By David Tuller, DrPH in Trial By Error.
In an eagerly awaited draft report, an Australian advisory committee on ME/CFS has called for the development of up-to-date domestic clinical guidelines and an increase in biomedical research into the pathophysiology of the illness. The draft report, which could have a major impact on health policy going forward, also highlights the potentially dangerous impacts of graded exercise therapy, the international controversy over the PACE trial and the challenges that Australian patients confront accessing federal disability benefits.
In October of last year, the Office of the National Health and Medical Research Council established the ME/CFS Expert Advisory Committee to provide recommendations about “the research and clinical guidance needs for ME/CFS in Australia,” per the draft report. When I visited Australia last March and April, it seemed that many community members did not have high hopes for the outcome.
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