ME Treatments

Graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome is not effective and unsafe. Re-analysis of a Cochrane review

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  By Mark Vink and Alexandra Vink-Niese in Health Psychology Open.   Abstract The analysis of the 2017 Cochrane review reveals flaws, which means that contrary to its findings, there is no evidence that graded exercise therapy is effective. Because of the failure to report harms adequately in the trials covered by the review, it cannot […]

‘Insight’ On Chronic Fatigue Syndrome: Andrew’s Experience

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From ME News Australia.   Andrew Bretherton was working as a personal trainer, kung fu and basketball coach and finishing a psychology and sports science degree when he became ill. He is now mostly housebound due to ME. He tried graded exercise therapy at a Melbourne clinic where he was blamed for his illness, told […]

Multidisciplinary Rehabilitation Treatment Is Not Effective For Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Review Of The FatiGo Trial

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  By Mark Vink and Alexandra Vink-Niese in Health Psychology Open. Abstract The FatiGo trial concluded that multidisciplinary rehabilitation treatment is more effective for chronic fatigue syndrome/myalgic encephalomyelitis in the long term than cognitive behaviour therapy and that multidisciplinary rehabilitation treatment is more cost-effective for fatigue and cognitive behaviour therapy for quality of life. However, FatiGo suffered from a […]

LDN Chosen As First Choice For Treating Fibromyalgia And CFS/ME Pain

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    From LDN Science.   Two-day summit of specialists in fibromyalgia and chronic fatigue syndrome concludes: LDN is the top choice for treatment of chronic pain in these patients. In a recent story, Medscape News Reporter Miriam E. Tucker shares new insights into LDN’s use for treatment of chronic pain conditions. University of Alabama’s […]

Doctors ‘Do More Harm Than Good’ Sending ME Patients To Gym

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  By Lisa Smyth in The Belfast Telegraph.   A charity that supports people with Myalgic Encephalomyelitis (ME) has said patients in Northern Ireland are being failed by a shocking lack of understanding about the condition. People with ME can suffer a range of symptoms, from headaches and extreme sensitivity to light and sound, to […]

Finally – An Objective Measure of Fatigue ? An ME/CFS And Fibromyalgia Inquiry

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  By Cort Johnson in Health Rising.   Making Fatigue Real Fatigue is like the Rodney Dangerfield of symptoms – it just gets no respect. The problem is the poor descriptive power of the word. It readily describes the everyday, manageable fatigue that most of the population regularly feels. That fatigue, though, has little relation […]

ME/CFS: Thiamine Is Key; Coffee & Tea Inhibit It

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  By Tracy Duvall.   As I’ve noted elsewhere, thiamine forms part of a suite of supplements that might counteract energy problems in ME/CFS. In any case, thiamine (or thiamin) is vital to energy production and other biological processes. A lot of people think that coffee or tea is vital to getting enough energy, too. For years […]

Letters To Professor Mark Baker At NICE

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  From Invest in ME Research.   In July 2017 Invest in ME Research responded to the NICE 10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis click here This pdf is an easier format to read is here. Recently, whilst preparing for the planned Stakeholders’ Workshop (16 January 2018) to review the NICE guidelines for ME […]

An Offer You Can’t Refuse

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From the mrspoonseeker Blog.   In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of patients to refuse treatment, in this case with CBT and GET in mind. Steve, who frequently contributes to this blog, left the following response in […]

For People With Chronic Fatigue Syndrome, More Exercise Isn’t Better

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  By Michaeleen Doucleff in npr.org. Health organizations are emphasizing that myalgic encephalomyelitis/chronic fatigue syndrome is a serious long-term illness, not a psychological disorder, and that standard forms of exercise do not help. Instead, they’re acknowledging that exercise can make the disease much worse unless doctors and patients are very careful. The Centers for Disease Control and […]

The SMILE Trial And Its Not-So-Happy Aftermath – A Statement From Invest In ME Research

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  From Invest in ME Research.   Invest in ME Research has never approved of the Lightning Process (LP) business and its model of operation where former ‘recovered’ patients pay a lot of money to become practitioners of this Trade Mark training programme. We view this as a pyramid business – unregulated, unaccountable and unscientific. […]

Worse Than The Disease

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  A case study of Graded Exercise Therapy from UNDARK.   After living in Oklahoma for 40 years, Nita and Doug Thatcher retired in 2009 to the Rust Belt city of Lorain, Ohio, a Cleveland suburb that hugs Lake Erie. When Nita needed to find a new primary care doctor, a friend recommended someone from the Cleveland […]

Graded Exercise Therapy Causes Harm In ME/CFS. Everyone Knows That, Right ?

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    From The Self Taught Author Blog by Clark Ellis.   What is patently obvious to the majority of ME/CFS sufferers is not at all obvious to most others. It is not obvious to NHS staff. It not obvious to academics and politicians. It is not obvious to the public. There are many reports […]

D-Ribose For Fibromyalgia & Chronic Fatigue Syndrome

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    By Adrienne Dellwo in Very Well.   D-ribose is a supplement that’s sometimes recommended for people with fibromyalgia and chronic fatigue syndrome. Also called ribose or Beta-D-ribofuranose, it is a type of sugar that your body produces naturally. It plays several important roles in your body: it helps produce energy in the form of ATP (adenosine triphosphate) it’s a […]

A Plea From A Fallen Doctor On Chronic Fatigue Syndrome (ME/CFS)

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  From Reddit.   I was educated at Baylor and practiced medicine for 30 years. I had a thriving practice, a rich social life, and excellent physical and mental health. I loved what I did and loved my life. I ran marathons, spoke at conferences, and chaired non-profits. I am now completely bedridden from post […]

This Is Why I Quit Exercise Therapy

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  By Camilla Maxted in BuzzFeed.   It took 11 medical appointments across 20 weeks of pain and despair before I finally got a diagnosis. For months, I’d been suffering from exhaustion so extreme that bit by bit, I’d had to let my whole life drop away. For a long time I tried to ignore it – after all, […]

My Apology To The Patient With ME I Treated Many Years Ago

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    By Annemarie McCall in The Mighty.   I was a psychiatric nurse before I developed ME. I was a good nurse and treated my patients holistically and with dignity, taking their wishes into consideration and trying at every turn to follow their wishes as much as I could, legally, ethically and professionally, but […]

“Chronic Fatigue Is Not A Condition Of The Mind”

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    By Kate Liptrot in The Press.   Reports that Chronic Fatigue Syndrome, also  known as myalgic encephalomyelitis (ME), can be treated with psychological therapies have frustrated those living with a very physical condition For Bill Clayton, there has been little progress in understanding ME since it was first derided as “yuppie flu”. Bill, who was diagnosed […]

Reported On BBC Breakfast – Online ME Treatment For Children

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    On the day when the NHS in Bristol are to start a trial on children with ME, it’s important that lessons are learned. A similar trial on adults has recently been debunked and shown to be harmful after the data was proved to be corrupt. To learn more about that, Google ‘The PACE […]

End ME/CFS Severe Patient Study Turns To The Mitochondria

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By Cort Johnson on ProHealth and Health Rising The mantra at the Severely Ill study is to follow the evidence where it leads. We don’t know exactly what Davis has found or if will be ultimately validated. We do know that something eyebrow raising involving the mitochondria has shown up in the early stages of […]

Aloe and ME

  Aloe Vera is an amazing medicinal herb that has benefitted mankind for over 4,000 years.  Many people know that aloe is good for them in some way but understand less about how it can help the human body.   It is most commonly associated with helping skin irritations and sunburn but it supports many other […]

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