Viewpoint). I’m typing this lying in my dark bedroom with my eyes closed, on a dark screen with earplugs in,” writes 45-year-old Anna Kennedy, a Melbourne-based clinical psychologist, in one of our first email exchanges. “It’s a rotten place for me to be as […]

New CBT And GET Threat For Australian CFS Patients

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  By Sasha Nimmo in Shout Out About ME.   Australian CFS researcher, Prof Andrew Lloyd last year explained he was working on an online program of graded exercise therapy (GET) and cognitive behavior therapy (CBT) at the University of NSW’s Fatigue Clinic. Prof Lloyd described the PACE trial, which evaluated these therapies, as having “reasonably […]

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