ME in the USA

The NIH Is Thwarting Research On A Poorly Understood Yet Serious Condition

NIH

      By JENNIFER SPOTILA in statnews.com.   When I first developed myalgic encephalomyelitis in 1994, I had no idea that I would be just as sick 25 years later, or that there would still be limited scientific understanding of the disease and no effective treatments. Nor did I imagine that my career as a lawyer was over, and […]

2018 Ramsay Class Receives Supplemental Funding To Support Innovative Projects From New Investigators

Funding

    From Solve ME/CFS Initiative.   Solve ME/CFS Initiative (SMCI) is pleased to announce that we have received funding to support additional Ramsay studies for the 2018 Ramsay Award Program Class that will be led by Dawei Li, PhD, an Assistant Professor at the University of Vermont, and Malav Trivedi, PhD, an Assistant Professor at Nova Southeastern University. Both Dr. Li […]

Shining A Light On Chronic Fatigue Syndrome, A Little Understood Disease Among Doctors

Chronic

  By Jennie Spotila, For the Inquirer.   I recently went to a new doctor. He looked over my chart: “Chronic fatigue syndrome,” he read, and then he glanced up at me. “You don’t look tired,” he quipped. “There, I made it go away.” I’ve been sick for 24 years, and I get comments like […]

Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)

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    By Cort Johnson in Health Rising.   Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC – a panel of ME/CFS experts brought together to advise the federal government on […]

An Honest Doctor On Treating Chronic Fatigue Syndrome (ME/CFS) And Fibromyalgia (FM)

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  By Cort Johnson in Health Rising.   Ari Whitten is a Scottsdale, Arizona naturopath who runs the Energy Blueprint website. He’s done an amazing number of podcasts with alternative health practitioners. If you’re interested in alternative health, his website is a good resource. I find that Whitten asks good questions.His May 28th interview with JE Williams, […]

The Fight That Follows Pain And Prejudice

Carol Head

  From MS Blog Magazine.   More than four decades ago, while a high school junior in Columbus, Indiana, I decided I wanted to run track. But I was told that girls were not allowed to compete in sports. Angry and confused—why can’t girls do sports?—I fought for and eventually won the right to start […]

From ME To You

Lost

  By Lisa Alioto in Herald Review.   Myalgic encephalomyelitis (ME) is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems. What does that really mean? Life with ME is ever-changing, painful in every way. An abbreviated view would be to share a small piece of a day in […]

In Response: Even Doctors Need To Learn More About Myalgic Encephalomyelitis

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    By Richard L. Kronzer in The Duluth News Tribune.   As a follow-up and response to the Nov. 28 column in the News Tribune about myalgic encephalomyelitis, or M.E. (Local View: “Why won’t Minnesotans help me — or ‘M.E.’?“), I would add some information of my own personal experience watching someone close suffer from this […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

CDC

    From the CDC (Centers for Disease Control and Prevention) Website.   Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body systems. People with ME/CFS are often not able to do their usual activities. At times, ME/CFS may confine them to bed. People with ME/CFS have severe fatigue and […]

Engaging People With ME As Partners In The CRCS

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    From #MEAction.   A view from the US.   The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a […]

Illinois House Of Reps To Vote On Resolution For ME

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  From #MEAction. A View From The USA.   The Illinois House of Representatives will vote on a state resolution this Thursday, March 23 that recognizes Myalgic Encephalomyelitis (ME) as a tragic, disabling disease, and that commits the state to improving the availability and quality of medical care, as well as encourages universities in Illinois […]

Former Cal Student Struck By Disease

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    By Vidhima Shetty, Staff Writer in The Californian.   For Cal High Alumnus and Stanford student Tom Camenzind, life has approached a standstill as the result of the disease M.E./C.F.S. M.E./C.F.S. affects no less than one to two million people in the U.S. The term itself, myalgic encephalomyelitis, carries a provoking explanation: neuro […]

NIH Tackles Neglected Mystery Illness

NIH

  By Tanya Lewis in The Scientist. It has been more than seven months since the National Institutes of Health pledged increased funding for myalgic encephalomyelitis/chronic fatigue syndrome research. Here is how some of that money will be put to use. Hundreds of thousands of people suffer from an illness that causes them to feel […]

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