ME Research

#MEAction Rejects The Findings Of The SMILE Trial Of The Lightning Process For Chronic Fatigue Syndrome

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    From #MEAction.   Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: “The SMILE trial of the Lightning Process, a known quack treatment, for ME/CFS, used unblinded treatment coupled with subjective, self-report outcomes. It illustrates that such serious […]

Molecular Underpinnings Of ME/CFS Explored At The Open Medicine Foundation Symposium

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  By Cort Johnson in Health Rising.   “This is not a disease that can be solved by one person. It needs a community, and lots of expertise. I will work with anybody to do this.” Ron Davis The Working Group was impressive. Davis had Bob Naviaux to his left and Maureen Hanson next to him […]

Deep Dive Into The Science On ME

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    By Adrianne Tillman in Open Medicine Foundation.   Leading scientists presented their research on ME/CFS at the day-long Community Symposium on the Molecular Basis of ME/CFS* at Stanford on Aug. 12. The researchers spoke at length about the complicated biological processes involved, their study results and the limitations of their conclusions presented thus far. The […]

Mike Harley’s 26 EU Marathons For Invest In ME Research – Lithuania Sunday 10 September 2017

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  Mike Harley is running an amazing 26 Marathons across Europe to raise awareness of ME, and funds for Invest in ME Research. Next one up, his 12th, is on Sunday 10th of September 2017 in Vilnius in Lithuania. A part of what Mike does is to get in touch with locals in the area […]

Osler’s Web – Inside The Labyrinth Of The Myalgic Encephalomyelitis Epidemic

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    A Review of Osler’s Web by Hillary Johnson.   About the book…..   The publication of Osler’s Web was both a literary event and a rare example of immersive journalism, the result of shoe leather reporting undertaken by journalist Hillary Johnson over a period of nine years.  Reviewers called Osler’s Web a watershed in the history of […]

Is Poor Sleep Pummelling the Immune System In ME/CFS And Fibromyalgia ? A Vicious Circle Examined

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    By Cort Johnson in Simmaron Research.   Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgia (FM) know the consequences of poor sleep – the fatigue and pain, the difficulty concentrating, the irritability and more. Sleep is when our body rejuvenates itself; no sleep – no rejuvenation. Given how important sleep is to […]

Exercise Tests Suggest Autoimmunity Causes the Exertion Problems In Chronic Fatigue Syndrome, Fibromyalgia And POTS

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  By Cort Johnson in Health Rising.   Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, but for David Systrom,  a pulmonologist, it was all about demand. He didn’t seek chronic fatigue syndrome patients out – quite the contrary.  When Systrom was given control of a clinical cardiopulmonary […]

Invest In ME Research Fund Update

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      Invest in ME Research has now reached the target set for the B-cell/rituximab fund. This is another major target reached and is a wonderful achievement by dedicated supporters and friends across the world. The total of funds raised or pledged for B-cell/rituximab projects is £520,000. From this the charity has already funded […]

The First Community Symposium On The Molecular Basis Of ME/CFS

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    From storify.com.   On August 12, 2017, the Community Symposium on the Molecular Basis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) convened ~300 researchers, clinicians, patients, caregivers, families, and advocates at Stanford University – and nearly 3000 more via live-stream. Here’s what happened.   There is a debilitating, mysterious disease out there that affects […]

Post Seventeen – The PACE Trial Scandal

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    From the Blog, puffins&penguins&me   I have been wanting to write about The PACE Trial for some time, about the background, the controversy and where we are at today. I have tried, but unlike my usual posts it is very technical, involves a lot of research and there’s a lot to cover. I just don’t […]

Stanford: Scientist Searches For Answer To His Son’s Devastating Condition

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  By Lisa M. Kreiger in The Mercury News.   As a renowned Stanford scientist, Ron Davis has a deep appreciation for the power of modern medicine. And yet an explanation for the disease afflicting his own beloved son eludes him. Son Whitney, 33, suffers from such severe Chronic Fatigue Syndrome that he is bedridden, unable to […]

Major Stanford Study Indicates Chronic Fatigue Syndrome (ME/CFS) Is Inflammatory Disorder

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  By Cort Johnson in Simmaron Research.   There’s been a great deal of controversy and confusion surrounding ME/CFS — even whether it is an actual disease. Our findings show clearly that it’s an inflammatory disease and provide a solid basis for a diagnostic blood test.” Mark Davis There’s nothing like a high-profile study from a […]

Metabolic Switch May Bring On Chronic Fatigue Syndrome

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  By Andy Coghlan in New Scientist. It’s as if a switch has been flicked. Evidence is mounting that chronic fatigue syndrome (CFS) is caused by the body swapping to less efficient ways of generating energy. Also known as ME or myalgic encephalomyelitis, CFS affects some 250,000 people in the UK. The main symptom is persistent […]

OMF Symposium To Provide First Look At Metabolomic / Immune Results In ME/CFS

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    By Cort Johnson in Health Rising.   The Real Action – The Working Group The Open Medicine Foundation’s “Community Symposium on the Molecular Basis of ME/CFS” is coming up next week. The Symposium follows a two-day workshop – an ME/CFS research jam session that dozens of researchers and MD’s will participate in. Davis […]

The European ME/CFS Biomarker Landscape Project: An Initiative Of The European Network EUROMENE

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  From The Journal of Translational Medicine.   Authors and Contributors as listed in article. Abstract Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) is a common and severe disease with a considerable social and economic impact. So far, the etiology is not known, and neither a diagnostic marker nor licensed treatments are available yet. The EUROMENE […]

A New Clue Is Helping To Solve The Mystery Behind Chronic Fatigue Syndrome

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  By Leah Rosenbaum in Seeker.   A recent study shows that cytokines are elevated in patients with severe chronic fatigue syndrome, potentially paving the way for a more definitive test and cure. Almost everyone feels sleepy in the morning without their first cup of coffee. But there’s a big difference between “I need caffeine” fatigue […]

Researchers Identify Biomarkers Associated With Chronic Fatigue Syndrome Severity

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  From Stanford Medicine.   Researchers at the Stanford University School of Medicine have linked chronic fatigue syndrome to variations in 17 immune-system signalling proteins, or cytokines, whose concentrations in the blood correlate with the disease’s severity. The findings provide evidence that inflammation is a powerful driver of this mysterious condition, whose underpinnings have eluded researchers for […]

More Clues Link Immune System Imbalance With Chronic Fatigue Syndrome

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  By Giorgia Guglielmi in Science.   After a 5-month road trip across Asia in 2010, 22-year-old college graduate Matthew Lazell-Fairman started feeling constantly tired, his muscles sore and head aching. A doctor recommended getting a gym membership, but after the first training session, Lazell-Fairman’s body crashed: He was so exhausted he couldn’t go to work as […]

ME/CFS Genes Study

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    From the Institute For Neuro Immune Medicine   Thank you for your interest in the ME/CFS Genes Study! We are currently recruiting ME/CFS patients AND Healthy Controls for this completely web based study to create a one of a kind genetic database for individuals with ME/CFS. Participation for this study requires you to have a computer […]

The Making Of The PACE Scandal

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    From Centre for Welfare Reform.   A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution of the Journal of Health Psychology to the literature concerning interventions to manage chronic  health problems. The […]

The Big Fishing Expedition: Report From The NIH Intramural Study On ME/CFS

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    By Cort Johnson in Simmaron Research.   The NIH’s Intramural Study on ME/CFS now underway is almost certainly the most comprehensive chronic fatigue syndrome (ME/CFS) study ever done. In fact, it may be one of the more multi-faceted studies done in any disease. It’s breadth is astonishing. Besides the blood, urine, fecal matter […]

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