Trial By Error: The NICE “Topic Expert”

David Tuller

    By David Tuller, DrPH.   My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) was for information about the experts consulted in the current process of reviewing CG53, the 2007 guidance for the illness the agency calls chronic fatigue syndrome/myalgic encephalomyelitis. In its response, the agency explained […]

Moving Toward Answers In ME/CFS


    by Dr. Walter Koroshetz and Dr. Francis Collins in NIH.   Imagine going to work or school every day, working out at the gym, spending time with family and friends—basically, living your life in a full and vigorous way. Then one day, you wake up, feeling sick. A bad cold maybe, or perhaps […]

Dr Ian Lipkin Responds To The NIH ME/CFS Request For Information

Dr Ian Lipkin

    From The Microbe Discovery Project.   Dr. Lipkin, Director of the Center for Infection and Immunity (CII) at Columbia University’s Mailman School of Public Health, has responded to the National Institutes of Health’s (NIH) request for information (RFI). The NIH had requested input for research strategies for (ME/CFS). This response in the letter below, articulates concisely and clearly, […]

Why ME And CFS Instead Of ME/CFS?


  By Sasha Nimmo in ME News Australia.   Why is it important to use ME and CFS? It’s time, Australia needs to leave behind ME/CFS and CFS/ME and adopt the International Consensus Criteria for ME. ‘ME and CFS’ captures an audience who have been diagnosed with chronic fatigue syndrome, as some patients who have been diagnosed with […]

Central Sensitivity Syndromes


  By Adrienne Dellwo in About Health   Fibromyalgia (FMS) and chronic fatigue syndrome (ME/CFS) are difficult illnesses to classify. Both have a broad range of physical symptoms that span multiple systems, and they’re associated with multiple psychological symptoms as well. In addition, they’re often accompanied by a slew of other illnesses — many of […]

CDC Study Finds CFS Is Physical, Not Mental


  By Russell Logan in Shout Out About ME.   Despite decades of suggesting otherwise, the CDC has just determined that CFS patients have normal mental health function and severe physical impairments. The findings coincide with the NIH’s decision to drop a key component of its clinical study of post-infectious ME/CFS, amid patient concerns about […]

Griffith University Claims Breakthrough On Diagnostic Blood Test In CFS


  Australian scientists announce they have made a breakthrough in Chronic Fatigue Syndrome testing, now looking for partners to bring a diagnostic test to market. An ABC radio interview with Australian scientists at Queensland’s Griffith University reveals they have identified new markers on white blood cells which can be used to screen patients. Patient Lyn Wilson, Professor […]

US Neuroscientist Says Exercise Is A Noxious Stimulus That Worsens Symptoms Of ME/CFS


  By Penny Swift in The Argus Report.   A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy (GET) is an effective treatment for Chronic Fatigue Syndrome (CFS). The Lancet Psychiatry report, published […]

Neurotransmitters In Fibromyalgia & Chronic Fatigue Syndrome


By Adrienne Dellwo in About Health. What’s Going On in Your Brain? Fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) long remained mysteries to medical science, and we’re just now getting a picture of what’s going on in the body, and especially the brains, of people with these conditions. One thing that research has […]

Analysis Of CFSAC August 2015 Recommendations For The IOM Criteria


Posted by Gabby Klein on December 20, 2015   The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services (HHS) through the Assistant Secretary for Health on issues related to Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS). It meets twice a year. The last meeting took […]

Making Reasonable Accommodations For ME/CFS Students


  From a blog by Michael E. Ottlinger, PhD, DABT as published in the Solve ME/CFS Initiative. (Something from an American perspective) As part of the Americans with Disabilities Act, Reasonable Accommodations must be made for individuals with a disability. This includes students at colleges, universities, secondary schools, etc., who no doubt encounter problems stemming […]

Supplements For Fibromyalgia & Chronic Fatigue Syndrome


By Adrienne Dellwo in About Health. Many doctors, researchers and people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) say nutritional supplements are an important part of managing your symptoms. Many of us swear by them, and some people use supplements as an alternative to medications. However, supplements are typically not well researched, […]

Why MEAdvocacy Does Not Applaud The News From NIH…Yet


  Posted by Gabby Klein on December 02, 2015. The Announcement  The myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) community has welcomed and applauded the National Institutes of Health (NIH) News Release announcing a strengthening of efforts by the NIH to advance research for the disease.  The overwhelming feeling is that the promises outlined in the announcement […]

Visual Stress: A Symptom of ME/CFS


As reported in ‘Onward Through The Fog’   A University of Leicester research team has discovered a vision-related abnormality that could help diagnose ME/CFS. The abnormality, called “pattern glare,” produces distortions, such as curving, wavering, and colours, when viewing stripes. Pattern glare has been associated with migraines and Irlen Syndrome (a visual processing disorder). It […]

Blood Biomarkers Found For Chronic Fatigue Syndrome


Washington (AFP) – As reported in Business Insider (UK).  I am told that the heading may not be totally accurate, but worth a read nonetheless. Chronic fatigue syndrome is a disease with distinct stages that can be identified through biomarkers in the blood, researchers said Friday, offering hope that earlier diagnosis may improve treatment. Scientists […]

NIH: Time For Real Scientists To Study ME/CFS


  Story by Russell Logan in SHOUTABOUTME.   The US National Institutes of Health (NIH) has announced several measures to boost research into ME/CFS, although full details of its proposal and funding allocations are yet to be released. Broadly, a multi-institute study at the NIH Clinical Center will begin, focusing on patients with myalgic encephalomyelitis/chronic […]

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