ME Treatments

Apparently Just By Talking About It, I’m Super-Spreading Long Covid

By George Monbiot in The Guardian.   Rejoice! A mystery has been solved. We now have an explanation for long Covid, a condition afflicting many thousands of people. A super-spreader has been identified. Important as this finding is, I’m reluctant to call for the vector to be eradicated. Why? Because it’s me. In a presentation to the reinsurance giant […]

The PACE Trial Should Be Retracted, Because It Was Seriously Unethical, And The Lead Investigators Continue To Deny That.

  By Dr Neil MacFarlane MRCPsych in DrNMblog.   This was submitted (December 2020) to NICE in response to the new draft ME/CFS guidance of November 2020,[1] which had removed the recommendation for Graded Exercise Therapy (GET), and downgraded CBT from therapeutic to a ‘supportive’ option. [1] https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents I appear to be the first UK psychiatrist to be […]

ME/CFS And The Lightning Process

  By David F Marks in Science, Behaviour, Homeostasis. Here I review research by the Wessely School on the Lightning Process (LP). LP is a pseudoscientific cult founded by Phil Parker, a Tarot reader, specialist in auras and spiritual guides, and an osteopath. It has triggered a spate of shoddy evidence and false claims that brings a new low level […]

When Rest May Be Best For Post-Viral Fatigue

  From The Guardian. Graded exercise therapy is not the right way to treat people with ME or long Covid, argue Dr Charles Shepherd and Rachel Harding. Dr Alastair Miller, Professor Paul Garner and Professor Peter White are not correct when they state that graded exercise therapy (GET) is a safe and effective treatment for ME/chronic fatigue syndrome (Letters, […]

Explaining Paul Garner’s Long COVID Recovery Story (???) Plus What Does It Mean ?

  By Cort Johnson in Health Rising. Paul Garner’s recovery story from long COVID has met with almost universal dismay and anger from the chronic fatigue syndrome (ME/CFS) community. Garner, after all, was something of a champion for long COVID and ME/CFS. An infectious diseases specialist who had weathered serious infections before, he seemed perfect […]

Health Politics In Action ? Professor Garner’s Change Of Heart On Long Covid (And ME/CFS)

By Nemesis in Healthcare Hubris.   Trigger warning: gaslighting, ableism, death, coercive control, cult psychology   Politics pervades everything, and healthcare is no exception. This can arguably be exemplified through tracking the twists and turns of dominant thinking around Long Covid management, and how this is positioned vis-à-vis other chronic illnesses, notably myalgic encephalomyelitis / […]

It Is Not Only Drugs And Devices That Can Harm

  By Cariline Struthers in Health Watch. “First Do No Harm”, the Independent Medicines and Medical Devices Safety Review focusing on three drug/devices aimed at women (aka the Cumberlege report) was published on 8 July 2020.(1) It should have welcome implications for much-needed change in the way patients are treated. Two of the review’s proposals […]

New Clinical Trial To Test Whether Structured Exercise Benefits ‘Long Covid’ Patients

  TO ALL WITH AN INTEREST IN LONG-COVID AND M.E. Warwick University have been given a £5m research grant from The National Institute of Health to undertake a: “New clinical trial to test whether structured exercise benefits ‘long Covid’ patients.” The link to the details are below. I have emailed their media centre with my […]

A Doctor With Long-Covid Finds Out The Downside Of Graded Exercise Therapy

  By Jerome Burne for the Daily Mail.   As they’re told to exercise despite crippling fatigue, and advised they should banish ‘negative thoughts’…No wonder doctors think their long Covid treatment is misguided. Professor Brendan Delaney developed a mild case of Covid just before the first lockdown in March, suffering the now- familiar symptoms of a cough, […]

The Evidence Base For Physiotherapy In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome When Considering Post-Exertional Malaise: A Systematic Review And Narrative Synthesis

  By Marjon E. A. Wormgoor and Sanne C. Rodenburg in the Journal of Translational Medicine. Abstract Background Due to the inconsistent use of diagnostic criteria in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), it is unsure whether physiotherapeutic management regarded effective in ME/CFS is appropriate for patients diagnosed with criteria that consider post-exertional malaise (PEM) as a hallmark feature. […]

NICE, The Media And The Cultural Problem Of Myalgic Encephalomyelitis (ME)

  By Valerie Eliot Smith.   RE-CAP: the ongoing NICE guideline in development (GID) process. In 2017, the English National Institute for Health and Care Excellence (NICE) began the process of updating the existing guideline on myalgic encephalomyelitis (ME), originally published in 2007. The draft consultation documents were published on 10 November 2020, followed by a six-week consultation period concluding […]

Trial By Error: Professors Chalder And Crawley Join Forces To Push CBT For Kids

  By David Tuller, DrPH On November 10th, the National Institute of Health and Care Excellence published a draft of new clinical guidelines for ME/CFS. The draft represented a blunt rejection of the argument that the combination of “unhelpful cognitions” and deconditioning drive the illness. Under this once-hegemonic framework, indicated therapies include cognitive behavior therapy to […]

Trial By Error: GP Group Removes Online GET/CBT Medical Training Program

    By David Tuller, DrPH In early 2019, I wrote about an awful online training course for general practitioners on recognizing and caring for patients diagnosed with what was referred to as CFS/ME. The module, called METRIC, promised to provide “GPs and other primary care practitioners with an overview of the presentation, diagnosis, assessment and ongoing […]

Trial By Error: Thoughts On The Observer, The Guardian, And Paradigm Shift

    By David Tuller, DrPH Earlier this week, I blogged about a story in The Observer that provided an inaccurate description of what it called chronic fatigue syndrome. For much of the piece, the writer, Eleanor Morgan, offered a sympathetic portrait of people, including herself, experiencing prolonged symptoms after an acute bout of Covid-19. A lot of what […]

My Experience Of Reverse Therapy For M.E.

By Bill Clayton. My views on Reverse Therapy having undertaken a course some years ago. I attended a series of monthly sessions, ending on 29 November 2012.  I found that there was a line of ‘truth’ (for want of a better word) running through this therapy, the theory on how / why ME starts is […]

Trial By Error: The Lightning Process Strikes Again

  By David Tuller, DrPH The Lightning Process was founded more than two decades ago by Phil Parker, a British Tarot reader and specialist in auras and spiritual guides. The LP, as it is often called, could be described as “a neuro-physiological training programme based on self-coaching, concepts from Positive Psychology, Osteopathy and Neuro Linguistic Programming,” as […]

Learning To Rest – We’ll Talk About Pacing Next Time

From Lifechangeswithme. What is Pacing? Rest? Unfortunately with ME there isn’t one magic pill or treatment to help us get better – less ethical individuals may claim there is.  Such is the nature of an illness where individuals with similar symptoms yet unknown causes are grouped together with the term “Chronic Fatigue Syndrome, Post-Viral Fatigue and ME.”  […]

Ritalin (Methylphenidate) For Chronic Fatigue Syndrome And Fibromyalgia

  From Health Rising.   Ritalin Is… a central nervous system stimulant. Created in 1954, Ritalin has been in use for over sixty years. (Check out a History of Ritalin here). It was first FDA approved in 1955 to treat ‘hyperactivity’ and later was approved to treat attention deficit hyperactivity disorder (ADHD). Ritalin increases extracellular levels […]

Trial By Error: Disinformation About Treatments For Post-Covid Syndrome

    By David Tuller, DrPH Professor Trudie Chalder is a lead investigator of a series of studies of rehabilitative interventions for so-called “medically unexplained symptoms” that have failed to meet expectations but have nevertheless been promoted as demonstrating treatment success. The piece of crap known as the PACE trial is a prime example. Most famously, Professor […]

Trial By Error: Joan McParland’s Lightning Process Experience

  by David Tuller, DrPH Aura-reader and Tarot expert Phil Parker, also known as the founder of the Lightning Process, has posted a video on YouTube of an “ME/CFS success story.” Without knowing anything about Amy’s situation or medical history beyond what she shares, I have no reason to disbelieve her testimony of recovery from […]

The Fear In My Doctor’s Eyes

  By Anil van der Zee in CAPTURE.DANCE.WORDS.   The honeymoon. Before becoming ill, my relationship with the medical world was always great. It was pretty much straightforward really. During my profession as a dancer, injuries were of course always of a concern. I had to be in close contact with doctors, physiotherapists, massage therapists, […]

Trial By Error: Joan McParland’s Lightning Process Experience

by David Tuller, DrPH Aura-reader and Tarot expert Phil Parker, also known as the founder of the Lightning Process, has posted a video on YouTube of an “ME/CFS success story.” Without knowing anything about Amy’s situation or medical history beyond what she shares, I have no reason to disbelieve her testimony of recovery from illness. […]

The ‘Lightning Process’: Implausible, Unproven, Hyped And Expensive

  By Edzard Ernst in edzardernst.com. The Lightning Process  (LP) is a commercial programme developed by Phil Parker based on ideas from osteopathy, life coaching and neuro-linguistic programming. It has been endorsed by celebrities like Martine McCutcheon and Esther Rantzen, who credits it for her daughter’s recovery from ME. Parker claims that LP works by teaching people to […]

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