By Paul Lewis in SAGA Magazine. The fear of having to sell a home to pay for care is being exploited by commercial firms offering risky schemes to shelter homes from means-testing. Don’t fall for them. There are other, perfectly legitimate ways to preserve the value of a family home. When someone moves […]
From SAGA Magazine. Thinking of moving somewhere smaller? You could save thousands of pounds with these handy tips – read on to find out how… Downsizing is popular among the over 50s who have decided to live in a smaller, cheaper and more manageable property. As we revealed in a recent article the cost of […]
By Patsy Westcott in SAGA Magazine. Fermentation is one of the hottest food trends right now – but why all the fuss about this ancient method of food preservation? Fermented foods have been part of our diet ever since our ancient ancestors cottoned on to the idea that fermentation helped to preserve food. With the […]
By Carlton Boyce in SAGA Magazine. Some of these secrets are purely practical, whilst others are just put there to bring a smile to your face. Here are some of Carlton’s favourites… While it is true that the car industry is ruled now by accountants rather than engineers, the guys and gals with […]
From SAGA Magazine. Do you have cupboards full of old bills and documents? Read our guide to how long you should keep old bank statements, bills and paperwork. Do you feel like you are drowning in documents? Has your home been consumed by seemingly never-ending mountains of old pay slips, bank statements and old […]
By Carlton Boyce in SAGA Magazine. Smartphones and smartwatches have earned their place in our lives – but could they go one step further and actually save our lives? I’m not a fan of stuff. Stuff clogs your life up and traps you into a never-ending arms race to buy the latest, newest and shiniest […]
By Paul Lewis in SAGA Magazine. As we age, minor niggles with our health can become a serious – and costly – problem. However, there are state benefits to help. The rules are complex, but don’t be put off. You have paid taxes all your life for others and now is the time […]
By Annie Shaw in SAGA Magazine. Coin valuation: a reader asks… While I was clearing out my garage after my partner’s death, I found a Haig Dimple whisky bottle full of sixpences, some of them perhaps silver. What can I do with them? Are these coins worth money? Annie Shaw replies: You could […]
By Holly Thomas in SAGA Magazine. Worried that your hard-earned savings and precious assets may eventually benefit the taxman rather than your loved ones? A little forward planning can make a big difference. Handing over cash or property can provide a much-needed boost for grandchildren who are hoping to get on the property […]
By Maria McCarthy in SAGA Magazine. Many of us will remember the bad old days when car theft was a common phenomenon. It peaked in the early 1990s and a report from the Office of National Statistics reveals that in 1993, vehicle-owning households had a 1 in 5 chance of being victims […]
By Jane Murphy in SAGA Magazine. Wondering what just bit you? Read on to learn how to prevent, identify and treat some of the most common bug attacks in the UK. Spiders Don’t panic! It’s very rare to get bitten by a spider in the UK. Of the 650 species found here, […]
By Paul Lewis in SAGA Magazine. There are so many uncertainties surrounding pensions these days. Short of consulting a crystal ball, how can you make sure that your retirement funds won’t run out before you run out of steam? Until recently, you either had a pension that was fixed for life and […]
By Harriet Meyer in SAGA Magazine. Consumers who use contactless debit and credit cards could be at risk of a worrying new scam where thieves can steal money just by walking past them. Consumers who use contactless debit and credit cards to buy goods or services could be at risk of falling victim […]
By Jane Murphy in SAGA Magazine. While most of us try eat healthily, many of us appear to have a ‘blind spot’ when it comes to certain foods and drinks. So what are you forgetting ? Your morning cuppa Pop a teaspoonful of sugar in your tea or coffee and you’ll be consuming […]
From SAGA Magazine. A study into the eating habits of older adults shows many avoid the latest food fads loved by millennials, with 35 per cent opting for a traditional ‘meat and two veg’ options over more typically modern foods. As such, 52 per cent have never touched avocado on toast, while 53 […]
From SAGA Magazine. Mobile devices such as iPhones, iPads and Android smartphones are far more powerful than mobile phones of old. Crammed with computer processors, ablaze with brilliant screens and sporting decent speakers means a limited battery life that leaves you constantly hooking your device up to the mains for a recharge. Worse […]
From SAGA Magazine. From brain-friendly oily fish to memory-enhancing rosemary, here are 10 foods that scientific studies show can help boost your powers of recall. Our brains require a variety of nutrients to function well, so it comes as no surprise that what you eat can affect your cognitive skills and ability to […]
From SAGA magazine. Chocoholics can now nibble on their favourite treat without feeling guilty because it could actually have health-giving properties. The secret is revealed to be naturally occurring substances in chocolate that may offer some degree of protection against heart disease and related circulatory disorders. Many studies have shown that food rich in flavonals, […]
From Saga Magazine. Chia seeds, couscous and quinoa are just some of the foods adults over the age of 60 have never tried, despite their increasing popularity among younger generations. A study into the eating habits of older adults shows many avoid the latest food fads loved by millennials, with 35 per cent […]
By Paul Lewis in SAGA Magazine. Every April, state pensions and benefits for older people are increased to help them pay for the rising cost of food, energy and other essentials. But this year the amount paid to around two million of the poorest pensioners will not keep up with rising prices, as […]
By Carlton Boyce in SAGA Magazine. Parking has become a big issue in many towns and cities. What can you do if your neighbours or commuters park inconsiderately or block your driveway? Parking restrictions are becoming more stringent at a time when the demand for parking spaces is increasing. The result is a […]
By Daniel Coughlin in SAGA Magazine. According to the British Nutrition Foundation, 50-plus men tend to have slower metabolisms than guys in their 20s, and may require fewer calories overall to stay in good shape. They also benefit from foods that are rich in certain nutrients which support older men’s health. Tomatoes Tomatoes are loaded […]
By Adrienne Wyper in SAGA Magazine. Belonging to a singing group is good for body and soul – here’s why, and how to find one – even if you think you can’t sing ! Watching a choral performance, everyone’s mouths moving in perfect harmony, you might guess that choral singing gives its participants a sense […]
By David Gritten in SAGA Magazine. It’s tempting to wonder how the cinema world would have coped this past year if not for films set during World War II. There’s been Christopher Nolan’s majestic Dunkirk, of course, and Churchill, starring Brian Cox having a gallant stab at playing a troubled, hesitant Winston. And now comes Darkest Hour, with Gary […]
By Chris Torney in SAGA Magazine. For older homeowners who need some extra cash to supplement their pensions, equity release has a lot to offer. Equity release plans allow you to access some of the value tied up in your property, either as a lump-sum payment or a regular income stream. But equity release […]
By Holly Thomas in SAGA Magazine. Open banking was introduced on 13 January this year – find out more about what it is, and how it could help you save money. Open banking was introduced this month for current accounts – but what exactly is it? Put simply, it will allow companies to access current […]
From SAGA Magazine. January is a time when many people start to get their finances in order for the year ahead and this could include making decisions about pension savings and where to invest them. But be wary of cold callers and guaranteed returns… Pension savings are an investment in your future, your […]
By Chris Torney in SAGA Magazine. The fake tax demand scam How the fake tax demand scam works One of the most pernicious recent cons involves criminals calling people to say that they are getting in touch on behalf of HM Revenue & Customs. The fraudsters claim you owe HMRC thousands of […]
By Daniel Coughlin in SAGA Magazine. Christmas is the time to eat, drink and be merry, not the time to be worrying about calories, sugar or saturated fat. Be that as it may, going easy on the booze, cakes and mince pies, and boosting your intake with healthier festive fare should do you the world of […]
By Esther Shaw in SAGA Magazine. It may give you peace of mind, but it can also be expensive. Esther Shaw looks at the pros and cons of taking out boiler cover. With the weather taking a turn for the worst and thermostats being turned up a notch, you may be wondering whether it’s […]
By Carlton Boyce in SAGA Magazine. I know what you’re thinking: Defrosting your car is easy, surely? A quick squirt of your de-icing libation of choice and you’re good to go. Or are you? Well yes, that’s fine when there’s nothing more than a light dusting of ice but when it’s really cold […]
By Patsy Westcott in Saga Magazine. An acute cough – one lasting less than three weeks – is the most common reason for new visits to the GP. They are usually linked to colds and other viruses affecting our upper airways and often clear up on their own within a couple of […]
From Saga Magazine. If your broadband connection is slow, it may not be your service provider’s fault. Here are five steps you can take to speed up broadband. How to speed up broadband If you’re struggling with frustratingly a slow broadband, the first thing you need to do is check your connection […]
Wed 21 Nov at 2 pm - Coffee Club, Novotel York.
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Mon 3 Dec at 11 am - Coffee Club at Bar Convent, 17 Blossom St, York.
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April 2019 (Date tbc) - The York Inset Scooter Club will be setting off on their annual Mods and Rockers Charity Ride Out from York to the coast in aid of The York ME Community.
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Weekly - Every Wed, 8 pm - 9 pm on Twitter, ME Awareness Hour using the #MEAwarenesshour hashtag.
Would you like to help your local community ?
By current research, there are around 800 people in the York area suffering from Myalgic Encephalomyelitis (ME). This might include the work colleagues you haven't seen in some time, or your friends and family, maybe one of the lads who hasn't turned up for five-a-side for a while.
There's information at the top of this site to explain how it affects people and ruins lives. These are your neighbours; would you like to help ? To read the rest of this request, click on the link below:
The social element of this site is via a Facebook Group called The York ME Community.
This is available to people in the York area looking for help, advice and support, whether those diagnosed, family or friends. We are a close knit group who discuss more than just ME, as we like to think that we are not defined by this illness. We discuss every day things, have a laugh, and try to meet via our Coffee Club if the beast that is ME allows us ! If you apply to join, please check your Facebook messages, as there are a couple of automated questions to be answered before being welcomed to the group.
Please don't apply to join if you are promoting your preferred remedy. I'm happy to mention your company within the group, but it's for individuals to choose what they wish to try in their battle to seek an improvement in their health.
Some companies and organisations offer discounts for disabled people and their carers – click on the link below to find out what you could save.
Carol Monaghan SNP spoke in Westminster Hall about the need for support and funds for ME Research. Many other MP's spoke passionately on the subject as it affects their constituents UK wide. Click on the link below to watch the full debate.
Looking after your Accessibility Holiday needs with escorted coach tours with qualified care teams. To find out more, click on the link below:
Anil's interview gives a great insight to the man and his ME mission !
Link to Anil van der Zee's Interview
Having read the above interview, I'd recommend a visit to David's Blog below:
After a pretty tough time, the guys riding as part of The Nomadic Knights group, made it to Everest Base Camp. I hope we can use this story to gain interest from media sources to help raise awareness for us all. It's the least the guys deserve for all their efforts.
19 May 2017.
“Very pleased to report that we reached Mt Qomolangma (Everest) Base Camp with the ME Awareness Flag at 1528hrs on Thursday 18th May. Three and a half hours after we had planned but time in Tibet can sometimes be very fluid. The base camp is located at 5200m, walking to the final destination was challenging in itself due to low oxygen levels.
Conditions at base camp were extremely windy (good for flag flying) with intermittent clouds with no particular destination in mind and the sun was not ideal for photos."
Debbie North, our TOG wheelchair walk designer uses an off-road mobility scooter, also called an all terrain hopper to access the countryside and wants to inspire other wheelchair users to do the same through her wheel friendly walks.
Wheelchair friendly walks are a selection of walks that the TOG team have carefully selected for families using pushchairs, wheelchairs or bicycles.
The Jen Brea ME film 'Unrest', about her story and struggle with Myalgic Encephalomyelitis (ME) was shown to a sellout audience at City Screen York on 1st November, prompting a second showing on 16 November. This film has won awards at The Sundance Film Festival and is a must see for all wishing and needing to know more about an illness affecting over 800 people in the York area alone.
Although still showing around the UK and worldwide, it's now also available on Amazon and iTunes and through the Unrest UK Store on DVD and Blu-Ray by clicking on this link: Unrest site to save having to undertake a journey to the cinema.,
Please spread the word through your GP, MP, Company HR Teams and any other people of influence you may know. Thank you.
One of the major questions raised is the blending of ME with CFS. This chart on the Hummingbirds site illustrates the many differences between Chronic Fatigue Syndrome (CFS) and Myalgic Encephalomyelitis (ME).
For confidential and independent advice for everyone on welfare benefits, debt, housing, employment, consumer rights and much more.
Welcome to Broken Puppet Theatre Company.
We are a small team of creative professionals who live with chronic illness and invisible disabilities. We work with theatre, film and puppetry to support children, families, schools and communities who are learning to share their world with chronic illness and invisible disabilities too. Our aim is to provide creative expression and escapism wherever they are needed.
Helpfulpeeps is a platform that allows people in any given area to ask for and offer help to one another. Although this is a nationwide facility, by adding your street name, the system automatically drops a pin on that location and you only see posts from a 20 mile radius. You have the option to narrow or widen this radius. I hope this is a useful facility for members of our Community.
If you're given the time and space to talk things through, you can find a way through your problems.
Samaritans help you to explore your options so you can make decisions that are right for you.
Upon request, North Yorkshire Fire & Rescue Service can carry out a home fire safety visit to your home, completely free of charge. This visit involves fire service staff coming to your home to give you advice on fire safety in the home, actions you can take to reduce the risk of fire, and discuss escape routes should fire occur.
If you don't aim to take up this offer, please at least check the batteries on your smoke alarms on a regular basis. If you want to read more, click on the link below:
The Sandbag Times is an Online Magazine written by Veterans for Veterans
which brings you all the latest national and international Armed Forces and Veterans news. With insights each week into Veterans Charities, organisations, events and lots more. It also supports the work being done by The York ME Community.
To keep in touch with all things military, click on the link below:
The York Inset Scooter Club is based in York (UK) and has a membership of around 250.
They are a thriving, active club and look to support local charities when they can. They have an annual Mods and Rockers charity ride out, and for 2019 have agreed to support The York ME Community.
They will head off from The York Eye (Clifford’s Tower) on a run out to the coast, and be set off by the Mayor of York and the York Normandy Veterans.
All money raised will be used to raise the profile of ME in York through posters being produced and put up in local business premises, clubs, schools, GP Surgeries and venues. The picture shows the club gathering before last year’s Charity Ride Out. More details will be given nearer the time, and will be highlighted on this site.
This is a call out to all York Businesses, Clubs and Venues to put it in your diaries for next season and support your local ME Community.
To help raise ME Awareness in your local area, have a look at the tab at the top of the site for more information.
Our Coffee Club meets twice a month for a cuppa and a natter.
Dates and times will always be shown in our diary at the top left of this site.
The Coffee Club is open to anyone either with ME, or friends and family looking for support from people who understand.
Due to the nature of the illness, there will be times when numbers are low, but if you'd like to attend, either just turn up on the day, or email me at bill@York-ME-Community.org. If you're a member of our Facebook Group, you can of course say you'll be going via the notice in the Events area.
Euan’s Guide is the disabled access review website used by disabled people to review, share and discover accessible places to visit. The charity was founded in 2013 by Euan MacDonald, who is a powerchair user, and his sister Kiki. As Euan’s access requirements changed, both went in search of recommendations for accessible places to go, but a platform for this kind of information didn’t exist. Built as a friendly and honest alternative to hours of web searching and phone calls before visiting somewhere new, Euan’s Guide now has thousands of disabled access reviews and listings for places all over the UK and beyond.
To go to Euan's Website, click on the link below:
Help us raise money for The York ME Community to pass onto Invest in ME Research every time you shop online, and it doesn't cost you a penny !
By using the link below, when you shop online with a huge number of shops, they will pass a percentage of your purchase cost to our fund. THIS MONEY IS DONATED BY THE RETAILERS, NOT YOU !
Written Question to the Department of Health and Social Care on 22 May 2018 by Carol Monaghan SNP, answered by Caroline Dinenage Minister of State (Department of Health and Social Care)
| Financial Year | £ |
| 2014-15 | 280,442 |
| 2015-16 | 295,626 |
| 2016-17 | 130,958 |
A TRUE STORY BY JESSICA TAYLOR-BEARMAN
Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro immune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage school girl. This true story follows her path as she ends up living in hospital for years with tubes keeping her alive.
This harrowing story follows the highs and lows of the disease and being hospitalised, captured through her voice activated technology diary called `Bug' that enables her to fulfil her dream of one day becoming an author.
It provides a raw, real-time honesty to the story that would be impossible to capture in hindsight.
To order the book through Jessica's site, click on the link below:
This book is also now available at York Library
An album of original songs and poetry composed and performed by people with M.E. from all over the world, has been released to mark and support ME Awareness Day, 12 May 2018.
It’s hoped that by releasing this album, it will help those with ME to know that they are not alone, and for others to understand the nature of this illness and give what support they can.
Please consider downloading the album, or even a couple of tracks to help raise awareness of ME, and much needed funds for research into this illness that affects so many, but is understood by so few who may be in positions to help. Proceeds to ME Research and Education. All further information and questions, please direct via the website below: The album can be downloaded now from:
PLEASE SPREAD THE WORD !
I had a very productive meeting with Cllr Aspden and Cllr Runciman of City of York Council where they have stated they will back efforts to raise awareness of ME, understanding that much more is needed to increase understanding of this debilitating disorder, in York and across the UK.
The motion put before Council with regard to support in raising ME Awareness in York was passed unanimously !
The City of York Council followed through on their promise by lighting up the city walls and Clifford's Tower in blue over ME Awareness Week.
Are you a member of a York based Sports or Fitness Club ? Looking for a local cause to run or do an activity for ? The York ME Community are looking to be 'adopted' by anyone willing to maybe run for us and help raise our profile. There are around 800 people of all ages in the York area who would be so very grateful for your help.
We had a brilliant day at York Explore Library raising ME Awareness. Lots of interest in what we're doing from local health groups, charities, the council and most heart warmingly, from those dealing with ME themselves who now know we're here for them.
If you'd like to hear more about ME, get in touch.
Time For Unrest: Why Patients With ME Are Demanding Justice.
If you want the full story on ME and will read just one article about it this year, please make it this one,
Are you on Twitter? Learn more about ME every Wednesday, 8 pm - 9 pm (UK) using #MEAwarenesshour
Mike Harley is a very special guy who's running a marathon in each EU country to raise awareness and funds for Invest in ME Research. Please visit his site to learn more.
To go to the Government's Disability Benefits Advice Guide, click on the link below:
DisabledGo in York provides information on Shopmobility, Talking Signs, Dial & Ride, York Wheels and accessible Public Toilets in our city. To find out more before setting off for York, click on the link below:
FEATURED ARTICLE
By
Sally Duffin
Hello to all the members of York ME Community. I’m Sally, a Naturopathic Nutritional Therapist at ‘Nutrition in York’ and Bill has asked me to share some nutritional therapy approaches for managing ME.
Many nutritional therapists – myself included – are trained in the Functional Medicine approach to healthcare which means we are less concerned with the name of a condition (ME, CFS etc.) and more interested in the underlying cause and contributing factors of the condition. (more…)