ME Support

A Self-Help Guide To Managing Myalgic Encephalomyelitis

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    From ME Support.   Introduction I have had Myalgic Encephalomyelitis of varying degrees for the majority of my life, including periods of being housebound and bedridden. Conventional medicine offers us few options, and we’re faced with conflicting advice on living with M.E.; therefore, it’s difficult to know which way to turn. One thing […]

M.E. Information

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    From ME Support.   What is M.E.? The most frequently asked questions form this resource, which doubles as a useful information sheet to download. Myalgic “my-AL-jik” means muscle pain. Encephalomyelitis “en-SEF-uh-lo-MY-uh-LY-tis” means inflammation of the brain and spinal cord. A Short History of M.E. An insight into the history of this debilitating condition and the efforts […]

Sjögren’s Syndrome

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  From ME Support. What is Sjögren’s Syndrome Sjögren’s Syndrome is the UK’s second most common autoimmune rheumatic disease, yet the condition remains under-recognised and frequently under-treated. It does not command a high profile within the medical profession, and the general public is largely unaware of the problems faced by sufferers. In reality, Sjögren’s Syndrome is […]

Inside I’m Dancing

Dancing in the Rain

    By Chloe Leanne Brooks in ME Support.   I used to live by the motto “Don’t wait for the storm to pass, learn to dance in the rain” – but unfortunately, in my life this is no longer the case. My life is stormy. I can’t dance through this pain and heartache any more because […]

Care For Someone With Severe Myalgic Encephalomyelitis

Severe ME

  By Greg Crowhurst in M.E. Support.   Linda, my wife, collapsed over two decades ago and very quickly became bed bound. In the months leading up to her collapse, she had had several operations and a long chest infection. For almost two years prior to that she was in constant pain, experiencing severe pins […]

Please Remember the ‘Forgotten Ones’ Who Are Sick At Home

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  By Jennifer Bolton in The Mighty.   We are the forgotten ones. The ones who are housebound. The ones who need help just to sit up. The ones society doesn’t see. We are the ones trapped in our houses and behind closed doors. We are the ones articles don’t talk about but neighbors whisper about. […]

The Rough Guide To Accessible Britain

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  The brand new sixth edition of the Rough Guide to Accessible Britain is now available to view for free via our online reader. It’s packed with over 200 inspiring ideas for fantastic worry-free days out with reviews, hints and tips on some of the UK’s best attractions written by and for disabled people. To […]

Residents Festival 2017

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    From Your Local Link.   We invite you to be a tourist in York Sat Jan 28th – Sun 29th 2017…for free! York Residents’ Festival is your chance to explore the city and be a tourist for the weekend – for free! Organised by Visit York this annual Festival is our way of saying a […]

Hebden Bridge – The Award-Winning Town With An Independent Streak

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    By Chris Bond in The Yorkshire Post.   Hebden Bridge is known for its independent shops and community spirit and has just been crowned Britain’s Best Small Market Town. It’s early evening on a cold and miserable mid-December day. The rain is bouncing off the pavement and most people are getting ready to […]

Libraries Should Be Places To Cherish, Not Shut Down

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    By Jayne Dowle in The Yorkshire Post.   Is there another public building which evokes as much passion as a library? We don’t usually protest about the closure of a tax office or a law court. Yet when our library in Barnsley was demolished a few years ago, people wept openly and joined […]

Listen To M.E. Part II: Mike Dessin Goes Down Again – A CFS/ME Relapse Story

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    By Mike Dessin in Health Rising.   I’ve had CFS/ME for 21 years. Nearly 6 years ago I began to recover from a three-year stint of being completely bedridden – the last few months of which I was near death. The first time my doctor saw me he was amazed I was still […]

Caterham Model’s Fashion Show Raises Over £800 For ME

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  By Kevin Black in Local People.   Caterham based model Joanna Chamberlain has raised over £800 for charity with a spectacular fashion show held in the town’s New Caterham Arms pub. Joanna and Her Vintage Violets  was the title of the evening and the theme was the 1940s-50s and was in aid of www.investinme.org a […]

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