ME Stories

Why I’m Disappointed In The Lack Of Awareness About ME/CFS Almost 20 Years Post Diagnosis


      By Emma Tierney in The Mighty.   We are 19 years on now from the year I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The year a GP said to me in the most patronizing of voices, “you need an exercise bike” during an appointment that I’d been carried into by my […]

Mixed Blessings


    WhoME?  –  Learning to live with CFS/ME.   A couple of weeks ago I had a cold/flu virus and I was really suffering.  My body ached, I couldn’t tolerate the feeling of anything touching my skin and I hardly ate or drank for days.  In short it was just a horrible experience undoubtedly […]

Humans Of ME/CFS – Cecelia E.


  From Solve ME/CFS Initiative.   It started as a fever. One day I was healthy, strong, and active. The next day I was ill in a “flu” that wouldn’t leave. This happened more than four years ago and that day forever will be the line between before and after. Before, I could be active […]

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