ME Research

Rituximab Trial Status November 2017

Fluge and Mella

  From the Let’s do it for ME website.   Surprising news from Norway today, but the ground-breaking work continues in UK thanks to all involved and everyone supporting Invest in ME Research, so please don’t be too disappointed, as the charity explains in the following statement published today and reposted below. Professor Olav Mella […]

Trial By Error: My Brief Encounter With Professor Crawley

David Tuller

  By David Tuller, DrPH.   At noon last Friday, at the University of Exeter’s Mood Disorders Centre, Professor Esther Crawley gave a talk called “What is new in paediatric CFS/ME research.” When I saw a notice about the event the day before, I felt it might be my one chance to ask her directly […]

What If ME/CFS Is An Intelligent Process Gone Awry ?


    By Veronique Mead M.D. in Health Rising.   Veronique had a very gradual onset of ME/CFS beginning in the 1990s when she was a family physician. Her symptoms worsened slowly over 10 years. At her worst activities such as sitting, standing, taking a shower, or talking exhausted her. She changed careers and has since discovered and […]

ME/CFS Research Roundup: Brief Highlights Of Biomedical Research To Date


  By Rochelle Joslyn   DISABILITY & QUALITY OF LIFE People with ME/CFS score lower on measures of physical function and overall quality of life than most other chronic disease groups, including MS, cancer and stroke, and the experience of patients with severe ME/CFS is comparable to end stage HIV or heart failure (Nacul 2011, Falik Hvidberg 2015). […]

What I Learned At Stanford


  by TheSoberCannibal in   I’ve been a patient at Stanford for a few years now but I just had a really good appointment with Dr Bonilla there where I learned some new things I wanted to share. I’m going to keep this short, bulleted, and as brainfog friendly as possible. I’ll make the first sentences […]

13th Invest In ME Research International ME Conference

IIMEC13 logo-1 tr

  IIMEC13 This annual international, CPD accredited research conference provides a platform for the latest and most promising biomedical research into ME. IIMEC13 will be the thirteenth conference and regularly attracts researchers, clinicians, doctors, nurses, occupational therapists, healthcare professionals and patient groups twenty countries from around the world. The conference is a full day event […]

Different Triggers – Different Illnesses: Exercise Affects Brains Of ME/CFS And GWI Patients Differently


  By Cort Johnson in Health Rising.   Baraniuk believes chronic fatigue syndrome (ME/CFS), fibromyalgia and Gulf War Illness are  related. In fact, he calls the post-exertional malaise found in chronic fatigue syndrome (ME/CFS) a “unique characteristic of CFS that is shared by Gulf War Illness (GWI) subjects”. Both diseases often involve a triggering event […]

Brain Chemistry Study Shows Chronic Fatigue Syndrome, Gulf War Illness As Unique Disorders


  From Phoenix Rising.   WASHINGTON — Researchers at Georgetown University Medical Center have found distinct molecular signatures in two brain disorders long thought to be psychological in origin — chronic fatigue syndrome (CFS) and Gulf War Illness (GWI). In addition, the work supports a previous observation by GUMC investigators of two variants of GWI. The disorders […]

People With Chronic Fatigue Syndrome Are Exhausted At A Cellular Level, Study Shows

Immune Cells

  By Mike McRae in Science Alert.   If you’re one of the millions of people worldwide who deals with the symptoms of CFS (chronic fatigue syndrome, sometimes also called myalgic encephalomyelitis, ME), it can often feel like your entire body is drained of energy. New research has found immune cells taken from the blood […]

ME Sufferers Being Shamefully Let Down By Professionals


    By Linda Burnip and Denise McKenna in Morning Star Online.   Last week, over 65 deaf and disabled people’s organisations, campaigns and mental health professionals wrote to the Prime Minister asking her to urgently rethink her decision to appoint Professor Sir Simon Wessely to lead the much-anticipated independent review of the Mental Health Act as […]

ME/Chronic Fatigue Syndrome


  From the Quadram Institute.   Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a severely debilitating condition that is thought to affect up to 250,000 people in the UK. Symptoms include widespread pain, extreme tiredness and an inability to concentrate. The causes of ME/CFS aren’t known, and there are no effective […]

A Letter To The ME/CFS Research Community (+ Doctors, + Patients)

Brain anatomy  - cross section

  By Amy Proal in Microbe Minded.   Dear ME/CFS research community, My name is Amy Proal. I am a microbiologist who also suffers from ME/CFS. I first became ill with ME/CFS in 2004, while studying medicine at Georgetown University. Almost immediately I began to research the disease from bed and wrote my undergraduate thesis on […]

Treating Autism And ME/CFS: Could One Drug Do Both ?

Drugs Trials

    by Cort Johnson in Open Medicine Foundation.   Autism is one of the most difficult conditions to treat. A neurodevelopmental disease that typically strikes before the age of two, about a dozen different areas of the brain are affected. Autism is characterized by social withdrawal, problems with both verbal and non-verbal communications and […]

Solving The Mystery Of Chronic Fatigue


    By Matt McMillen in Webmd.   It is a very complex, very real physical disease, and one that for years has caused uncertainty, confusion and even dismissal by many medical professionals. But now, thanks to a new, multi-year grant, there is hope for a better understanding and treatment for chronic fatigue syndrome, or CFS. In […]

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