The Mighty

The Difficulty Of Living With A Fluctuating Condition

Pacing

  By Sally Rudderty in The Mighty.   I don’t know about the rest of you, but there is such a difference between my good and bad days. Yes, I pace which is the number one advice for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I pace till I’m blue in the face (not literally blue, you […]

Why I’m Thankful To Musician Stuart Murdoch For Sharing His Experiences With ME/CFS

Stuart Murdoch

  By Christina Baltais in The Mighty.   Songwriter and front man of Belle and Sebastian, Stuart Murdoch, opened up about living with ME/CFS in a 2015 interview. Being a fan of the band, and having ME/CFS, this was big news for me. It meant our community welcomed a new face. A face that has a platform to […]

5 Things I Had To Let Go Of When I Stopped Working

Work

  By Christina Baltais in The Mighty.   When illness makes you unable to work, you learn to let go of so much more than just your job. These are the layers of letting go I experienced when I had to take a step back from the world. Each required a paradigm shift to help […]

17 Things People With Chronic Illness Mean When They Say ‘I’m Tired’

Fatigue

By Erin Migdol in The Mighty.   Everyone has said “I’m tired” at one point or another. But those deceptively simple words can have so many meanings. Without knowing the extent of the exhaustion someone with chronic illness is feeling when they say they’re tired, people may think your “tiredness” can be cured by a nap or early night, like theirs, not understanding […]

My Life As ‘Little Miss Brain Fog’

Brain Fog

    By Jane Shaw in The Mighty.   Like its name, myalgic encephalomyelitis is also rather complicated and extraordinary. The illness made Little Miss Brain Fog feel like Little Miss Dotty, Little Miss Scatterbrain, Little Miss Fickle, Little Miss Whoops, Mr. Bump, Mr. Topsy Turvey, Mr. Forgetful, Mr. Lazy, Mr. Muddle, Mr. Dizzy, Mr. […]

The Psychological Impact Of Having To Ask For Help

Help

    By Debbie Deboo in The Mighty.   I was diagnosed with ME 15 years ago. Before that I was a confident professional in charge of my own life and completely autonomous. When I got ill I found myself in the difficult position of having to rely on others. I could no longer go anywhere […]

What To Remember On Days Your Illness Makes You Feel Like Giving Up

Lost

  By Sarah Waisler in The Mighty.   Dear You, You are absolutely right. This does suck, it’s not fair, you do deserve better. This is not what you had planned and you would have done more if you had been given the chance. But you weren’t given that chance and my heart breaks for you. I […]

12 Ways Teachers Can Help Their Chronically Ill Students Be Successful

a4-teachers-planner_3

  By Katrina Pears in The Mighty.   Life has changed a lot for me over the years of having this illness. I once was top of the class. I worked hard, with lots of extra study, and got the grades I wanted. Being diagnosed with chronic fatigue syndrome meant my hours of activity every […]

5 Unrealistic Expectations About Pacing That Can Hurt Our Health

Pacing

    By Kels Invisible-Warrior in The Mighty.   They say the key to happiness, sustaining our lifestyle and managing pain is to simply pace ourselves. We have all been in a place in our lives where pacing our actions would benefit us. Whether it be because we had the flu, were pregnant, broke a leg or we were just too stressed […]

Humans Of ME/CFS

Mighty

  By Lori J. In The Mighty.   When I developed ME/CFS (chronic fatigue syndrome), I had never heard of it. I went to a doctor, hoping to get a prescription, and I expected to be back up to full speed in a few days. But, that didn’t happen. So, over the course of the […]

Losing Myself To Myalgic Encephalomyelitis

GP

  By Lisa Alioto in The Mighty.   The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening.   A sense of relief actually washes over me. Almost a weird sense of elation. Even though I’ve just been told I […]

5 Tough Choices You Face When You’re Chronically Ill Or In Pain

Mighty

  By Toni Bernhard in The Mighty.   Having chronic pain or illness — or, as is often the case, both — is hard work. One reason for this is that we must constantly assess and evaluate if we’re managing our health and our relationships skillfully. This requires us to make tough choice after tough choice. Here are five […]

The Hidden Struggle Of Being Young And Chronically Ill

Nervous System

  By Bethany Freeman in The Mighty.   I’m a 19 year old university student in semester break. It’s a Saturday morning. I woke up dehydrated and nauseas, absolutely exhausted (I didn’t sleep until around 4 a.m.), sore and feeling foggy. I’m sure I’m not alone in this feeling – many other young university students […]

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