by Sasha Nimmo in ME Australia.
Why is it important to use ME and CFS? It’s time, Australia needs to leave behind ME/CFS and CFS/ME and adopt the International Consensus Criteria for ME.
‘ME and CFS’ captures an audience who have been diagnosed with chronic fatigue syndrome, as some patients who have been diagnosed with CFS in Australia meet the criteria for ME (just under 32%).
There are a number of different criteria, therefore different names, currently in use.
How Australia names this illness now is important. We have an opportunity in Australia to move straight from ‘Chronic Fatigue Syndrome’ to ‘Myalgic Encephalomyelitis’, as specified in the International Consensus Criteria (2012 ICC) which we should take advantage of, and not muddy the waters by using ME/CFS, CFS/ME, CFIDS or SEID. This will help us be taken more seriously and, importantly, better criteria will be used to diagnose patients and classify them for research, so the quality of research will be better and hopefully bring us to treatments and a cure more quickly (Griffith Uni, for example, used the ICC in studies leading the patenting of a biomarker blood test).
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