ME Symptoms

From ME To You

Lost

  By Lisa Alioto in Herald Review.   Myalgic encephalomyelitis (ME) is a devastating multi-system disease that causes dysfunction of the neurological, immune, endocrine and energy metabolism systems. What does that really mean? Life with ME is ever-changing, painful in every way. An abbreviated view would be to share a small piece of a day in […]

Chronic Fatigue Syndrome, Fatigue, And Safety

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  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

My Life As ‘Little Miss Brain Fog’

Brain Fog

    By Jane Shaw in The Mighty.   Like its name, myalgic encephalomyelitis is also rather complicated and extraordinary. The illness made Little Miss Brain Fog feel like Little Miss Dotty, Little Miss Scatterbrain, Little Miss Fickle, Little Miss Whoops, Mr. Bump, Mr. Topsy Turvey, Mr. Forgetful, Mr. Lazy, Mr. Muddle, Mr. Dizzy, Mr. […]

Myth: ME Is A Mental Illness

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  By Riki Janssen in Observant.   Mythbusters Patients are not just a little bit tired, but are permanently exhausted. Sleeping doesn’t help much – if they can sleep properly at all – and they usually pay a high price for any physical exertion: remaining even more tired than they were, for days on end. According to […]

Stanford Medicine X Ignite Talk

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    By Ryan Prior in rtprior.com.   Below is the text of a speech I delivered on the main stage of Stanford Medicine X on September 16, 2017. Giving the speech was a highlight of 2017, and I used the occasion to talk personally about my disease and how it affects my outlook on […]

Leaky Gut: What Is It, And What Does It Mean For You ?

Gut

    By Marcelo Campos, MD  in Harvard Health Publishing.   Before the medical community had better understanding of the mechanisms that cause disease, doctors believed certain ailments could originate from imbalances in the stomach. This was called hypochondriasis. (In Ancient Greek, hypochondrium refers to the upper part of the abdomen, the region between the breastbone and the navel.) […]

‘Unrest’ Puts Spotlight On Disease That Affects Millions, Including Riverside Girl, 12

Jen Unrest

      By Darcel Rockett in The Chicago Tribune If you had to live your life knowing that you have only 20 percent of your energy to expend on any given day, how would you ration out your days? How would you make your decisions if hours and days of pain followed, while trying to recharge? […]

The Mystery Illness That Plagued This Writer For Years

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    By Julie Rehmeyer in Oprah.com.   On Saturday, November 4, 2006, I woke up semiparalyzed. My legs felt lead-plated; the signals instructing them to move seemed to get scrambled on the way down. It was as if someone had sloppily replaced my limbs with those of an elephant and connected only 10 percent of […]

Worse Than The Disease

GET

  A case study of Graded Exercise Therapy from UNDARK.   After living in Oklahoma for 40 years, Nita and Doug Thatcher retired in 2009 to the Rust Belt city of Lorain, Ohio, a Cleveland suburb that hugs Lake Erie. When Nita needed to find a new primary care doctor, a friend recommended someone from the Cleveland […]

Glial Cell Inhibitors: The Next Sleep Drugs For Fibromyalgia And Chronic Fatigue Syndrome (ME/CFS) ?

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    By Cort Johnson in Health Rising.   Sleep disturbances and severe stress as glial activators: key targets for treating central sensitization in chronic pain patients? Jo Nijs,Marco L. Loggia,Andrea Polli,Maarten Moens,Eva Huysmans,Lisa Goudman, Expert Opinion on Therapeutic Targets  Volume 21, 2017 – Issue 8 . The interplay between central sensitization (pain originating in the central nervous […]

Graded Exercise Therapy Causes Harm In ME/CFS. Everyone Knows That, Right ?

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    From The Self Taught Author Blog by Clark Ellis.   What is patently obvious to the majority of ME/CFS sufferers is not at all obvious to most others. It is not obvious to NHS staff. It not obvious to academics and politicians. It is not obvious to the public. There are many reports […]

Chronic Fatigue Syndrome Is…….

Mental Health

  From Health Rising.   A Major Disorder “I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas, 2009 The name “Chronic Fatigue Syndrome” has long obscured the serious nature of the disorder. Centers For […]

Is Poor Sleep Pummelling the Immune System In ME/CFS And Fibromyalgia ? A Vicious Circle Examined

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    By Cort Johnson in Simmaron Research.   Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgia (FM) know the consequences of poor sleep – the fatigue and pain, the difficulty concentrating, the irritability and more. Sleep is when our body rejuvenates itself; no sleep – no rejuvenation. Given how important sleep is to […]

D-Ribose For Fibromyalgia & Chronic Fatigue Syndrome

D Ribose

    By Adrienne Dellwo in Very Well.   D-ribose is a supplement that’s sometimes recommended for people with fibromyalgia and chronic fatigue syndrome. Also called ribose or Beta-D-ribofuranose, it is a type of sugar that your body produces naturally. It plays several important roles in your body: it helps produce energy in the form of ATP (adenosine triphosphate) it’s a […]

Chronic Fatigue Syndrome Is NOT Just In The Mind‚ Say Scientists

Lost

  By Tanya Farber in the Sunday Times.   A medical breakthrough has put a smile on the tired faces of those with chronic fatigue syndrome‚ often told to simply “get it together‚ exercise and get therapy”. Sufferers of the condition have much higher levels of a range of cytokines in their blood‚ according to […]

A Disease That Cries Out for Research as Many Suffer Silently

Scientist using a microscope

  by Llewellyn King in Inside Sources.   All diseases are cruel, but some have a refined brutality all their own. One such is Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS). It is a monster, often hidden in plain sight; the suffering it inflicts is limitless. Tom Camenzind is a handsome young man who […]

Transitioning From An Abled Life

Lonely-man

  By Christina Baltais in #MEAction.   When a sudden and unexpected illness catapulted my life into a completely different path, life as I had come to know it, was irrevocably changed. Prior to this, I thrived on the fast paced career trajectory that our Western ableist society promotes, rewards, and idolizes. I was by […]

Losing Myself To Myalgic Encephalomyelitis

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  By Lisa Alioto in The Mighty.   The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening.   A sense of relief actually washes over me. Almost a weird sense of elation. Even though I’ve just been told I […]

M.E. Meant This Blog Took Me Several Months To Write

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    By Isabel Walter in Huffpost.   On holiday in the Peak District in June 2007, three months after being diagnosed with ME, I sat down one afternoon with a pile of postcards and discovered I could no longer write. The words were clear in my head, but the pen in my hand made […]

Chronic Fatigue Syndrome – A Roadmap For Testing And Treatment

Road map vector with street pathway route pin icon on the way tr

  Introduction Chronic fatigue syndrome (CFS), also called myalgic encephalomyelitis (ME) and usually abbreviated to ME/CFS, is a neurological condition characterized by cognitive dysfunction, mood disorders, fatigue, post-exertional malaise, and an array of other symptoms. The following guidelines will help you determine: (1) whether you have chronic fatigue syndrome, and if so: (2) which laboratory […]

A Plea From A Fallen Doctor On Chronic Fatigue Syndrome (ME/CFS)

Doctor

  From Reddit.   I was educated at Baylor and practiced medicine for 30 years. I had a thriving practice, a rich social life, and excellent physical and mental health. I loved what I did and loved my life. I ran marathons, spoke at conferences, and chaired non-profits. I am now completely bedridden from post […]

Review: People With ME/CFS Are More Functionally Impaired Than People With Multiple Sclerosis – 19 July 2017

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  From The ME Association. Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease that shares an overlap […]

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