Trial By Error: Today Is May 12th And Everyone’s Missing


David Tuller

By David Tuller, DrPH

Today, May 12th, is International Awareness Day for Chronic Immunological and Neurological Diseases (CIND)—often shortened to International ME (or ME/CFS) and Fibromyalgia Awareness Day. Besides ME, other diseases included in the CIND group, per the May 12th International Awareness Day site, are chronic fatigue syndrome, Gulf War Syndrome and multiple chemical sensitivity. The date was chosen because it is the birthday of Florence Nightingale, who apparently suffered from an ME-like condition.

In recent years, patients and advocates around the world have mounted “millions missing” gatherings and demonstrations on May 12th to highlight the numbers of people whose lives have been devastated by ME, or whatever name is used for this illness or cluster of illnesses. These analog actions are not possible today. Everyone is missing this year. Today’s events have all gone virtual.


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