ME Symptoms

What Exactly Is Myalgic Encephalomyelitis ?

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    By Torstein Egeland et al in Tidsskriftet.   Although there are good diagnostic criteria for myalgic encephalomyelitis, knowledge of the disease is often lacking and this can result in misdiagnosis and incorrect treatment. There is a need for more research, greater expertise among clinicians, and refinement of the diagnostic criteria. In the literature and […]

What It’s Like To Live With Chronic Fatigue And Depression

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    By Eleanor Segall in Metro Lifestyle.   Chronic fatigue syndrome, also known as ME (myalgic encephalopathy) is estimated to effect 250,000 people in the UK. It is a serious and debilitating illness that at times can render its sufferers unable to function effectively due to the level of fatigue. ME is more than just exhaustion. […]

Riddle Of The Quiet Killer

Australia

  From The Sydney Morning Herald. Alison Hunter used to say she had lemonade in her legs and “shimlers” in her face. Still in primary school when she first became ill, those were the words she chose to describe the bizarre and frightening sensations that afflicted her. Vocabulary was still an issue when Alison died. […]

Living Life ‘Light’ With ME

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LIVING LIFE ‘LIGHT’ WITH ME When ME strikes We know the score Our lives won’t be As they were before We learn to pace Wind things down Cut things out Try not to drown Living on the edge of fun As if your life is all but done In the shadows, out of sight Living […]

Living In A World Apart

Christmas

  By Suzan L. Jackson in ProHealth.   Holiday season is upon us, and that fills me with dread because it means lots of visits with extended family who see us only rarely. Our invisible illnesses become even more invisible at these times. I have been able to improve my condition and my son’s greatly […]

Humans of ME/CFS – Camille C.

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  From Solve ME/CFS Initiative.   I was an elementary school music teacher, community volunteer, church pianist, wife, and young mother when I became ill in March, 2000. My doctor said I had mono and I was totally bed bound. The sickness wiped away my memory and I lost memories of my children as babies, […]

Grandma With Severe Chronic Fatigue Syndrome Misses Daughter’s Wedding And Grandchildren’s Childhoods

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  By John Siddle in Surrey Live. The cruel condition affects 250,000 people in the UK. An 80-year-old from Farnham has had to skip every family gathering, birthday and Christmas over the past 20 years after a shock diagnosis of a devastating ‘living death’ illness. Nancy Collins a former NHS nurse was struck down with Myalgic Encephalomyelitis (ME) 20 […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

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  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and […]

‘Insight’ On Chronic Fatigue Syndrome: Andrew’s Experience

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From ME News Australia.   Andrew Bretherton was working as a personal trainer, kung fu and basketball coach and finishing a psychology and sports science degree when he became ill. He is now mostly housebound due to ME. He tried graded exercise therapy at a Melbourne clinic where he was blamed for his illness, told […]

‘I’m 33 And Have Been Living In Aged Care For Eight Years’

The Age

  By Ketra Wooding in The Age.   I’m 33 and I live in a dementia ward, which is exactly as bad as you imagine. But I’m not here because I have dementia. I’m here because it is the quietest (except when the residents are yelling), least perfume-saturated ward. I need my environment to be quiet and chemical […]

Why My Chronic Fatigue Is Like A Cell Phone Battery

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  By Christen Marie in The Mighty.   For those of us dealing with chronic pain or chronic illness such as fibromyalgia, autoimmune disorders, or any host of other physical or mental health issues, there is often this one overriding issue that can wreak havoc on our lives and yet be very difficult to explain to the average person. Chronic fatigue. Chronic […]

Chronic Fatigue Syndrome: Everything You Need To Know

Doctor

  By Dr Nick Knight in GQ.   For years this debilitating disorder was viewed with scepticism and doubt, but the GQ Doctor and most medical professionals now agree it is a real and serious condition. Dear GQ Doc, Is chronic fatigue syndrome the same as ME? David, via email. For years, chronic fatigue syndrome […]

Post Twenty Seven. No, I’m Not Tired.

ME Drained

  From puffins&penguins&me.   The ME Association was recently asked by the media to compile a piece describing the difference between having ME and just feeling tired all the time. Given the frustratingly common misconception that ME is ‘feeling tired’, this of course resulted in a lively discussion on their Facebook page, and it prompted me to […]

Misdiagnosis Of M.E. & Missed Diagnoses Of Other Diseases

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  By Jo Best in The ME Chatroom.   There is a high rate of misdiagnosis of Myalgic Encephalomyelitis and of doctors missing other medical conditions, either at onset or over the years of having the disease. ME is a “serious and life-threatening disease” (FDA) in itself, but several symptoms overlap with other medical conditions, […]

Brain Inflammation Now Documented in Chronic Fatigue Syndrome

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  By Linda J. Dobberstein, Chiropractor, Board Certified in Clinical Nutrition, in Wellness Resources.   Cutting-edge research published just days ago, shows that patients dealing with Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME) have neurological inflammation and it is widespread throughout the brain. Up until recently, it has only been able to be hypothesized that these individuals dealing with […]

Severe ME Day 8th August, 2018: Understanding & Awareness

Severe ME

POSTED BY MEADVOCACY ADVISORY-COMMITTEE.   “In my experience (ME/CFS) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages.” ( Daniel L. Peterson, M.D.) UPDATED AUGUST 2018 from the original MEadvocacy 2015 Severe ME Day Blog Myalgic Encephalomyelitis (ME) is a chronic, often severely disabling disease, that […]

Why I Experience ‘Flare Fear’ On My Good And Bad Health Days

ME !

  By Samantha Taylor in The Mighty.   The Fear. The anxious, stomach churning, paranoia riddled feeling deep inside when you feel that something is about to go wrong. You feel sick, you’re sweating and there’s an impending sense of doom. You’ve felt it right? I think we all have at some point. I certainly […]

Inside The Isolation Caused By ME/CFS Hypersensitivity

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  By Jo Moss in The Mighty.   I find hypersensitivity one of the hardest myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) symptoms to cope with as it can be so isolating. Hypersensitivity comes in many forms: hypersensitivity to light, touch, noise, smells, foods, medication, chemicals, heat, cold and irritants like pollen and dust. All of these […]

What It Means To Experience ‘Payback’ With Chronic Fatigue Syndrome

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  By Zoe Bacon in The Mighty.   Post-exertional malaise, or “payback,” is one of the key diagnostic criteria for myalic encephalomyelitis/chronic fatigue syndrome (ME/CFS). It is also one of the symptoms that is hardest for people who haven’t experienced the condition to understand. I often think of it as being similar to a hangover, […]

Scientific Study Reveals Severe Level Of Disability Caused By ME

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  From Ekklesia.   A misunderstood disease wrongly labelled make-believe by some GPs is more devastating to sufferers than multiple sclerosis, a new scientific study has found. More than 250,000 people in the UK have ME (myalgic encephalomyelitis), which manifests as unrelenting fatigue and profound pain. The condition, also known as Chronic Fatigue Syndrome, has no […]

Why Choosing To Use A Wheelchair Was One Of The Best Things I’ve Done

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  By Hay Green in The Mighty.   I know you might be thinking, “Did I read that correctly? Who would want to use a wheelchair?” Before you judge me, please read on. When I was 23 I was diagnosed with myalgic encephalomyelitis (ME). I had just been promoted at work, and the diagnosis of […]

Much Can Be Done To Ease ‘Chronic Fatigue Syndrome’ Symptoms

Doctor

    By Miriam E Tucker in Medscape.   SALT LAKE CITY, UT — The illness commonly known as chronic fatigue syndrome is complex and currently incurable, but clinicians can still do a great deal to manage symptoms and improve patients’ quality of life, experts agree. In a 2-day meeting held March 2 and 3, […]

Myalgic Encephalomyelitis. Unknown Cause. No Cure. New Hope.

ME

By Lily Williams in ASBMB Today. Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science […]

A Love Letter To Anyone Who Struggled To Shower Today

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  By Mariann Martland in The Mighty.   This is a love letter to all those for whom showering is repeatedly a laborious exercise, physically, emotionally or both. To those who spend days putting it off because you know just how exhausting or painful it feels, right down to your bones, just to stand under the water for that […]

From ME To You

Lost

  By Lisa Alioto in Herald Review.   Myalgic encephalomyelitis (ME) is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems. What does that really mean? Life with ME is ever-changing, painful in every way. An abbreviated view would be to share a small piece of a day in […]

Chronic Fatigue Syndrome, Fatigue, And Safety

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  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

My Life As ‘Little Miss Brain Fog’

Brain Fog

    By Jane Shaw in The Mighty.   Like its name, myalgic encephalomyelitis is also rather complicated and extraordinary. The illness made Little Miss Brain Fog feel like Little Miss Dotty, Little Miss Scatterbrain, Little Miss Fickle, Little Miss Whoops, Mr. Bump, Mr. Topsy Turvey, Mr. Forgetful, Mr. Lazy, Mr. Muddle, Mr. Dizzy, Mr. […]

Myth: ME Is A Mental Illness

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  By Riki Janssen in Observant.   Mythbusters Patients are not just a little bit tired, but are permanently exhausted. Sleeping doesn’t help much – if they can sleep properly at all – and they usually pay a high price for any physical exertion: remaining even more tired than they were, for days on end. According to […]

Stanford Medicine X Ignite Talk

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    By Ryan Prior in rtprior.com.   Below is the text of a speech I delivered on the main stage of Stanford Medicine X on September 16, 2017. Giving the speech was a highlight of 2017, and I used the occasion to talk personally about my disease and how it affects my outlook on […]

Leaky Gut: What Is It, And What Does It Mean For You ?

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    By Marcelo Campos, MD  in Harvard Health Publishing.   Before the medical community had better understanding of the mechanisms that cause disease, doctors believed certain ailments could originate from imbalances in the stomach. This was called hypochondriasis. (In Ancient Greek, hypochondrium refers to the upper part of the abdomen, the region between the breastbone and the navel.) […]

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