By Jo Moss in The Mighty.
When you have severe ME/CFS, or any illness that causes you to become housebound, you feel isolated. It’s very easy to feel forgotten. Your life is put on hold but the world goes on outside without you. How can an event that is so catastrophic for you not have an impact on the world around you? How can life for others go on as normal? You are surrounded by a cocoon that protects you from harm but it also excludes you from life.
I have spent the majority of the last five years confined to one darkened room. I also don’t watch TV because it’s so exhausting, so I miss out on a lot of developments in the world. Fashions change; when did men’s clothing become so tight? The music scene changes; I haven’t got a clue about any current artists. Language adapts; there are new slang words and I haven’t the foggiest what they mean. Trends, fads, media, films, TV programs, politics, they all evolve.
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