ME

Post-Covid Syndrome, Myalgic Encephalomyelitis, And The Recurring Pseudoscience Of Mass Hysteria

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By Brian Hughes in The Science Bit. The people who want you to think that everything is “all in your mind” are back, their schtick now revised and updated for a COVID-19 world. Here’s the Daily Telegraph: Some local coronavirus outbreaks could be ‘mass hysteria’, Joint Biosecurity Centre warns Some local coronavirus outbreaks may just be mass […]

From Infectious Disease Specialist To ME/CFS Expert: Dr. Bela Chedda Talks

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  By Cort Johnson in Health Rising.   Dr. Chheda’s Road to ME/CFS I met Dr. Chheda of the Center for Complex Diseases at Ron Davis’s Working Group Meetings funded by the Open Medicine Foundation. She graciously agreed to talk more about how she approaches treating ME/CFS in her practice. I was particularly eager to talk to […]

Post Twenty Seven. No, I’m Not Tired.

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  From the puffins&penguins&me blog.   The ME Association was recently asked by the media to compile a piece describing the difference between having ME and just feeling tired all the time. Given the frustratingly common misconception that ME is ‘feeling tired’, this of course resulted in a lively discussion on their Facebook page, and it prompted […]

9 Relatable Comics That Nail What It’s Like To Have Chronic Illness

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      By Michelle Levy in The Mighty.   Getting sick is no laughing matter, but it often takes humor to be able to get through the ups and downs of chronic illness. While some of these comics make us laugh out loud in pained affirmation, mostly they raise awareness of chronic illness, and […]

Abuse Prevention: How To Turn Off The Gaslighters

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    By Anna Moore in The Guardian.   Gaslight was the play that made its writer Patrick Hamilton a very rich man. It opened in London in 1938 to exceptional reviews. Noël Coward was a fan. King George VI took his wife to see it. In 1940, it became a British film, followed four years later by the […]

Shock, Hypoxia & ME/CFS: Part I

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From Syndrome A.   When I first got sick with ME/CFS, I was a teenager. I was quite baffled when I suddenly became too exhausted to make it to classes, stopped sleeping almost entirely and started sweating profusely. I sweat raindrops: huge drops of sweat rolled down my sides constantly. No antiperspirant was a match […]

My Label And Me: I’m Not Tired And Lazy, I Have ME

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  By James Wilson in The Metro. you’re just a bit tired,’ says my friend. ‘Just have another beer, you’ll be fine’. Yep, I am tired but probably not as they, or you, know and understand it. I can’t rest and get my energy back like you can and, as much as I’d like to, […]

Amy Carlson – An Ally To The ME Community

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    By Adriane Tillman in #MEAction.   Allies are critical to the success of any movement and even more so in the case of people with myalgic encephalomyelitis (ME). So many people with ME are bedridden or housebound and unable to participate in some advocacy and activist actions. While we at #MEAction work hard to […]

9 Rounds Of Electroshock Therapy. 6 Years Lost. All Because Her Doctors Got It Horribly Wrong

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    By Michele Lent Hirsch in Cosmopolitan.   She’s lying on a gurney in a white room, a blanket covering her body, an IV pinched into her arm. A nurse is sticking electrodes to the side of her head, like stickers. Soon they’ll send electric currents into her brain, inducing a seizure. She’s aware […]

Tips Suggested By Members Of Our Online Community About Work

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  From Scope.   Negotiating the world of work can seem like a difficult challenge if you’re a disabled person. Fortunately there are many resources that you can draw on to make things a little easier, whether you’re currently experiencing difficulties at work or you’re looking for a job. Read on for our top tips […]

Ron Davis (Finally) Gets His Big Grant !

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  By Cort Johnson in Health Rising.   “This proposal aims to uncover the immunological basis of ME/CFS”. Ron Davis – grant application Sometimes the third time is the charm. Ron Davis has gotten (and been turned down for) many NIH grants but even he was shocked by the response to his first couple of […]

ME Sufferers Being Shamefully Let Down By Professionals

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    By Linda Burnip and Denise McKenna in Morning Star Online.   Last week, over 65 deaf and disabled people’s organisations, campaigns and mental health professionals wrote to the Prime Minister asking her to urgently rethink her decision to appoint Professor Sir Simon Wessely to lead the much-anticipated independent review of the Mental Health Act as […]

Mark Kermode Reviews ‘Unrest’ On Simon Mayo’s Show On BBC Radio 5 Live

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  The Jen Brea ME film ‘Unrest’, about her story and struggle with Myalgic Encephalomyelitis (ME) is coming to City Screen York on 1st November 2017.  This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 […]

What My Chronic Fatigue Syndrome Actually Feels Like

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    By Aanchal Chopra in The Mighty     I have moderate chronic fatigue syndrome (CFS), and this is my own experience. Others may have different symptoms or manifestations because every individual is different. But this is a glimpse into what my life with CFS actually feels like. Living with CFS — or myalgic encephalomyelitis (ME) — is like […]

12 Things Your Friend With Chronic Fatigue Syndrome Wants You To Know…

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    From Private Health Care.   1. They aren’t just being lazy. There is nothing lazy about chronic illness. This isn’t some Ferris Bueller situation and they’re faking it just to avoid responsibilities. Sometimes, life feels like an uphill battle that they’re terrified of losing. I promise, laziness is the last thing on their […]

Sensory Overload In Fibromyalgia & Chronic Fatigue Syndrome

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    By Adrienne Dellwo in About Health.   Sensory overload is a common problem in fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS.) It’s a symptom that can have a significant effect on your daily life and discourage a lot of activities. Sensory overload can make you feel panicky, confused, and overwhelmed. It can result […]

It’s Time For Doctors To Apologise To Their ME Patients

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  By Dr Charles Shepherd in The Telegraph. For too long the medical community has dismissed ‘Chronic Fatigue Syndrome’ as a mental illness which can be cured with therapy and exercise. Back in 1955, a mysterious polio-like illness affected 262 doctors and nurses at London’s Royal Free Hospital. The hospital had to close for just […]

Visual Stress Could Be A Symptom Of Chronic Fatigue Syndrome, Research Suggests

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  People suffering from Chronic Fatigue Syndrome (CFS) could experience higher levels of visual stress than those without the condition, according to new research from the University of Leicester. CFS, also known as Myalgic Encephalomyelitis (ME), is a condition that causes persistent exhaustion that affects everyday life and doesn’t go away with sleep or rest. […]

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