We Are Failing People With Very Severe ME/CFS

By Amber Ella in Health Rising.

The point of no return.

I have advocated for three people with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in the past few years. Each time I experience the same sense of frustration, dread, and panic over my inability to connect the dots required to pull someone back from the brink. In this piece, I highlight some of the common shortcomings I have experienced in my advocacy efforts and offer ideas on how we can better support people with very severe ME/CFS.

The primary goal is to prevent patients with severe illness from slipping through the cracks and passing the point of no return. Sadly, this seems to be the trajectory for many people with very severe ME/CFS.

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