Raising ME Awareness

Jen Brea’s Outrageously Successful Chronic Fatigue Syndrome (ME) TED Talk

Jen Brea TED

    By Cort Johnson in Health Rising.   There’s no need to embellish chronic fatigue syndrome (ME/CFS; ME) stories. Shakespearean in their depth, ME/CFS stories can be so disturbing that some people will undoubtedly look for ways to dismiss them. Healthy, active, successful people, after all, don’t suddenly end up in bed for decades […]

‘Sometimes It’s Even Too Painful To Brush My Hair’

Joan McParland

    By Joan McParland in The Newsletter.   I went from being fit and healthy, able to work full-time as a schools meals organiser, look after my family and enjoy an active social life, to being completely bed-bound from an illness I had never heard of. I woke up with felt like a bad […]

Former Cal Student Struck By Disease

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    By Vidhima Shetty, Staff Writer in The Californian.   For Cal High Alumnus and Stanford student Tom Camenzind, life has approached a standstill as the result of the disease M.E./C.F.S. M.E./C.F.S. affects no less than one to two million people in the U.S. The term itself, myalgic encephalomyelitis, carries a provoking explanation: neuro […]

Can You Help Those In The York Area Suffering From ME ?

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    Do you live in the York area ?  If the answer is ‘Yes’, you are likely to know or live close to someone suffering with ME.  This is a serious Neurological illness that strikes at any age, and destroys lives. By current research, there are around 800 people in the York area with […]

When I’m Asked, ‘But Don’t You Want To Get Better?’

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By Carla Robinson in The Mighty. As you may know if you have read my other post, 5 Ways Being Chronically Ill Is Worse Than I Expected, I am quite seriously and chronically ill. However, the biggest problem I face is the fact that I don’t look sick. I even wrote about how that illness lead to […]

400,000 Canadians Disabled By CFS

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By Russell Logan in Shout About ME.   Almost half a million Canadians with debilitating Chronic Fatigue Syndrome (CFS) also suffer severe deprivation and isolation, in many cases worse than more recognized illnesses such as stroke and cancer, according to the latest report from Health Canada. The 2014 Canadian Community Health Survey (CCHS) (published June 17, 2015) reveals […]

New Research Unlocking Mysteries Behind Chronic Fatigue Syndrome

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    By Lauren Pelley, Staff Reporter at thestar.com   Scott Simpson remembers the exact day his whole world changed. It was August 9, 2012, and the then 47-year-old medal-winning triathlete woke up with a feeling unlike anything he’d experienced before. It was a deep, inexplicable fatigue and sickness affecting every part of his body, including […]

My M.E. Story

Catherine Hale

    By Catherine Hale in Limited Capability.   Hello, I’m Catherine, I volunteer as a policy research officer for Action for ME. I feel very lucky to be here this evening. Lucky because I’m out with you at such a glittering event, while someone else is putting my children to bed. But I’m lucky […]

The Story And Stigma Of A Baffling Illness: Jen Brea Speaks At TEDSummit

Jen Brea

  By David Colman in TEDBlog. Imagining a distinct border between mind and body has been a useful rule of thumb since Enlightenment philosophers dreamt it up centuries ago. It’s been particularly useful for modern medicine which has focused its scientific eye on the rational, physical body — and for the most part left the […]

Why ME And CFS Instead Of ME/CFS?

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  By Sasha Nimmo in ME News Australia.   Why is it important to use ME and CFS? It’s time, Australia needs to leave behind ME/CFS and CFS/ME and adopt the International Consensus Criteria for ME. ‘ME and CFS’ captures an audience who have been diagnosed with chronic fatigue syndrome, as some patients who have been diagnosed with […]

10 Things You Should Know About Myalgic Encephalomyelitis

Jessica Diamond

  By Jessica Diamond in The Mighty.   While on holiday in 2011, at the age of 14, I suddenly lost most of my muscle strength, became inexplicably and disproportionately exhausted by small tasks. I started experiencing pain that would soon become chronic, and began to notice a wide range of difficult and often debilitating […]

Why We Shouldn’t Call It Chronic Fatigue Syndrome

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By Rivka Solomon in STAT. It started with a bout of mononucleosis. Two college roommates and I got it at the same time. They felt better after a month. I didn’t. Decades later, I’m still living with bone-penetrating exhaustion and brain fog as thick as pea soup. I spent much of my 30s and 40s […]

The Male Pattern Baldness Disease? Chronic Fatigue Syndrome’s Chronic Lack Of Research Funding

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  by Jorgen Jelstad in Health Rising.   According to Nancy Klimas research into male pattern baldness gets six times more federal funding in the US than research into ME/CFS. It’s not so strange, then, that it takes time to find good answers to the ME/CFS enigma. I have written many blog posts at my Norwegian […]

Do You Want Your MP To Have A Better Understanding Of M.E.? 

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  The All Party Parliamentary Group (APPG) on M.E. is hosting an awareness-raising drop-in session for MPs in London on Wednesday 11 May from 12.45pm to 2pm. If you’d like your MP attend, get in touch with them now if you can, or get someone well enough to email them.  Just Google to find out […]

To The People Who Tell Me, ‘You’re Doing A Lot So You Must Be Better’

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  By Kirstin Larkin In The Mighty.         To those of you who tell me, “Well, you look fine” or “You have been doing a lot so you must be feeling better,” here’s the truth: I have chronic illnesses, and they never go away. They’re always drawing some type of attention to themselves at least […]

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