Whitney Dafoe

The Great Beyond

Whitney-birthday

By Whitney Dafoe.   Having Severe ME/CFS is so close to being dead. There’s really no other way to describe the experience I have had. I don’t think it’s something that people who haven’t had severe ME/CFS can likely understand. Looking back at who I was when I had mild and moderate ME/CFS I’m not […]

Book Excerpt From The Puzzle Solver

Whitney-birthday

By Tracie White in The Scientist. I smile and nod, and he smiles back. It’s like watching the image I’ve created inside my mind of this young man, built out of bits and pieces of stories and interviews and writings and photos, come magically to life. It is easy to like him, and I do like […]

A Geneticist’s Quest To Understand His Son’s Mysterious Disease

Ron Davis

By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him.   About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]

First In Our Superhero Series : The Whitney

Whitnet Dafoe

    Written by Di in Stanford Wood Studio.   Di has had a fascination with beautiful handmade items all her life and always had a yen to try making some herself, yet forever found herself putting it off. She got to the stage where she thought, if not now; when? And that’s how she […]

Celebrating Whitney Dafoe And His “Awakening” On His 37th Birthday

Whitney-birthday

By Cort Johnson in Health Rising.   It’s Whitney Dafoe’s 37th birthday. He’s had chronic fatigue syndrome (ME/CFS) since 2004 and has been severely ill since about 2012. Fed by feeding tubes, eyes and ears covered, too weak to move, unable to speak or tolerate almost any stimuli. Whitney has hovered in a kind of […]

He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

Ron Davis

  By Ryan Prior, CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless on […]

He Pioneered Technology That Fueled The Human Genome Project. Now His Greatest Challenge Is Curing His Own Son

Ron Davis

    By Ryan Prior CNN.   (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney lies motionless […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

Whitnet Dafoe

  By Tracie White in Stanford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a prison. […]

Stanford: Scientist Searches For Answer To His Son’s Devastating Condition

Whitnet Dafoe

  By Lisa M. Kreiger in The Mercury News.   As a renowned Stanford scientist, Ron Davis has a deep appreciation for the power of modern medicine. And yet an explanation for the disease afflicting his own beloved son eludes him. Son Whitney, 33, suffers from such severe Chronic Fatigue Syndrome that he is bedridden, unable to […]

The Puzzle Solver – A Researcher Changes Course To Help His Son

Ron Davis

    By Tracie White in Stafford Medicine.   For three years, Whitney Dafoe’s world has been a darkened room at the end of a hallway in the back of his childhood home. An insidious disease, one with no known cause or cure, has slowly stolen his life from him, turning his body into a […]

The Love Of A Thousand Muskoxen: Grieving A Love Lost To Time And Sickness

Whitnet Dafoe

      Stephanie Land writes about her time with Whitney Dafoe, the severely ill son of Ron Davis, before he became ill with ME. She describes him as she knew him, and the urgency she feels as a writer to tell the story of the people with this disease whose suffering has been so […]

The York ME Community © 2015
Powered by Live Score & Live Score App