The York M.E. Community – M.E. News !

Below, you will find stories from around the world regarding M.E. Research and people in the news, local, national and international. The site is updated every day, so please keep coming back to find out what’s happening. You might also want to have a look at the tabs above for more interesting stuff !  It […]

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: When Suffering Is Multiplied

By Anthony L. Komaroff in MDPI. Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness defined predominantly by symptoms. Routine laboratory test results often are normal, raising the question of whether there are any underlying objective abnormalities. In the past 20 years, however, new research technologies have uncovered a series of biological abnormalities in people with […]

Scoping Study

From European ME Coalition. There is progress at the European level, but things are moving slowly. The European Commission plans to issue a scoping study that will include ME/CFS. Below, you can read an update on our work to get ME/CFS research funded through Horizon Europe, the 95 billion euro research program of the European […]

Blue Badge Access – York

URGENT – Actions in relation to removal of Blue Badge parking spaces in the city centre. Many of you will have been following recent developments regarding Blue Badge parking. At the meeting of the York Human Rights City Network Steering Group on 15th July, we took the decision to issue a statement in which we concluded that: […]

International ME/CFS Conference To Focus On New Frontiers, Long COVID, Exercise Studies, Immune Exhaustion And More

By Cort Johnson in Health Rising. Something that’s never happened in thirty years is happening: the International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (IACFS/ME) Conferences are happening one year apart. That’s presumably due to the newfound ease of hosting conferences online. Founded in 1990, the IACFS/ME holds a unique place in the ME/CFS universe. The international […]

“Blue Badge Changes Offers Little For Severely Disabled”

From York Press. YORK council now offers consultation with Blue Badge holders on the radical changes in the plan for disabled parking in the city. Or have the decisions already been made? This new plan offers very little for those severely disabled people, who, once parked, require a wheelchair or other mobility device to continue […]

‘Our Worst Day!’ Popular York Café Fears For Its Future After Council Forces It To Remove Outdoor Seating

From YorkMix. A York café’s profits have plummeted by more than half after a council “technicality” robbed them of their outdoor seating. 52 Broadway Coffee Shop in Fulford, described as a “meeting point” for the local community, has been forced to remove its outdoor seating and the owners have been told they can’t even open their […]

Ministers Could Merge Disability Benefits And Want To Cut Future Spending, Says Green Paper

By John Pring in Disability News Service. Ministers are considering measures to cut rising spending on disability benefits, and the possibility of merging personal independence payment with universal credit, a new government green paper has revealed. The health and disability green paper, Shaping Future Support, focuses on reforming personal independence payment (PIP), employment and support allowance […]

Statement Presented To The Council: Ensuring Access For All

From The York Disability Rights Forum. On Thursday 15th July, York Labour took a motion to a full council meeting (agenda item 8) that seeks to make the city centre fully accessible. The motion passed but with significant ammendments and we will be posting a blog that explores those changes and what they mean for the motion […]

Trial By Error: CBT Model Of Medically Unexplained Symptoms, Explained; CBT Trial For Q-Fever Fatigue

By David Tuller in Virology Blog. As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these investigators from claiming […]

Next Steps For New Unitary Councils In Cumbria & North Yorkshire

By Andrew Palmer in Yorkshire Times. Plans for new unitary councils in Cumbria and North Yorkshire have taken an important step forward today following approval from Local Government Secretary Robert Jenrick. The plans will move the areas away from a two-tier system of county and district councils to unitary councils, strengthening local leadership and transforming […]

DwME Joins Call For NICE To Maintain Scientific Process

From Doctors With ME. Further to our position statement on the 2021 NICE guideline update, Doctors with M.E. has joined the call for NICE to ensure that unconsulted changes are not injected, as these would avoid scrutiny by the scientific community. DwME considers the 2021 NICE guideline to be a watershed moment in the history of […]

News In Brief – July 2021

From Science For ME. This thread has a Science for ME ‘News in Brief’ post for each week in July 2021 written by a team including @Trish, @Kalliope and @ahimsa. Scroll down to see this week’s news. to read all the news, click on the link below: News in Brief – July 2021 | Science for ME (s4me.info)

ME/CFS And The Coronavirus Vaccine: Is There A Better Way ?

By Brendan in Health Rising. The choice has been a difficult one: protect oneself from a potentially dangerous virus but risk a relapse by getting the coronavirus vaccine, or not get the vaccine and hope that you don’t come down with the virus. Health Rising’s poll suggests that many people with ME/CFS/FM are indeed having a […]

Disabled People’s Organisations Draw Up 10-Year Plan To Tackle Inequality

By John Pring in Disability News Service. Disabled people’s organisations have sketched out a 10-year plan – at a cost of up to £18 million – to tackle the “deep and persistent” inequality, marginalisation and discrimination that is blighting the lives of millions of disabled people. A new report, built on research by eight regional […]

Disabled Councillors Blocked From Accessibility Vote — Because They Are Disabled

By Jasmine Andersson in iNews. A council ballot turned sour when two councillors were blocked from voting in an accessibility debate — because they are disabled. Councillors Katie Lomas and Ashley Mason were told by York City Council they had “a prejudicial interest” in vote on improving accessibility in the town centre because they are Blue Badge holders. […]

Disability Access To York City Centre

City of York Council and Access Discrimination. You may recall from a previou post that I mentioned how City of York Council had barred Blue Badge Holders from the city centre. This temporary situation supposedly brought in due to Covid-19 restrictions is now to be made permanent. A debate on the subject of access was […]

Why Nurse Prescribers Are Crucial In The Fight Against Antibiotic Resistance

By Valerie Ness et al in The Conversation. In October 2020, the World Health Organisation declared antimicrobial (or antibiotic) resistance (AMR) as one of the greatest threats to global health. While that is unlikely to change in the foreseeable future, the organisation’s latest report reveals significant reductions in the consumption of antibiotics in eight European countries including the UK. […]

We Are Failing People With Very Severe ME/CFS

By Amber Ella in Health Rising. The point of no return. I have advocated for three people with very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in the past few years. Each time I experience the same sense of frustration, dread, and panic over my inability to connect the dots required to pull someone back from the […]

Hypothesis Predicts Major Failure Point In Chronic Fatigue Syndrome (ME/CFS)

By Cort Johnson in Health Rising. After attempting to explain the cardiovascular issues in ME/CFS, Klaus Wirth and Carmen Scheibenbogen take on the energy and muscle issues. Warning – this is complex! Klaus Wirth and Carmen Scheibenbogen brought the chronic fatigue syndrome (ME/CFS) world something entirely new in 2020 with their hypothesis paper, “A Unifying […]

Honorary Fellows And DwME Leadership Cited, Highlighting The Medical Profession’s Move Towards Belief And Support

Doctors With ME in The Guardian. Doctors with M.E. Honorary Fellows and Leadership were quoted extensively in a recent article article about post-viral disease by Christina Frangou. Published in the Guardian, the article has been well received by experts in the field and is entitled“‘I felt betrayed’: how Covid research could help patients living with chronic fatigue […]

The York Access Hub

There’s a new website launching in York soon called the York Access Hub.  It will offer free advertising to York businesses including text, photos and a little information as to how accessible your business is to the disabled community. The idea is that it will be the one stop shop for visitors to York, either […]

Open Letter: Being A Carer For My Wife With ME

From the ME and Me Blog. Martin met his wife over a decade ago, he’s watched as ME attacks the person he loves. His knowledge of ME has grown over the years and he’s now Lex’s husband and carer. Read his open letter below. By Martin Bates. Hi all, I met Lex 11 years ago […]

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