PACE Trial

On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again)

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    By Cort Johnson in Health Rising.   The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to hide under one’s bed. […]

PACE-GATE: An Alternative View On A Study With A Poor Trial Protocol

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    By Bart Stouten in Journal of Health Psychology.   Abstract The controversies surrounding the effectiveness of cognitive behavioural therapy and graded exercise therapy for chronic fatigue syndrome are explained using Cohen’s d effect sizes rather than arbitrary thresholds for ‘success’. This article shows that the treatment effects vanish when switching to objective outcomes. The preference […]

Bias, Misleading Information And Lack Of Respect For Alternative Views Have Distorted Perceptions Of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome And Its Treatment

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    By Ellen Goudsmit and Sandra Howes in Journal of Health Psychology.   Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome. These interventions are based on a model which assumes that symptoms are perpetuated by factors such as misguided beliefs […]

PACE Trial Data Released – The Latest News

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        For the story so far……….   By Capricious Lestrange in Disability Depot.   Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a recent tribunal, on the last possible day to lodge an appeal against the […]

The PACE Trial Invalidates The Use Of CBT And GET ME/CFS: A Review

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  By Mark Vink in the Journal of Neurology and Neurobiology. Abstract The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both therapies. These findings have […]

New CBT And GET Threat For Australian CFS Patients

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  By Sasha Nimmo in Shout Out About ME.   Australian CFS researcher, Prof Andrew Lloyd last year explained he was working on an online program of graded exercise therapy (GET) and cognitive behavior therapy (CBT) at the University of NSW’s Fatigue Clinic. Prof Lloyd described the PACE trial, which evaluated these therapies, as having “reasonably […]

PACE Trial Gets Most Devastating Critique Yet

Cort Johnson

  By Cort Johnson in Health Rising.   The PACE trial may, in the end, be about more than an injustice done to the chronic fatigue syndrome (ME/CFS) community. It may become, if the latest devastating criticism of it takes hold, exhibit number one in the medical community of how not to do a clinical […]

Dr. David Tuller Discusses The Flaws Of The PACE Trial – Video

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I wanted to let you know that I’ve added a couple of videos to our tab at the top of the site.  One is of Dr David Tuller, filmed in Amsterdam on Sunday 28th of Feb 2016 during the screening of Forgotten Plague, organised by Dutch severe ME-patient Anil van der Zee and the Dutch ME/cvs Vereniging. […]

The PACE Trials: A £6 Million Failure

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  From the Slightly Alive Blog by Mary Schweitzer.   There is nothing complicated about the PACE trials – or at least, there should not have been. Patients were selected to participate in a trial of cognitive behaviour therapy targeted to their “inappropriate illness beliefs” and a course of “graded exercise therapy” to get them back […]

Flat Earth And PACE – Both On The Wrong Side Of Science

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  By Ella Peregrine in NICE Guidelines Blogspot.   Recently, David Tuller, James Coyne, Vincent Racaniello, and some other non-invested scientists and writers have been looking more carefully into the claims and relative lack of transparency of the UK’s expensive and influential PACE trial. Those interested in the question of data sharing in research have been […]

US Neuroscientist Says Exercise Is A Noxious Stimulus That Worsens Symptoms Of ME/CFS

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  By Penny Swift in The Argus Report.   A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy (GET) is an effective treatment for Chronic Fatigue Syndrome (CFS). The Lancet Psychiatry report, published […]

Hope For Chronic Fatigue Syndrome

Slate Magazine

  By Julie Rehmeyer in Slate Magazine.  (An American view) Last month, a team of researchers released their latest study on chronic fatigue syndrome. Psychotherapy and a gradual increase in exercise, the researchers claimed, were lasting, effective treatments that could lead to recovery. The study was an update of the largest treatment trial in CFS […]

The PACE Trial Takes ANOTHER Hit

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  From an article by Cort Johnson, founder of Health Rising. Just when you thought the PACE trial couldn’t get any worse it has. In an new analysis David Tuller and Julie Rehmeyer – show that not only were the recovery findings untrustworthy – so were the graded exercise results. Rehmeyer published on the PACE […]

Tug Of War: Epic Battle Over Data In Controversial Paper On Chronic Fatigue Syndrome

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By Andrew Gelman in his blog.   James Coyne wrote to me a couple weeks ago: This time I’m critiquing a horrible mediational analysis. The larger context is that the authors have refused all requests to share data that would be needed to make an independent evaluation of their interpretation. I am now in what […]

PACE Trial 2 – Why Wasn’t My Experience Of Attending An NHS CFSME Clinic Evaluated?

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  In the follow up to the controversy of the PACE Trial results, I would recommend the following to give you a fuller picture.  It’s part of a blog by Lindy, an ME sufferer since the day the Coalition came into power and gives a day by day account of decisions made affecting the disabled […]

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