ME Research in USA

Blood Test May Detect Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Blood Test

    From The National Institutes Of Health.   At a Glance Researchers developed a blood test that, in a pilot study, accurately identified people with myalgic encephalomyelitis/chronic fatigue syndrome. If validated in larger studies, the assay could one day help diagnose the disease and enable researchers to test potential treatments.   Myalgic encephalomyelitis/chronic fatigue […]

The Monster Disease Medical Schools Don’t Mention

Llewelyn King

    by Llewellyn King in Inside Sources.   For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME). Like all chronic diseases, it’s brutally unfair to the afflicted. But ME also can claim to have been unfairly treated by doctors and medical researchers, the pharmaceutical giants, and the […]

A Brightening Future: The State Of ME/CFS Research

Research

  By Simon McGrath in ME/CFS Research Review.   OPINION Although there are no treatments for ME/CFS on the horizon, things are looking up thanks to recent findings and a substantial increase in the amount of high-quality research.  The field still needs much more funding. Do you remember the buzz around rituximab? Oncologists Dr Fluge and Professor […]

Tireless Work On Chronic Fatigue Syndrome

Research

  By Kerry Regan, in IC News. IC professor Betsy Keller is among the leaders of a comprehensive new study of the misunderstood disease. In the early 2000s, seven decades after chronic fatigue syndrome (CFS) was first recorded by doctors, those who suffered from the disease still struggled to convince the world that something was physically wrong with them. Then as now, the disease — known outside the U.S. as myalgic encephalomyelitis (ME)— had […]

A New Research Landscape Emerges In America

Research

    By Simon McGrath in ME/CFS Research Review.   Things are changing in the US for ME/CFS research as four new collaboratives set up and get to work. In September last year, the National Institutes of Health (NIH) announced $35 million of funding to establish three new ME/CFS research collaboratives and a supporting data […]

A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for the ambitious nature […]

A Consensus-Driven ME/CFS Clinician Coalition Takes Shape

Bateman Horne Center

    By Stephanie Griffin in Bateman Horne Center.   On March 2-3, 2018, the Bateman Horne Center hosted an exciting summit of leading U.S. ME/CFS clinicians who came together to share their pearls of wisdom on diagnosis and treatment in order to improve ME/CFS clinical care and refine more precise research targets. The meeting was remarkable for […]

Empowering Patients, Advancing Research, And Improving Clinical Care For All Those Impacted By ME/CFS And Fibromyalgia

Bateman Horne Center

  From The Bateman Horne Center website.   The Bateman Horne Center of Excellence is leading the way in the medical advancement and treatment of and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. More than 5 million people in the US are affected by ME/CFS and Fibromyalgia—more than those with MS, lupus or many forms of cancer—yet […]

OMF Receives $1 Million Donation

Ron Davis

  From The Open Medicine Foundation.   2018 is starting off to be a fantastic year. Today, OMF has received a $1 million donation! The Pineapple Fund has generously donated $1 million to OMF through Bitcoin, stating, “We chose the Open Medicine Foundation because ME/CFS is a serious and complicated condition that torments the life of its sufferers. […]

A Reboot For Chronic Fatigue Syndrome Research

research

  By Amy Maxmen in the Nature International Journal of Science.   Name a remedy, and chances are that Elizabeth Allen has tried it: acupuncture, antibiotics, antivirals, Chinese herbs, cognitive behavioural therapy and at least two dozen more. She hates dabbling in so many treatments, but does so because she longs for the healthy days […]

NIH Awards $10.6m Research Center Grant To The Jackson Laboratory For Study Of Chronic Fatigue Syndrome

Funding

    By Joyce Dall’Acqua Peterson in The Jackson Laboratory website.   As part of a major, multi-institutional, multidisciplinary assault against myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a highly debilitating and poorly understood chronic disease, Jackson Laboratory (JAX) Professor Derya Unutmaz, M.D., has received a five-year grant totalling $10,553,732 from the National Institutes of Health. This Center will be […]

Scientific Progress Stumbles Without A Valid Case Definition

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  BY Leonard A. Jason in Oxford University Press’s Blog.   Current estimates from the Centers for Disease Control and Prevention (CDC) of the number of people in the United States with chronic fatigue syndrome (CFS) increased from about 20,000to as many as four million within a ten-year period. If this were true, we would be amidst an epidemic of unprecedented […]

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