Trial By Error: The Danish ME Association’s Open Letter

David Tuller

 

By David Tuller in Trial By Error.

 

The Danish ME Association has sent and posted the following open letter to “Danish health politicians,” with a very impressive list of international signatories. It seemed important to give this letter wide circulation. (Note that footnotes 4 and 5 are linked to the names of two of the signatories, as in the original letter.)

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Open Letter to Danish Health Politicians

On March 14th 2019, a unified Danish Parliament voted to acknowledge WHO’s diagnostic classification of Myalgic Encephalomyelitis (ME – G93.3) as a biological illness and to separate ME from Functional Disorders.

The proposal passed is aligned with the current international scientific knowledge about ME.

Based on analysis of more than 9.000 peer-reviewed studies, the Institute of Medicine [1], Centers for Disease Control (CDC), National Institutes of Health (NIH), as well as the advisory report from the Dutch Health Council [2], conclude that ME is a serious chronic multisystem, biological disease that substantially limits the activities and quality of life of patients.

ME is a complex and physical disease for which there is currently no cure. It is not a psychological or psychosomatic disease. There is strong scientific evidence of neurological/autonomic dysfunction, immunologic and inflammatory pathologies, microbiome perturbation, metabolic/mitochondrial as well as cardiac abnormalities (and more) in patients.

 

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