ME Symptoms

Leeds Disabled Activist Campaigning Against Proposed Changes To Chronic Pain Treatment

Chronic Pain

  By Mark Lavery in the Yorkshire Evening Post.   A disabled activist  from Leeds who suffers from a  chronic pain condition is campaigning against major changes to the way patients like them are treated. Saba Mir, 28, of Woodhouse – who is non-binary – has suffered from ME for two years and is in severe and […]

The Brain Fog In Chronic Fatigue Syndrome (ME/CFS) Plus Even Mini Tilt Table Tests Wrack The Severely Ill

Brain Fog

By Cort Johnson in Health Rising.   The two Dutch researchers, C. Linda van Campen and Frans Visser, and Peter Rowe from the U.S., have been on a tear recently. The Van Campen/Visser team (mostly with Peter Rowe) have published 6 ME/CFS studies thus far in 2020, one in 2019 and three in 2018. This […]

Low Brain Blood Flows And Orthostatic Intolerance Ubiquitous In Chronic Fatigue Syndrome (ME/CFS)

brain-power

By Cort Johnson in Health Rising.   Every once in a while a study comes along for which terms like “seminal” or “groundbreaking” seems appropriate. The 2020 Van Campen/Rowe/Visser study, “Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia: A quantitative, controlled study using Doppler […]

How COVID-19 Could Reveal The Secrets Of Chronic Fatigue Syndrome

Fatigue

By David J Craig in Columbia Magazine.   Physicians have seen it before: in the aftermath of a viral epidemic, survivors complain of a crushing lethargy, mental fogginess, sleep difficulty, and muscle pain. Many are eventually diagnosed with myalgic encephalomyelitis, also called chronic fatigue syndrome (ME/CFS), a poorly understood condition that has no FDA-approved treatment and […]

Learning To Rest – We’ll Talk About Pacing Next Time

restless-leg-syndrome

From Lifechangeswithme. What is Pacing? Rest? Unfortunately with ME there isn’t one magic pill or treatment to help us get better – less ethical individuals may claim there is.  Such is the nature of an illness where individuals with similar symptoms yet unknown causes are grouped together with the term “Chronic Fatigue Syndrome, Post-Viral Fatigue and ME.”  […]

Purely Pacing

Jacques

By  Jennie Jaques. This is an article to assist patients with the long-haul symptoms following COVID-19. My article is likely most relevant to Long Covid sufferers in their ‘post-viral’ stage – i.e those who find themselves still battling the symptoms after 4 months. But the sooner the advice can be understood the better. We will […]

Graded Exercise Therapy Dangers

Graded-exercise-therapy-300x192

  From ME International.   Some of these links refer to ME/CFS as per the IOM which is a broad criteria encompassing many patients who may not have ME as defined by the ICC.  For choosing proper research candidates, the IC Primer states on page ii: “…the ICC [International Consensus Criteria] select patients who exhibit explicit multi-systemic […]

Coronavirus And ME: Doctors Fear Wave Of Chronic Fatigue Syndrome

COVID-19-Pandemic-min

  From The Week.   As the UK’s daily death tolls fall and the immediate threat of Covid-19 recedes, doctors are warning that the outbreak may lead to a long-term surge in cases of a debilitating and untreatable disease. Chronic fatigue syndrome, also known as myalgic encephalomyelitis or CFS/ME, is an “illness with a wide […]

Trial By Error: Disinformation About Treatments For Post-Covid Syndrome

David Tuller

    By David Tuller, DrPH Professor Trudie Chalder is a lead investigator of a series of studies of rehabilitative interventions for so-called “medically unexplained symptoms” that have failed to meet expectations but have nevertheless been promoted as demonstrating treatment success. The piece of crap known as the PACE trial is a prime example. Most famously, Professor […]

Update: Post-Covid Fatigue, Post/Long-Covid Syndromes, And ME/CFS

Coronavirus_illustration

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. I am aware that some people with ME/CFS have a number of concerns about the amount of time and effort we are devoting to people with Post-COVID Fatigue and Post/Long-COVID Syndromes. In particular: — the possibility that people with post-COVID fatigue and post/long-COVID syndromes are […]

Covid And Chronic Fatigue: We Must Learn From ME Patients’ Suffering

Coronavirus_illustration

  By Danni Watts, Journalist. Content warning: Contains an image of an ME patient, at her request, which readers may find distressing. There are growing numbers of Covid-19 patients reporting ongoing symptoms, for some lasting months after the initial infection. The cluster of post-viral symptoms commonly includes extreme fatigue, brain fog and widespread pain. For ME patients this […]

COVID-19 Patients Could Be At Risk For Chronic Fatigue Syndrome: ‘Your Whole Life Can Change If You Get This’

Chronic

By Darcel Rockett in The Chicago Tribune. As the world continues to watch the number of COVID-19 cases increase (and daily records being broken), patients with myalgic encephalomyelitis, aka chronic fatigue syndrome, want to tell those recovering from coronavirus to listen up. COVID-19 patients may be at risk of developing the neuroimmune condition ME/CFS that depletes one’s energy. ME/CFS, […]

A Picture Of ME

Writing Poetry

  A Picture Of ME In my mind there is a picture That fades some more each day It shows how my life used to be Before M.E. came to stay A picture full of colour Of fun, of laughs, of life Not of where I am today Of worries, pain, of strife My picture […]

Trial By Error: NICE On Exercise And Post-Covid Syndrome

David Tuller

  By David Tuller, DrPH. As post-covid syndrome has emerged as a major public health concern, so has the likelihood that members of the biopsychosocial ideological brigades will roll out their typical interventions for the “long-haulers”–patients suffering from profound exhaustion and other symptoms for many weeks and months after getting infected with the coronavirus. The […]

The Impact Of Food On Cognition: Potential Implications For Brain Fog In ME

Research

From Jisc R&D.   This study is looking to recruit both healthy individuals and those with a diagnosis of MILD ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue). The aim is to investigate how food impacts your performance on 2 short cognitive tests, a colour naming task and a memory task. Participants will be allocated to either a food […]

The Fear In My Doctor’s Eyes

Anil

  By Anil van der Zee in CAPTURE.DANCE.WORDS.   The honeymoon. Before becoming ill, my relationship with the medical world was always great. It was pretty much straightforward really. During my profession as a dancer, injuries were of course always of a concern. I had to be in close contact with doctors, physiotherapists, massage therapists, […]

Fatigue And ME

Fatigue

Fatigue And ME I have a worry on my mind That spins my head around It causes grief, it’s beyond belief And an answer must be found It’s about a word that’s used a lot A word filled with intrigue Not beat, not weary, not tired or wired But that bleedin’ word fatigue ! It’s […]

OMF Announces New Treatment Trial

research1

  From Open Medicine Foundation.   As part of #MayMomentum, Open Medicine Foundation is thrilled to announce a new clinical trial that builds on OMF-funded research and shows the interconnected strategies of the four OMF-Established ME / CFS Collaborative Research Centers. We hope that you will agree that this thoughtful research strategy deserves your support and that today […]

COVID-19 & The 2nd Wind Blows Into ME/CFS

vikings_season4_cast_judith-E

  By Jennie Jacques in jennie jacques.com.   I have a keen interest in what happens to our body after severe infection, particularly viral infection. And I would like to start my article by highlighting (with gratitude) ‘New Scientist’ who have pre-warned us, “Viral infections have previously been linked to problems with long-term fatigue symptoms. […]

7 Signs That You’re Running Out Of Spoons

DessertSpoons

    By ME/CFS Self-Help Guru.   One frustrating thing about energy limiting chronic illnesses like ME/CFS, Fibromyalgia and Lyme disease, is that energy levels can fluctuate from one day to the next. Christine Miserandino’s Spoon Theory has helped many people understand the concept of rationing out your energy by relating an energy unit to a spoon, […]

Fatigue And ME

Fatigue

Fatigue And ME I have a worry on my mind That spins my head around It causes grief, it’s beyond belief And an answer must be found It’s about a word that’s used a lot A word filled with intrigue Not beat, not weary, not tired or wired But that bleedin’ word fatigue ! It’s […]

Physio’s For M.E.

slider-12

Who we are We are a group of physiotherapists based in the UK who have recognised the issues of physiotherapy for people with ME. ​ Our aims are: – to educate and inform physiotherapists about ME and appropriate management strategies ​ – to support people with ME to feel confident in seeking physiotherapy treatment ​ […]

ME Association Guidance: Coronavirus (covid-19) Update | 09 March 2020

Coronavirus Generic 1

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. The ME Association information and guidance about the coronavirus that was originally issued in early February and updated again last week, will continue being updated and issued on a weekly basis. This is to take account of the rapidly changing situation here in the UK […]

The York ME Community © 2015
Powered by Live Score & Live Score App