ME Research

How Medical Guidelines Become Suffering


  By Melanie Schickedanz in   At the end of January, DEGAM (German Society for General Medicine and Family Medicine ) published the newly revised guideline “Tiredness” , although it is still “in progress” on the homepage of the AWMF (as of 15.02.2018). DEGAM is a German non-profit professional association that represents the professional and scientific interests of general medicine in Germany. The disease […]

Exercise Elevates Blood Signature Difference Between People With, Without Chronic Fatigue Syndrome


  By Bruce Goldman in SCOPE.   A bout of exercise is about the last thing you’d imagine a person with chronic fatigue syndrome – also known as myalgic encephalomyelitis and often designated by the acronym ME/CFS – would want to endure. And you’d probably be right. But a new study suggests that a blood test following exercise may be a […]

Rituximab Trial And Research


  From Invest In ME Research.   Statement Following Preliminary Phase III Rituximab Clinical trial Results from Norway Following the preliminary results which Professor Olav Mella recently publicly released from the Phase III multi-centre double-blinded placebo-controlled Rituximab Clinical Trial (see statement 21st November 2017) the charity has had discussions with advisors and researchers and has now […]

ME/Chronic Fatigue Syndrome


  From The Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

13th Invest In ME Research International ME Conference


  Background   As an independent UK charity with one objective being to find, fund and facilitate biomedical research into ME, IiMER has, since 2007, been championing the idea and the necessity of international collaboration in research into ME. The charity has promoted the development of a Centre of Excellence for ME for eight years […]

The Cortene Way: New Drug To Be Trialled In Chronic Fatigue Syndrome (ME/CFS) Soon – Pt. I


  By Cort Johnson in Health Rising.   Research funding for chronic fatigue syndrome (ME/CFS) has been poor at best but clinical trials have elicited a wholly different degree of disappointment altogether. Few clinical trials are ever done and those are often involve alternative approaches. The 6 active clinical trials listed in, for instance, include […]

NEID Disease ? Study Suggests Neuro, Endocrine And Immune Systems Work Together To Produce ME/CFS


  By Cort Johnson in Simmaron Research.   Bruun Wyller continues to surprise. When last heard from this erstwhile cognitive behavioral therapy (CBT) proponent asserted that more research into Epstein-Barr virus in chronic fatigue syndrome (ME/CFS) was needed. Now he’s looking at the interaction between the immune and endocrine systems. Wyller begins his new study […]

Cellular Energy Production Takes Big Hit In Chronic Fatigue Syndrome (ME/CFS) Study


  By Cort Johnson in Health Rising.   The two-day exercise study results suggest that the ability to produce energy after exercise in chronic fatigue syndrome (ME/CFS) is blunted, and the search is on to identify blockages in cellular energy that could explain that.  Lead by Cara Tomas, Julia Newton and company have stepped into […]

A Reboot For Chronic Fatigue Syndrome Research


  By Amy Maxmen in the Nature International Journal of Science.   Name a remedy, and chances are that Elizabeth Allen has tried it: acupuncture, antibiotics, antivirals, Chinese herbs, cognitive behavioural therapy and at least two dozen more. She hates dabbling in so many treatments, but does so because she longs for the healthy days […]

Trial By Error: COPE To BMJ Open: More Details, Please !

David Tuller

  By David Tuller, DrPH.   Yesterday I reviewed an account of a publishing dilemma that had been submitted to the forum of the Committee on Publication Ethics. The COPE forum offers advice on thorny situations submitted anonymously by members. In this case, the submission appeared to be from BMJ Open and it appeared to be discussing […]

Carly Maryhew’s Open Letter To TEDxBristol Regarding Esther Crawley’s “Disrupting Your View Of ME” Presentation

TED Talks

  By James C Coyne in the Coyne Of The Realm Blog.   Carly Maryhew’s recent open letter to TEDxBristol concerning the failure of Esther Crawley’s recent talk to adhere  to TEDx’s explicit content guidelines is a gem, well worth a read by a general audience. At one level, her letter is a contribution to the ongoing […]

Urgency: Ron Davis And His (Non-NIH Funded) ME/CFS Collaborative Research Center


  By Cort Johnson in Health Rising.   This is one of a series of blogs that will look at what’s coming up in 2018 from ME/CFS research foundations. Urgency Those ten NIH research center proposals contained a hidden gift.  Of the ten grant applications, seven failed, leaving at least 21 potential individual research grant applications that […]

Small Nerves – Big, Big Problem ? Drug Trial Points Finger At Autoimmunity In Fibromyalgia And ME/CFS


  By Cort Johnson in Health Rising.   Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a difference runs actually runs in her  family. Her mother, the neurologist Louise Rapin, was one of the seminal figures advancing the concept of autism spectrum disorder. […]

Chronic Fatigue Syndrome (ME/CFS) Researcher And Patients Shine During NIH Call


  By Cort Johnson in Health Rising.   It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress.  The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study Proceeding on Pace Nath […]

Cellular Bioenergetics Is Impaired In Patients With Chronic Fatigue Syndrome

Stem Cells

    From ME Research UK.   Authors Cara Tomas C, Brown A, Strassheim V, Elson J, Newton J, Manning P Institution Institute of Cellular Medicine, Newcastle University, Newcastle upon Tyne, UK Abstract Chronic fatigue syndrome (CFS) is a highly debilitating disease of unknown aetiology. Abnormalities in bioenergetic function have been cited as one possible cause for […]

Welcome to IiMER Research Blog !


  From Invest in ME Research.   Invest in ME Research have created a page on their Centre of Excellence website for blogs by researchers funded by the charity to describe what they are doing, what experiences they have, what they think of research into ME, what they hope to achieve – and allow more communication with […]

Rituximab Trial Status November 2017

Fluge and Mella

  From the Let’s do it for ME website.   Surprising news from Norway today, but the ground-breaking work continues in UK thanks to all involved and everyone supporting Invest in ME Research, so please don’t be too disappointed, as the charity explains in the following statement published today and reposted below. Professor Olav Mella […]

Trial By Error: My Brief Encounter With Professor Crawley

David Tuller

  By David Tuller, DrPH.   At noon last Friday, at the University of Exeter’s Mood Disorders Centre, Professor Esther Crawley gave a talk called “What is new in paediatric CFS/ME research.” When I saw a notice about the event the day before, I felt it might be my one chance to ask her directly […]

What If ME/CFS Is An Intelligent Process Gone Awry ?


    By Veronique Mead M.D. in Health Rising.   Veronique had a very gradual onset of ME/CFS beginning in the 1990s when she was a family physician. Her symptoms worsened slowly over 10 years. At her worst activities such as sitting, standing, taking a shower, or talking exhausted her. She changed careers and has since discovered and […]

ME/CFS Research Roundup: Brief Highlights Of Biomedical Research To Date


  By Rochelle Joslyn   DISABILITY & QUALITY OF LIFE People with ME/CFS score lower on measures of physical function and overall quality of life than most other chronic disease groups, including MS, cancer and stroke, and the experience of patients with severe ME/CFS is comparable to end stage HIV or heart failure (Nacul 2011, Falik Hvidberg 2015). […]

What I Learned At Stanford


  by TheSoberCannibal in   I’ve been a patient at Stanford for a few years now but I just had a really good appointment with Dr Bonilla there where I learned some new things I wanted to share. I’m going to keep this short, bulleted, and as brainfog friendly as possible. I’ll make the first sentences […]

13th Invest In ME Research International ME Conference

IIMEC13 logo-1 tr

  IIMEC13 This annual international, CPD accredited research conference provides a platform for the latest and most promising biomedical research into ME. IIMEC13 will be the thirteenth conference and regularly attracts researchers, clinicians, doctors, nurses, occupational therapists, healthcare professionals and patient groups twenty countries from around the world. The conference is a full day event […]

Different Triggers – Different Illnesses: Exercise Affects Brains Of ME/CFS And GWI Patients Differently


  By Cort Johnson in Health Rising.   Baraniuk believes chronic fatigue syndrome (ME/CFS), fibromyalgia and Gulf War Illness are  related. In fact, he calls the post-exertional malaise found in chronic fatigue syndrome (ME/CFS) a “unique characteristic of CFS that is shared by Gulf War Illness (GWI) subjects”. Both diseases often involve a triggering event […]

Brain Chemistry Study Shows Chronic Fatigue Syndrome, Gulf War Illness As Unique Disorders


  From Phoenix Rising.   WASHINGTON — Researchers at Georgetown University Medical Center have found distinct molecular signatures in two brain disorders long thought to be psychological in origin — chronic fatigue syndrome (CFS) and Gulf War Illness (GWI). In addition, the work supports a previous observation by GUMC investigators of two variants of GWI. The disorders […]

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