From the ‘A Ship Of My Own Making’ blog.
ME/CFS can’t be prevented, we all know that. But do we? Certainly it isn’t something that medical professionals talk about, or ME/CFS advocacy and patient support groups, and equally certainly there is no proven method of prevention.
I, personally, don’t believe that that means it isn’t possible. I think that we can protect ourselves, at least to some extent.
You can see why it’s not something that’s generally spoken of. Nobody knows what causes ME/CFS. Not only that, but there is no diagnostic test; not even standard diagnostic criteria. There is no known treatment and definitely no cure. Basically, it’s one massive mystery, so how could it possibly be prevented?
There are very, very few statistics about this illness, and even fewer reliable ones, but there are a few things that we know. While it is absolutely true that anybody, absolutely anybody, can get ME/CFS, there does seem to be a type of person who tends to be more likely to end up with it. This doesn’t mean that they will, or that others won’t, but these people appear to have a higher likelihood of getting it. Even so, there are no official statistics about this; the fatigue clinic whose services I use have been doing this work for a long time and have been able to observe trends to a certain extent, as have other groups who work with ME/CFS patients.
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