By Whitney Dafoe. Having Severe ME/CFS is so close to being dead. There’s really no other way to describe the experience I have had. I don’t think it’s something that people who haven’t had severe ME/CFS can likely understand. Looking back at who I was when I had mild and moderate ME/CFS I’m not […]
Whitney Dafoe
Book Excerpt From The Puzzle Solver
A Geneticist’s Quest To Understand His Son’s Mysterious Disease
By Tracie White in The Scientist. Ronald Davis of Stanford University changed his focus to research on ME/CFS, the disease formerly known as chronic fatigue syndrome, in a bid to help his son and others like him. About 10 years ago, Stanford University genomicist Ronald W. Davis began a new investigation into a mysterious […]
First In Our Superhero Series : The Whitney
Celebrating Whitney Dafoe And His “Awakening” On His 37th Birthday
By Cort Johnson in Health Rising. It’s Whitney Dafoe’s 37th birthday. He’s had chronic fatigue syndrome (ME/CFS) since 2004 and has been severely ill since about 2012. Fed by feeding tubes, eyes and ears covered, too weak to move, unable to speak or tolerate almost any stimuli. Whitney has hovered in a kind of […]
He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son
He Pioneered Technology That Fueled The Human Genome Project. Now His Greatest Challenge Is Curing His Own Son
The Puzzle Solver – A Researcher Changes Course To Help His Son
Stanford: Scientist Searches For Answer To His Son’s Devastating Condition
By Lisa M. Kreiger in The Mercury News. As a renowned Stanford scientist, Ron Davis has a deep appreciation for the power of modern medicine. And yet an explanation for the disease afflicting his own beloved son eludes him. Son Whitney, 33, suffers from such severe Chronic Fatigue Syndrome that he is bedridden, unable to […]