The Mighty

What You Would See If You Looked Under The Blanket Of ME/CFS

Lonely

  By Ali in The Mighty. Sometimes I feel like I am lost, not as in aimlessly wandering and off the track, but as in missing and can’t be found. But I am here, under blankets. Much of the time I can usually be found under an actual blanket on the couch or in my […]

When I Can’t Hide My Chronic Fatigue Syndrome Anymore

ME

    By Kirsty Hird in The Mighty.   I remember in the late 1990s watching a film about a group of teenagers who dabble in witchcraft, with disastrous consequences. They use a form of magic called a “glamour,” which allows the witches to create an illusion, concealing the true form of something. In the film, glamours are used […]

When I Can’t Hide My Chronic Fatigue Syndrome Anymore

Lost

      By Kirsty Hire in The Mighty. I remember in the late 1990s watching a film about a group of teenagers who dabble in witchcraft, with disastrous consequences. They use a form of magic called a “glamour,” which allows the witches to create an illusion, concealing the true form of something. In the film, glamours are used […]

When You’re Stuck In The Middle Of ‘Sick’ And ‘Well’

Lonely

  By Cherilyn Schutze in The Mighty.   Stuck in the middle of sick and well. That’s how I feel. Chronic illness is never easy, whether you are the person who’s sick, or the caretaker or family member of a person with a protracted illness. Before I became ill, I was very busy multi-tasking, care-taking, mothering, wife-ing, and […]

The Differences Between Temporary And Chronic Pain

Chronic Pain

By Krista Germanis in The Mighty. Pain and sickness are really difficult things to write about. Trying to describe things you’re feeling, but many people have never dealt with before, is essentially attempting to put pen to paper about the way butterflies feel in the beginning of a relationship to someone who still has yet […]

Why People With Chronic Illness Can’t Simply ‘Push Through’

Chronic

By Alicia Thompon in The Mighty.   It never ceases to frustrate me to realize how pervasive the “Just Do It” culture is. Whenever I discuss my physical limitations with others, I’m often met with the suggestion that I simply need to “push through.” Which leaves me wondering, what does this phrase really mean to […]

Succeeding As A Disabled Person Without Being ‘An Inspiration’

Pippa

  By Pippa Stacey in The Mighty.   If my story was part of an inspirational movie, dramatic music would play while I’d look meaningfully into the camera and gush about how becoming chronically ill changed my life for the better. I’d clasp my hands together and preach about how my condition helped me to […]

I Am Not Alone With Myalgic Encephalomyelitis, But It Is Still Lonely

Lonely

  By Ali Kirby in The Mighty.   There are many ways that chronic fatigue syndrome/myalgic encephalomyelitis(CFS/ME) has affected my life. I often find myself grieving for the life I used to have. I miss hiking and kayaking and basketball and diving under the waves at the beach. But, the thing I grieve most for is my […]

23 Ways To Help Yourself When You Live On Your Own With ME/CFS

Alone

  By Laura Denman in The Mighty.   Living with chronic illness, especially one involving chronic fatigue, is hard. Often we rely on others for help to do those every day tasks that most people take for granted. We need to take care of ourselves to minimize the effects of our illness and yet, even these […]

The Question No One Ever Asks About Life With Chronic Fatigue Syndrome

ME !

  By Hannah Deal in The Mighty.   Have you ever felt unable to put an experience into words? As if the only way to truly get your thoughts across was to write about it? That’s sort of how I’m feeling about life right now. My life looks pretty good from the outside. In the […]

10 Feelings That Alternate in My Mind As I Live With ME/CFS

Lonely

  By Kendall Kuzma in The Mighty.   For someone in reasonable health, it can be hard to understand what a loved one is going through if they are struggling with some kind of ongoing health issue. It’s especially tough for everyone if the illness is one which is unseen, as in, no obvious signs of the […]

The Reality Of Chronic Fatigue And Exhaustion

Fatigue

    By Caz in The Mighty.   What exhaustion and fatigue are not: 1. Laziness. It’s not simply not “wanting” to do something or not being bothered. 2. A temporary state you can simply overcome with a little positive thinking or an energy drink. 3. Cured by sleep. Being “sleep tired” and being exhausted are not mutually exclusive but […]

The Questions I Ask When People Refuse to Believe ME Exists

ME !

  By Jo Moss in The Mighty.   I have been in my local paper twice recently raising awareness about myalgic encephalomyelitis (ME). Both times, spiteful comments have been left by members of the public stating: “ME doesn’t exist.” “It’s all in their heads.” “You are just lazy.” It’s a stigma we, the ME community, […]

Why The Netflix Docuseries ‘Afflicted’ Is Harmful For The Chronic Illness Community

Netflix

  By Paige Wyant in The Mighty.   “Afflicted,” a new Netflix docuseries that premiered on August 10, follows seven people who live with chronic illnesses. I originally thought “Afflicted” was going to shed light on less-known illnesses and elevate the stories and voices of those who struggle with them, but the docuseries did the opposite. Instead […]

What I Was Really Telling My GP When I Swore At Her In The Exam Room

Doctor

  By Suzette Bishop in The Mighty.   I’m not proud of cursing out a former GP. On top of that, I think she may have been even shorter than me, a very petite and soft-spoken woman. I had been going to her for over a year, and I was back for a routine follow-up.  I was […]

7 Secrets I’ve Been Ashamed to Tell Others About My Illness

ME12

  By Sally Rudderty in The Mighty. I’ve struggled with severe ME/CFS for 11 years now and I’m only just realizing I’m ashamed of my situation. I think I’ve known it all along at the back of my mind, but only now has it formed itself into concrete words in my head. And on this piece of paper. I’ve […]

When Gaining Weight Because Of Chronic Illness Is A Common Story

Chronic

  By Lorna Fenech in The Mighty.   Even before I was diagnosed with myalgic encephalomyelitis (ME), I always found it hard to love myself and my body. Low self-esteem and body dysmorphia contributed to a generally negative perception of myself, particularly my weight. Over the years I tried to manage this by staying healthy. I have […]

8 Ways You Can Support Your Friends With ME And Fibromyalgia

Frustration Chronic Illness

  By Victoria Fernando in The Mighty.   I have myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and I am writing this post in honor of International ME/CFS and Fibromyalgia Awareness Day, this Saturday, May 12th, 2018. Kudos to all those surviving and doing their best whilst living with these diseases, and to the caregivers and loved ones who love and […]

When I Thought I Lost Me To ME

Lisa

  By Lisa M Alioto in The Mighty.   For years now, I’ve dreamed of being healthy again. I know I may never be, but I will continue to dream for it.  I also know that for years that I no longer felt like myself. I felt lost in the pain, the disease, the uncertainty of it […]

The Questions I Ask When People Refuse To Believe ME Exists

Lost

  By Jo Moss in The Mighty.   I have been in my local paper twice recently raising awareness about myalgic encephalomyelitis (ME). Both times, spiteful comments have been left by members of the public stating: “ME doesn’t exist.” “It’s all in their heads.” “You are just lazy.” It’s a stigma we, the ME community, […]

Why I Experience ‘Flare Fear’ On My Good And Bad Health Days

ME !

  By Samantha Taylor in The Mighty.   The Fear. The anxious, stomach churning, paranoia riddled feeling deep inside when you feel that something is about to go wrong. You feel sick, you’re sweating and there’s an impending sense of doom. You’ve felt it right? I think we all have at some point. I certainly […]

What I Wish People Knew About My Illness, Even When I Look Fine

chronic-illness

  By Deema H in The Mighty.   I haven’t quite decided what I think is worse: living with a chronic illness or living with an invisible chronic illness. I’ve come to find people don’t realize it’s offensive, not a compliment, to say, “But you don’t look sick!” Let me tell you something: Looking healthy doesn’t make […]

Researchers Were Able To Predict ME/CFS With 84 Percent Accuracy

Blood Test

  By Erin Migdol in The Mighty.   One of the biggest challenges of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is no definitive test exists yet to prove you have the condition, making it difficult for patients to get diagnosed — and, in many cases, to prove there is even anything “wrong” with you at all — or […]

Is It Wise To Have A Pet When You’re Chronically Ill ?

Dogs

  By Marianne Davis in The Mighty.   There is increasingly strong evidence that sharing our life with a pet has important health benefits. Anybody who has one or more will tell you that their dog, cat, bird, rabbit or any other creature is the apple of their eye. This is especially true for those […]

When The Isolation Of Illness Causes The Outside World To Feel ‘Alien’

Lonely

  By Jo Moss in The Mighty.   When you have severe ME/CFS, or any illness that causes you to become housebound, you feel isolated. It’s very easy to feel forgotten. Your life is put on hold but the world goes on outside without you. How can an event that is so catastrophic for you […]

What It’s Like Returning To Work With Myalgic Encephalomyelitis

Work

  By Marie Johnson in The Mighty.   Returning to work following two years of being almost permanently housebound was not a decision I made lightly. As with most things I do, I put a lot of thought into it and weighed up how working could possibly affect me and how I could be most […]

When Chronic Fatigue Syndrome Has No Beginning and No End

Lonely

  By Rebecca Handler in The Mighty.   Let me begin by saying, this is a very incomplete story with no beginning and no ending. Perhaps it’s not even a story at all. This is where I will start. In the days following getting sick with chronic fatigue syndrome, most of my memories have been lost, […]

6 Ways To Be Heard If You Live With Chronic Illness

Frustration Chronic Illness

  By Victoria Weter in The Mighty.   Some days are worse than others. Some days it is a trial just to get out of bed in the morning, but still I manage to roll out and attempt my day. Through these days, I load up on vitamin B and caffeine, and most days it […]

Struggling to Accept the Days When Illness Keeps Me From Doing Anything

Indoors

    By Sally Rudderty in The Mighty.   I’ve had some of those awful days recently (they happen now and then, and more often than I’d like). You know the type: days when instead of your bed being somewhere that you go to rest, your bed becomes a prison that you can barely get out of. […]

Why Sick Women (and Men) Must Rise Together

Jen

  By Jennifer Brea in The Mighty.   The longer I am sick, the more I view what has happened to my body as a political problem, not only a medical or scientific one. We underinvest in health research for chronic illnesses, autoimmune diseases in particular. Many of these diseases hit women hardest and also […]

Being Negative About My Illness Doesn’t Make Me Less Of A Warrior

Chronic

  By Megan Klenke in The Mighty.   I’ve been struggling with writing a lot lately. Who am I kidding, I’ve been struggling with everything lately. I feel this need when I write and a lot of the time in person (basically anytime I’m talking to anyone outside of my family, my boyfriend and my best friend who is […]

When All The Words For ‘Tired’ Feel Reserved For The Able-Bodied

ME5

  By Geoffrey Bunting in The Mighty.   I’m sitting in my doctor’s office with my hand on my chest and my face twisted in a fisted grimace. I’m searching for the right words to describe the strange, heavy ache around my sternum. I know I only have on chance. Saying the wrong thing gives the doctor, […]

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