The Difficulty Of Living With A Fluctuating Condition



By Clare Rudderty in The Mighty.


I don’t know about the rest of you, but there is such a difference between my good and bad days.

Yes, I pace which is the number one advice for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I pace till I’m blue in the face (not literally blue, you understand). People pace differently, but it involves alternating rest and activity at a level which is “manageable” for you. For me, it involves doing exactly the same thing every day. Day in, day out. If it’s 11 a.m., you’ll find me in the shower. 6:40 p.m.? That’s my 13-minute (to be exact) reading slot. This was what I was taught. Find your baseline of activity and do it every day no matter how you’re feeling.


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