ME Symptoms

Talk To Me ….But Slowly

Talking

  TALK TO ME….BUT SLOWLY   I used to love the banter Noisy bar room chat Then when the beastly ME hit It put a stop to that   Noise is now my Kryptonite My Achilles’ heel is sound It’s not by choice That the tone of a voice Can knock me to the ground […]

Fit And Active Cardiff Woman Left Bedbound After Developing ME

Darkness

  From ITV News.   For the past year, 28-year-old Natalie Price has been living in darkness and silence. In 2014, she was diagnosed with myalgic encephalomyelitis, commonly known as ME or chronic fatigue syndrome. Sufferers complain of symptoms including extreme tiredness and fatigue, constant pain, extreme headaches and sensitivity to light and sounds. Since […]

‘Hard To Cope’ Mum-Of-Two With Chronic Fatigue Says Condition Is Triggered By Her Noisy Kids

MS brain

  By John Siddle and Gemma Mullin, Digital Health Reporter in The Sun.   Katy Beardsworth has ME and has to lie down in a dark room when her kids start being loud. Katy Beardsworth, 38, has ME – a cruel illness which presents as unrelenting exhaustion and profound pain. The deeply misunderstood neurological condition […]

Toxic Masculinity Made My ME Much More Punishing

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    By Jack Croxall in #MEAction.   I came to on the floor of a supermarket in an affluent London borough. I was staring up at a paneled ceiling, half-blinded by piercing white lights. After a groggy moment of confusion, panic set in. I leapt up, finding myself in the middle of a queue […]

If Your Chronic Illness Is Making You Want to Give Up

Frustration Chronic Illness

  By Candida Reece in The Mighty. Having a chronic illness can mean life can be rough. It means going to the store with only one sock on because you didn’t want to go through the pain to find the other one; or maybe your shirt is inside out, or you have two different shoes, or clothes […]

Migraines And Other Headaches In Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS)

Migraine

  By Brent Wells in Health Rising.   If you’ve ever suffered from any type of headache, you know that there is nothing funny about them. However, because migraines and headaches are not fatal and often do not result in permanent disability for most, their importance to public health has long been understated. This is […]

21 People Describe What Sensory Overload Feels Like

Sensory

  By Melissa McGlensey in The Mighty.   Sensory overload happens when too much sensory stimulus is occurring at once — it can be triggered by a crowded room, a TV turned up too loud, strong aromas, fluorescent lighting — or a hundred other things. It’s often associated with certain diagnoses like autism, sensory processing disorder, chronic fatigue syndrome, fibromyalgia, post-traumatic stress […]

What Causes Chronic Fatigue ? What We Know, Don’t Know And Suspect

Research Study

    By Mark Guthridge, Monash University, in The Conversation.    Around 200,000 people in Australia suffer from a debilitating illness often branded with the unfortunate name of chronic fatigue syndrome (CFS). I say “unfortunate” because this implies patients are simply tired, run-down, burnt-out or overly stressed. But myalgic encephalomyelitis, or ME/CFS as it is now more commonly called, […]

What Exactly Is Myalgic Encephalomyelitis ?

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    By Torstein Egeland et al in Tidsskriftet.   Although there are good diagnostic criteria for myalgic encephalomyelitis, knowledge of the disease is often lacking and this can result in misdiagnosis and incorrect treatment. There is a need for more research, greater expertise among clinicians, and refinement of the diagnostic criteria. In the literature and […]

What It’s Like To Live With Chronic Fatigue And Depression

ME

    By Eleanor Segall in Metro Lifestyle.   Chronic fatigue syndrome, also known as ME (myalgic encephalopathy) is estimated to effect 250,000 people in the UK. It is a serious and debilitating illness that at times can render its sufferers unable to function effectively due to the level of fatigue. ME is more than just exhaustion. […]

Riddle Of The Quiet Killer

Australia

  From The Sydney Morning Herald. Alison Hunter used to say she had lemonade in her legs and “shimlers” in her face. Still in primary school when she first became ill, those were the words she chose to describe the bizarre and frightening sensations that afflicted her. Vocabulary was still an issue when Alison died. […]

Living Life ‘Light’ With ME

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LIVING LIFE ‘LIGHT’ WITH ME When ME strikes We know the score Our lives won’t be As they were before We learn to pace Wind things down Cut things out Try not to drown Living on the edge of fun As if your life is all but done In the shadows, out of sight Living […]

Living In A World Apart

Christmas

  By Suzan L. Jackson in ProHealth.   Holiday season is upon us, and that fills me with dread because it means lots of visits with extended family who see us only rarely. Our invisible illnesses become even more invisible at these times. I have been able to improve my condition and my son’s greatly […]

Humans of ME/CFS – Camille C.

ME !

  From Solve ME/CFS Initiative.   I was an elementary school music teacher, community volunteer, church pianist, wife, and young mother when I became ill in March, 2000. My doctor said I had mono and I was totally bed bound. The sickness wiped away my memory and I lost memories of my children as babies, […]

Grandma With Severe Chronic Fatigue Syndrome Misses Daughter’s Wedding And Grandchildren’s Childhoods

ME

  By John Siddle in Surrey Live. The cruel condition affects 250,000 people in the UK. An 80-year-old from Farnham has had to skip every family gathering, birthday and Christmas over the past 20 years after a shock diagnosis of a devastating ‘living death’ illness. Nancy Collins a former NHS nurse was struck down with Myalgic Encephalomyelitis (ME) 20 […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

Lonely

  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and […]

‘Insight’ On Chronic Fatigue Syndrome: Andrew’s Experience

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From ME News Australia.   Andrew Bretherton was working as a personal trainer, kung fu and basketball coach and finishing a psychology and sports science degree when he became ill. He is now mostly housebound due to ME. He tried graded exercise therapy at a Melbourne clinic where he was blamed for his illness, told […]

‘I’m 33 And Have Been Living In Aged Care For Eight Years’

The Age

  By Ketra Wooding in The Age.   I’m 33 and I live in a dementia ward, which is exactly as bad as you imagine. But I’m not here because I have dementia. I’m here because it is the quietest (except when the residents are yelling), least perfume-saturated ward. I need my environment to be quiet and chemical […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

Smart Phones

  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

Chronic Fatigue Syndrome: Everything You Need To Know

Doctor

  By Dr Nick Knight in GQ.   For years this debilitating disorder was viewed with scepticism and doubt, but the GQ Doctor and most medical professionals now agree it is a real and serious condition. Dear GQ Doc, Is chronic fatigue syndrome the same as ME? David, via email. For years, chronic fatigue syndrome […]

Post Twenty Seven. No, I’m Not Tired.

ME Drained

  From puffins&penguins&me.   The ME Association was recently asked by the media to compile a piece describing the difference between having ME and just feeling tired all the time. Given the frustratingly common misconception that ME is ‘feeling tired’, this of course resulted in a lively discussion on their Facebook page, and it prompted me to […]

Misdiagnosis Of M.E. & Missed Diagnoses Of Other Diseases

Doctor

  By Jo Best in The ME Chatroom.   There is a high rate of misdiagnosis of Myalgic Encephalomyelitis and of doctors missing other medical conditions, either at onset or over the years of having the disease. ME is a “serious and life-threatening disease” (FDA) in itself, but several symptoms overlap with other medical conditions, […]

Brain Inflammation Now Documented in Chronic Fatigue Syndrome

brain-power

  By Linda J. Dobberstein, Chiropractor, Board Certified in Clinical Nutrition, in Wellness Resources.   Cutting-edge research published just days ago, shows that patients dealing with Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME) have neurological inflammation and it is widespread throughout the brain. Up until recently, it has only been able to be hypothesized that these individuals dealing with […]

Severe ME Day 8th August, 2018: Understanding & Awareness

Severe ME

POSTED BY MEADVOCACY ADVISORY-COMMITTEE.   “In my experience (ME/CFS) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” ( Daniel L. Peterson, M.D.) UPDATED AUGUST 2018 from the original MEadvocacy 2015 Severe ME Day Blog Myalgic Encephalomyelitis (ME) is a chronic, often severely disabling disease, that […]

Why I Experience ‘Flare Fear’ On My Good And Bad Health Days

ME !

  By Samantha Taylor in The Mighty.   The Fear. The anxious, stomach churning, paranoia riddled feeling deep inside when you feel that something is about to go wrong. You feel sick, you’re sweating and there’s an impending sense of doom. You’ve felt it right? I think we all have at some point. I certainly […]

Inside The Isolation Caused By ME/CFS Hypersensitivity

Sensory

  By Jo Moss in The Mighty.   I find hypersensitivity one of the hardest myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) symptoms to cope with as it can be so isolating. Hypersensitivity comes in many forms: hypersensitivity to light, touch, noise, smells, foods, medication, chemicals, heat, cold and irritants like pollen and dust. All of these […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome

ME

  By Zoe Bacon in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

Scientific Study Reveals Severe Level Of Disability Caused By ME

Scientist using a microscope

  From Ekklesia.   A misunderstood disease wrongly labelled make-believe by some GPs is more devastating to sufferers than multiple sclerosis, a new scientific study has found. More than 250,000 people in the UK have ME (myalgic encephalomyelitis), which manifests as unrelenting fatigue and profound pain. The condition, also known as Chronic Fatigue Syndrome, has no […]

Why Choosing To Use A Wheelchair Was One Of The Best Things I’ve Done

traveling-in-a-wheelchair

  By Hay Green in The Mighty.   I know you might be thinking, “Did I read that correctly? Who would want to use a wheelchair?” Before you judge me, please read on. When I was 23 I was diagnosed with myalgic encephalomyelitis (ME). I had just been promoted at work, and the diagnosis of […]

Much Can Be Done To Ease ‘Chronic Fatigue Syndrome’ Symptoms

Doctor

    By Miriam E Tucker in Medscape.   SALT LAKE CITY, UT — The illness commonly known as chronic fatigue syndrome is complex and currently incurable, but clinicians can still do a great deal to manage symptoms and improve patients’ quality of life, experts agree. In a 2-day meeting held March 2 and 3, […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.

ME

By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

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