myalgic encephalomyelitis

Chronic Fatigue Syndrome, Fatigue, And Safety

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  by Kathleen Hoffman in Medivizor.   What’s the difference between Chronic Fatigue Syndrome and fatigue?  A huge difference according to an article in the Proceedings of the National Academy of Sciences that focused on a cutting edge research study conducted at Stanford University.  Researchers found that inflammation is the driver of Chronic Fatigue Syndrome or it’s other name myalgic encephomyelitis. […]

My Promised Saline IV Update. How Did It Go ?

Anil

  By Anil van der Zee, from his Blog, Capture, Dance, Words.   This year I’ve arranged for saline IV’s. As I have a hard time tolerating any medication, and I’m not improving enough because of it. Saline IV’s seemed to be the best solution to help with my orthostatic intolerance or rather my postural […]

Is Prescribing Drugs ‘Off Label’ Bad Medicine ?

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  By Ravina Barrett in The Conversation.   A woman, let’s call her Sarah, is a young actor looking to make her debut at a major theatre. She is fit and healthy, but gets nervous on opening nights and can’t sleep. She’s tried zopiclone, but it didn’t work, so her GP prescribes a course of quetiapine. […]

A Glimpse Into What Fatigue Really Feels Like

Fatigue

By Mikala West in The Mighty.   This is the most difficult piece I have ever shared. I like to share things that are uplifting and inspiring, that have a happy ending. So, if you’re expecting that, I’m sorry to disappoint. This piece is about honesty, truth, and real life. Fatigue is a symptom that […]

How To Talk To Your Doctor About Information You Find Online

Health Online

  By Elizabeth Sillence and Lauren Georgia Bussey in The Conversation.   More and more people are going online to search for information about their health. Though it can be a minefield, where unverified sources abound, searching the internet can help people to understand different health problems, and give them access to emotional and social support. For many in the UK, […]

How To Treat A Person With Chronic Illness – A Step-By-Step Guide

Frustration Chronic Illness

  By Jaime from her ‘I Told You I Was Sick’ Blog.   If you have a friend with chronic illness but don’t know how to talk to them, it’s OK. You’re not alone. When you’re healthy, trying to get inside the mind of a person who is always in pain can be confusing. In […]

What Acceptance Looks Like After My Chronic Fatigue Syndrome Relapsed

Lonely-man

  By Gemma Cresswell in The Mighty.   Years ago, I was able to confidently see the positive sides of how myalgic encephalomyelitis (ME) had affected my adolescence and made me the person I’d become. Yes, it had been tough, isolating and upsetting, but being seemingly on the other side of it, I could see how […]

Losing A Beloved Career To A Chronic Illness: Caroline’s ME/CFS Story

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  By Caroline Christian in Health Rising.   After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break. […]

Through The Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – An Alternate Reality To ME/CFS ?

brain-power

  by Caroline Christian in Health Rising.   Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial hypertension to mold sensitivity (and more), the number of alternate or comorbid diagnoses associated with […]

SAHMRI Researchers In Hunt To Find Cure For Chronic Fatigue Syndrome

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  Rebecca Baker, Social Affairs Reporter, The Advertiser (Australia).   World-first research in Adelaide that involves taking the blood samples of donors every seven minutes aims to unlock the mystery of a debilitating illness that has no cure or treatment. Thousands of samples taken for the study are now being stored in a freezer to […]

Disability Employment: The Challenge Of Getting To Work In A Wheelchair

Wheelchair

  By Alex Taylor in BBC News.   The government had vowed to help one million disabled people into work over the next decade. But for many people, the challenges of work begin before they even get to the office. The commute to work can be a battle for millions. However, for people with disabilities, transport […]

Trial By Error: The Crawley Chronicles, Continued….

David Tuller

  By David Tuller, DrPH.   Update: About 20 minutes after posting this blog, I received the following communication from Ms. Paterson: Dear Dr Tuller Thank you for your email of 22 November. If by a ‘cease and desist’ letter you mean a letter threatening legal action if the recipient does not stop a specified […]

Pacing vs Push And Crash

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  From Treating Chronic Fatigue Syndrome and Fibromyalgia.   If you have CFS or fibromyalgia, you are probably acquainted with the experience of push and crash. This is the frustrating loop in which people swing between overactivity and forced rest, feeling caught in a vicious cycle illustrated in the diagram. When their symptoms are low, […]

New Recognition For Chronic Fatigue

MECFS

    By Jane E. Brody in New York Times.   Having recently endured more than a month of post-concussion fatigue, I can’t imagine how people with so-called chronic fatigue syndrome navigate through life with disabling fatigue that seemingly knows no end. Especially those who are erroneously told things like “It’s all in your head,” “Maybe you […]

What is Myalgic Encephalomyelitis ?

ME

  by John Duncan and Maryann Spurgin.   A Brief Historical Introduction.   In the first half of the twentieth century, Myalgic Encephalomyelitis outbreaks appeared to be associated with polio outbreaks, but with the eradication of polio the meaning of this connection has not been given attention [6-8].The name “Myalgic Encephalomyelitis” comes from a 1955 outbreak […]

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