The Failure Of Clinical Guidance For People With ME



From #MEAction.


ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis.

 The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and governments across the world continue to recommend them as treatment, including the Mayo Clinic and UK government.

Below is a two-page excerpt from Dimmock’s report. Read her full paper here.

Clinical Guidance for ME: “Evidence-Based” Guidance Gone Awry

This article is intended as a high-level summary of key issues in the conduct of ME “evidence- based” reviews and clinical guidance that have resulted in flawed guidance. This has misled medical providers on the nature of ME and its appropriate treatment and put people with ME at risk of harm.

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For many years, ME evidence-based reviews and clinical guidance globally, such as those from Cochrane, UpToDate, Mayo, NICE, and various medical journals and societies around the world have recommended cognitive behavioral therapy (CBT) and graded exercise therapy (GET) as effective and safe treatments for ME. Further, these sources have sometimes claimed that disease risk and poor prognosis is the result of behavioral and psychological factors such as maladaptive coping, a history of abuse, perfectionism, and the patient’s belief that the disease is organic. In spite of patient surveys and anecdotal reports that these treatments were not only ineffective but harmful, these recommendations and statements have remained.


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